Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for March 2021

Something to raise the spirits

This rather large beauty was destined to be a Christmas present, which got cancelled along with the rest of Christmas. It made its glorious debut this...

This rather large beauty was destined to be a Christmas present, which got cance...

•3 years ago

Feeling stressed

Had bloodwork done on Monday. Results show platelet level at 609. Everything else was within range. Saw my GP on Wednesday for repeat blood work. Platelet...

Had bloodwork done on Monday. Results show platelet level at 609. Everything els...

•3 years ago

Does anyone on this website live in the Bournemouth area?

I was just wondering if anyone on here lives in the Bournemouth area and when we are able to have contact with others, whether anyone would like to meet up and...

I was just wondering if anyone on here lives in the Bournemouth area and when we...

•3 years ago

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Covid jabs and bicycling :)

I have finally got a jab-date but the place is far from my home and no busses seem to fit into my "cheme" so ::: Does anybody know if it is ok to bicycle to...

I have finally got a jab-date but the place is far from my home and no busses se...

•3 years ago

Dark patches

Hello its not that lm preoccupied with my looks now 70 everything on my body is moving south. However l have dark patches on my cheeks myasma l think its...

Hello its not that lm preoccupied with my looks now 70 everything on my body is ...

•3 years ago

Has anyone used the Keto capsules for weight loss. I’m ET JAK2 positive and wondered if anyone else has tried this.

I have a lot of pain in my joints and limbs and hope weight loss will help this

I have a lot of pain in my joints and limbs and hope weight loss will help this

•3 years ago

Inflammation

Hello l take hydroxy and warfrin and have awful painful inflammation in my back and legs, all support and information greatly welcomed.

Hello l take hydroxy and warfrin and have awful painful inflammation in my back...

•3 years ago

Debilitating Nausea

I'm at week 4 of my hydrea treatment and just this week developed a dreadful nausea. I have meds (apo-metoclorpramide 10mg) but they seem to make it worse. My...

I'm at week 4 of my hydrea treatment and just this week developed a dreadful nau...

•3 years ago

Interferon-alpha for treating polycythemia vera yields improved myelofibrosis-free and overall survival

« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large...

« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythe...

•3 years ago

Antibodies after Covid-19 Vaccination?

Families of the most vulnerable need vaccines now Sean O’Neill Wednesday March 03 2021,., The Times I was worried after reading this article. Four weeks after...

Families of the most vulnerable need vaccines now Sean O’Neill Wednesday March 0...

•3 years ago

MPN Advocacy & Education International - Conversation with MPN Specialists - PV

Interesting webinar that just occurred for those with PV. https://www.youtube.com/watch?v=2jt1L0a1xtQ&feature=youtu.be

Interesting webinar that just occurred for those with PV. https://www.youtube.co...

•3 years ago

MF, platelet count and feeling anxious

I have been on Ruxolitinib for post ET MF since last August. It's been really effective at shrinking my spleen and reducing my WBC count. Hb varies and I have...

I have been on Ruxolitinib for post ET MF since last August. It's been really ef...

•3 years ago

Thrombopoietin is required for full phenotype expression in a JAK2V617F transgenic mouse model of polycythemia vera

« Elimination of MPL expression completely abrogated the polycythemia vera phenotype in this JAK2V617F transgenic mouse model, which could only be partially...

« Elimination of MPL expression completely abrogated the polycythemia vera pheno...

•3 years ago

Painful hands and feet

Hi Guys, I was recently diagnosed with JAK2+ ET and platelet count 2 months ago was 511. I am 43 years old. Unfortunately living in Penang, Malaysia means that...

Hi Guys, I was recently diagnosed with JAK2+ ET and platelet count 2 months ago ...

•3 years ago

Another Dickensian Couple

Finally got 2 more knitted to add to the Dickensian Christmas scene. They will each have books of Carols made of felt and the boys will be holding a lantern. I...

Finally got 2 more knitted to add to the Dickensian Christmas scene. They will e...

•3 years ago

Platelets

Platelet count hi I'm on hydroxycarbamide and if had covid jab ,had my latest blood count and platelets have gone down quite a bit been told to take 2 tablets...

Platelet count hi I'm on hydroxycarbamide and if had covid jab ,had my latest bl...

•3 years ago

Symptoms of jak2 ET

Hi everyone, I was diagnosed 3 years ago and have suffered with frustration of little or no information or support from my haemotologist who I use to see every...

Hi everyone, I was diagnosed 3 years ago and have suffered with frustration of l...

•3 years ago

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