Chronic unexplained nausea : Hello, Can anyone... - MPN Voice

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Chronic unexplained nausea

fellingham9_3 profile image
10 Replies

Hello,

Can anyone help?

Basically I have been suffering with Chronic Nausea for 5 years, I have had blood tests, stool tests, two endoscopies and seen two different Gastro experts privately, stomach scans, brain scans. I have tried alternative therapies, healers and spoken to experts about stress management (literally everything under the sun)! Plus the money I’ve spent on pills, potions and supplements. GPS can’t help and put me on anti nausea meds that don’t work, anti-depressants they also do not work. I feel this is linked to stress and anxiety but surely if I calm myself down the nausea should go? It doesn’t 🙄

I run my own business and have a young family, it’s like a battle everyday dealing with nausea, I just feel awful and not motivated and focussed, I was once upon a time driven and a hardworking man, I’m now a shadow of that person. This consumes me and my life, I have dark thoughts as I feel this will never go away!

I literally am at my wits end with this, it makes life a misery when at it’s worst and over 5 years of this it really gets me down.

Any advice/help would be so much appreciated

Thanks

Darren

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fellingham9_3
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10 Replies
hunter5582 profile image
hunter5582

Nausea can in fact be a symptom of MPNs. MPNs are at the core inflammatory disorders which most certainly can affect the GI system. This is not to say that the nausea is due to the MPN, but is sounds like you have ruled out most everything else. Assuming you have ruled out food intolerances, IBD/IBS, gallstones, ulcers and GERD - it may be that the MPN is the only thing left.

Suggest talking to a MPN specialist (not just a regular hematologist) about this issue. Perhaps also consider consulting with an Integrative / Functional medicine doc as well.

Hope you find relief soon.

fellingham9_3 profile image
fellingham9_3 in reply to hunter5582

Thank you so much for your response. Sorry I am a little naive, what is an MPN Specialist? Do you know where I find them or should I speak to my GP?

I am currently talking to a nutritionalist and the latest is a low fodmap diet 🙄. Four weeks in and very little change, in fact the last few days the nausea is at the highest level of intensity! (I am never physically sick btw).

Pretty much most things seem to have been ruled out, as said I am speaking to a nutritionalist. I have been on omeprazole and similar which don’t help, treated twice for H pylori (tested since and no sign of this). I’ve tried many alternative routes as well racking up ££££

Also what is an integrative / Functional medicine doctor?

The nausea was bought on initially by worry and anxious thoughts but don’t get why it would stick around and become chronic?

tallac profile image
tallac

I thought I would mention "Sea Bands" in case you have not tried them. I had terrible nausea for a year after getting over CDIFF. They were the only things that helped. You can get them on amazon Hope you feel better soon

fellingham9_3 profile image
fellingham9_3 in reply to tallac

Thank you for messaging. I have tried sea bands, they didn’t work unfortunately

Mazcd profile image
MazcdPartnerMPNVoice

Hello Darren, I am sorry to hear that you have this awful nausea. Have you been diagnosed with a MPN, as you don't mention having a MPN. Best wishes, Maz

fellingham9_3 profile image
fellingham9_3 in reply to Mazcd

Hi Maz,

Thank you for replying.

Yes I didn’t realise it was specifically MPN as I’ve had loads of blood tests and they are always normal. Is there another area I should post this?

Nausea most days for five years 😞

Mazcd profile image
MazcdPartnerMPNVoice in reply to fellingham9_3

Hi Darren

I am sorry that we can't help you on this forum, as you can see it is for people who have a MPN. I am not sure if there are any communities on HealthUnlocked to help people who are having the same problem as you, you can do a search. Perhaps the nutritionist can help you with further information or support. Best wishes, Maz

Eadaoin profile image
Eadaoin in reply to Mazcd

You might also look into following a course on Mindfulness as you mentioned being anxious. I can confirm that it’s a great help.

fellingham9_3 profile image
fellingham9_3 in reply to Eadaoin

I think most probably this is caused by stress, anxiety and worry so I need to break the cycle. Thanks for your reply and I’m going to give this a go. I am also going to try acupuncture

fellingham9_3 profile image
fellingham9_3

Thank you Maz

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