Posts - MPN Voice | HealthUnlocked

MPN Voice

10,722 members • 14,843 posts

All posts for March 2021

Covid19 vaccine

Hi has anyone read the news about the jab some of us had ,made me bit worried now if it true about the blood clotting has I've only had my first jab 29th of...

Hi has anyone read the news about the jab some of us had ,made me bit worried no...

Jody00

•3 years ago

9 Replies

Anaemia and neutropenia with Peg?

Hi! Does anyone have any experience of having severe anaemia, and / or neutropenia, while taking Peg? I’m currently on 90mcg Pwg weekly for post-ET MF,...

Hi! Does anyone have any experience of having severe anaemia, and / or neutrop...

LucyGeering

•3 years ago

4 Replies

Question for those taking PEG Interferon

After taking 135mcg of PEG Interferon since January 2020 (just over a year) my Haematocrit level is still high at 48 (all other counts are now OK - Platelets...

After taking 135mcg of PEG Interferon since January 2020 (just over a year) my H...

Tylerdog1

•3 years ago

2 Replies

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The single dose was even less effective in blood and bone marrow cancer patients, just 13 per cent developing the virus-fighting protein

should we be pushing for an earlier 2nd Dose covid 19 vaccination. Mine was Astro Zeneca.

should we be pushing for an earlier 2nd Dose covid 19 vaccination. Mine was Ast...

catkinspolymer

•3 years ago

12 Replies

Antibodies

Hello! I have ET and I’m on hydroxy and aspirin therapy. I had my first vaccine in January but I have just had an antibody test which was negative....

Hello! I have ET and I’m on hydroxy and aspirin therapy. I had my first vacci...

glassaddict

•3 years ago

7 Replies

Aspirin and Covid

Interesting research shows benefits of Aspirin use and Covid disease severity - good old Aspirin!...

Interesting research shows benefits of Aspirin use and Covid disease severity - ...

Dovme

•3 years ago

3 Replies

Do any of you find you struggle to find words?

I have noticed lately that I often struggle to find or say a word. It's like I can see word but cannot voice it.

I have noticed lately that I often struggle to find or say a word. It's like I c...

netty64

•3 years ago

20 Replies

Stopping Hydroxycarbamide

I have ET JAK2. Diagnosed 2017. I have had various symptoms since taking this medication all of which my Haemo have dismissed. However since last October I...

I have ET JAK2. Diagnosed 2017. I have had various symptoms since taking this me...

Heather270240

•3 years ago

59 Replies

Advice needed please

Hey all, I'm new to this forum and was just wondering if anyone has ever been in the situation where hydroxy has stopped working for them. I was diagnosed...

Hey all, I'm new to this forum and was just wondering if anyone has ever been i...

Assoonas

•3 years ago

5 Replies

Advice

Good evening I'm very new to my understanding of symptoms and possible causes, so I guess I'm looking for a bit of advice. I'm b12 deficient and have been for...

Good evening I'm very new to my understanding of symptoms and possible causes, s...

Sunshine1932

•3 years ago

8 Replies

Oddness

I had a bleed over my eye the day after the covid jab. Had the expected side effects; tired, achey, generally ropey. Then the next day I woke up with a...

I had a bleed over my eye the day after the covid jab. Had the expected side eff...

GinnyWolf

•3 years ago

2 Replies

ET and now Prostate Cancer

I was diagnosed in 2016 with ET Jak2+. I have been on HU and clopidogrel (asprin did not agree with me) and have platelets under steady control. As part of my...

I was diagnosed in 2016 with ET Jak2+. I have been on HU and clopidogrel (asprin...

Stephen399b

•3 years ago

3 Replies

ET......HYDROXY SYMTOMS

Hello, I'm so thankful to have this site to turn to. I've been on HX for over a year after being diagnosed with ET. I've just had my 4 month phone consult...

Hello, I'm so thankful to have this site to turn to. I've been on HX for over a...

Elleuno

•3 years ago

16 Replies

OCC large

My blood work came back with notation of OCC large and the white blood cell count was up. Very worried. Also angry that as I saw ongolgist that day and she...

My blood work came back with notation of OCC large and the white blood cell coun...

sjpjhi

•3 years ago

2 Replies

ET without genetic mutation

Just wondering if you can have ET without any of the genetic mutations?

Lions3

•3 years ago

13 Replies

I’d like to ask Hunter about your Drs in the Orlando area, where I am. You changed Drs recently, I think. Would you share their names?

I have JAK 2 ET, diagnosed last summer when endocrinologist saw my elevated blood numbers -750. I am on Eliquis and baby aspirin. I’ve read all I can and...

I have JAK 2 ET, diagnosed last summer when endocrinologist saw my elevated blo...

TheaterCrazy

•3 years ago

3 Replies

Questions, questions!

Hi, I have ET Jak2 +, probably had it at least 16 years. To be fair, it has never given me any trouble at all, but annoyingly my numbers keep rising. Now...

Hi, I have ET Jak2 +, probably had it at least 16 years. To be fair, it has nev...

Amethist

•3 years ago

13 Replies

Resvetarol

Does any one know a good supplier of Resvetarol in uk . ?Powder or capsules ? Also have you found any benefits Thanks Carolyn

Does any one know a good supplier of Resvetarol in uk . ?Powder or capsules ? Al...

Mostew

•3 years ago

7 Replies

Mornings

Hi does anyone have horrible mornings where everything hurts and it takes awhile to feel better I find drinking water helps along the way but it’s a slow...

Hi does anyone have horrible mornings where everything hurts and it takes awhile...

Windy51

•3 years ago

8 Replies

Update after BMB

It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself...

It's been awhile since my first BMB, but have been recovering & processing the r...

Androg

•3 years ago

21 Replies

Abdominal symptoms?

Hi Everyone, as have only recently been diagnosed with JAK2+ ET & PV, does anyone get abdominal, back & spleen pain also abdominal bloating? I have mentioned...

Hi Everyone, as have only recently been diagnosed with JAK2+ ET & PV, does anyon...

Mustang50

•3 years ago

27 Replies

Hydroxyurea side effects?

I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have Phlebotomy about every 6 weeks to keep my Hematocrit below 45.Platelets around...

I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have...

Ridenez

•3 years ago

12 Replies

Confused

Why does everyone talk with abbreviations I don’t understand anything that anyone says why can’t you all just right the letters

Why does everyone talk with abbreviations I don’t understand anything that anyon...

Windy51

•3 years ago

19 Replies

Chronic unexplained nausea

Hello, Can anyone help? Basically I have been suffering with Chronic Nausea for 5 years, I have had blood tests, stool tests, two endoscopies and seen two...

Hello, Can anyone help? Basically I have been suffering with Chronic Nausea f...

fellingham9_3

•3 years ago

10 Replies

LD and ET

Hi Friends! Do any of you have ET (no fibrosis) and have had a slightly high LD on any bloodtest? I am trying to figure this out. I am diagnosed ET but does...

Hi Friends! Do any of you have ET (no fibrosis) and have had a slightly high LD ...

Johan2021

•3 years ago

12 Replies

ET worries

Hi, My husband is 45 and got diagnosed with ET Jak2 Positive 2 years ago. He's generally feeling fine. With occasional headache and tiredness, but we eat...

Hi, My husband is 45 and got diagnosed with ET Jak2 Positive 2 years ago. He's...

carlagb

•3 years ago

12 Replies

Sarcoma and My Daughter

Afternoon my MPN friends. Well had my three monthly review with my Haematologist last week, and glad to say that my Platelets have come down with the increase...

Afternoon my MPN friends. Well had my three monthly review with my Haematologist...

Superwoman

•3 years ago

37 Replies

ET/PV and going to high altitude

Newly diagnosed with ET and I live at a low elevation. What do drs advise about going above 8000+ elevation to hike and vacation. My love is in the mountains...

Newly diagnosed with ET and I live at a low elevation. What do drs advise about ...

Ccsintx

•3 years ago

12 Replies

Hematology appointment

I finally saw a hematologist yesterday. I have had blood work 3 times since December. All showing my platelets in the 700-730 range. Everything else is normal...

I finally saw a hematologist yesterday. I have had blood work 3 times since Dece...

Tingle20

•3 years ago

3 Replies

JAK2

Hi I've been tested for jak2 yesterday nothing was really said to me about it ive looked myself and its completely freaked me out as it mentions cancer. Can...

Hi I've been tested for jak2 yesterday nothing was really said to me about it iv...

sunblock

•3 years ago

12 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for March 2021

Covid19 vaccine

Anaemia and neutropenia with Peg?

Question for those taking PEG Interferon

The single dose was even less effective in blood and bone marrow cancer patients, just 13 per cent developing the virus-fighting protein

Antibodies

Aspirin and Covid

Do any of you find you struggle to find words?

Stopping Hydroxycarbamide

Advice needed please

Advice

Oddness

ET and now Prostate Cancer

ET......HYDROXY SYMTOMS

OCC large

ET without genetic mutation

I’d like to ask Hunter about your Drs in the Orlando area, where I am. You changed Drs recently, I think. Would you share their names?

Questions, questions!

Resvetarol

Mornings

Update after BMB

Abdominal symptoms?

Hydroxyurea side effects?

Confused

Chronic unexplained nausea

LD and ET

ET worries

Sarcoma and My Daughter

ET/PV and going to high altitude

Hematology appointment

JAK2

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