Any recommendations for Headaches during a flare?

Sorry to hear all your woes.

I also had terrible vertigo and agonising headacheas a sytom of a recent flare - you have my sympathy.

Nothing really helped but bucastem- an antisickness med which also helps with vertigo did help a bit. Also don't bend down or look up- some of my vertigo was positional. In the end it was found i had ulcers in my throat and at entrance to eustacian tube adding to this problem.

I had conflicting advise from various docs - I went with advise from the Behcet national centre of excellence in London.

Kind regards

I

Thank you for your reply.

Do you mind if I ask how you were diagnosed with ulcers in the eustachian tube? I am keen to find out if that could have been my problem? The Migraine like symptoms have passed however I still have a dull headache and I want to make sure if I have another flare with this symptom that I know what to do or take.

Thanks again

Hello my lovely. Currently suffering vertigo (I thought I was dying!) so not a long response. Migraines and migraine type headaches are a very common bd problem if you go to the behcets syndrome society - just click at the top somewhere - you will find a fact sheet dealing solely with that problem.

Hi I have suffered with these symptoms headache, dizzy and like my ears are blocked for 5 years. My GP said its nothing just aftermath of a cold. My consultant said not BD. Then at my last appointment with consultant he said it very probably Is BD as a lot of BD patients have been presenting with this lately. He prescribed Cetirizine an antihistamine, and it helps me a lot, just one tablet a day as and when needed.

Hope this helps.

Billi

Thanks all for your response.

Devonshiredumpling thank you and I hope you feel better. I read the factsheet however it didn't refer to any mess (as far as I saw however I didn't read it in fine detail)

Billi thanks for your tip, does Cetirizine help with the headache as well as blocked ears or mainly the ears? I didn't think an antihistamine would help with a headache.

Thanks!

Reading this sounds like I'm reading my own story without the colchicine working and with the crohns diagnosis and things I mean, when my headaches come I find it best to just hide in a dark room and try to sleep obviously looking at screens and things just make them worse, I am in edinburgh but have yet to see a consultant up here as I just moved here sorry good luck with the headaches hopefully the colchicine will work again soon

Thanks Paige. I have managed to get on top of things, really curious in case this happens in future. I have coping mechanisms for most of my symptoms but this one is new!! Hope you find a good consultant in Edin.

I find that ridiculous that the nurse specialist says headaches/migraines are not related! Anyway, your symptoms are just like mine, and I was finally diagnosed after 16 years. For my worst migraine ever, it went to a 3 day migraine and I finally went to the ER. They gave me an iv with some sort of pain relief and reglan. I have the reglan prescription handy and it helps if I am having a really bad migraine, also with extra strength excedrin. I have hemiplegic & acephalgic migraines along with typical migraines and headaches. But they are greatly decreased after being gluten free and after many years.

HI, agree with Katniss 12 about your nurse specialist advise, Nurse specialist in what...mmmm. Neurobechets is very common ( as I found out recently). If it continues your consultant could give you a brain scan just to be sure. Often over the counter migraine tabs don't work and you will need a prescription for something stronger. Anyway, hope you're feeling better.

jo

I used to take propronolol as a preventative and I carry maxalt wafers with me for sudden onset and 'pickaxe' headaches.

I had the Epley manoeuvre carried out and it helped a lot with my vertigo. As we can see from the responses above, there are many types and reasons for headaches and lots of treatments available.

The Society should be able to advise you about recommended specialists.

There are two similar discussions going on at the moment - the other one is here

healthunlocked.com/behcetsu...

Rach, did you know you can make your posts and questions privately so they can be read only by members of this group and not by anyone anywhere?

Given the sensitive nature of some of the posts a lot of members prefer to do this, and sometimes don't answer questions which are not private.

Hi my daughter has suffered really badly with headaches and your description is great!

We have been lucky to see a lovely ENT doctor who has thought about everything Grace has said and read all reports from GOSH and diagnosised her with migraines a month ago as he believes it is all connected . He has put her on Pizotifen one at night and wow has it made a difference! Took a few weeks but she is sleeping and No headaches , feeling sick and the double vision has improved.

Hi there Rach

I have horrible migraine type headaches that can last for days/weeks and have found Feverfew [a herb] taking every day has helped to lessen the amount of attacks I have and also the symptoms.

Some people grow it themselves and use the leaves in a sandwich or salad and others just take capsules or tinctures.

It works for me so might be worth having a try if your G.P is o.k with it.

As someone else has said Dr Kidd is the Neuro expert in these matters and has written a factsheet on Headaches

behcets.org.uk/information-...

Perhaps you could print it off and take it with you when you see the Doctor/Nurse as there are recommendations of treatment on it.

Also, if you type the words "headache" or "migraine" or Dizzy" in the search bar above on your righthand side you will get a whole load of previous discussions on this.

hope some this helps