Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for January 2021

Covid19 vaccination

Hi I had phone call from reception from doctors today asking me a few questions if I had covid19 and if am on blood thinners, I said well no not had covid19...

Hi I had phone call from reception from doctors today asking me a few questions ...

Jody00

•3 years ago

3 Replies

Has anyone had the vaccine at Guys hospital

Hello Hope everyone is well I have my vaccine booked for Friday at London Bridge vaccination centre, invited by Guys just wondered if anyone else had theirs...

Hello Hope everyone is well I have my vaccine booked for Friday at London Bridge...

Melaniem59

•3 years ago

7 Replies

Covid vaccine appointment

Really happy to have just got my first vaccine appointment for Friday. I have post ET MF, on Ruxolitinib and wondering what to expect in terms of side effects....

Really happy to have just got my first vaccine appointment for Friday. I have po...

Otterfield

•3 years ago

10 Replies

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Received Covid19vaccine.

Hello, just to share that I received my first Covid19 vaccine yesterday. My GP organized and Army is administered Astra Zenica. Didn't get second appointment...

Hello, just to share that I received my first Covid19 vaccine yesterday. My GP o...

light

•3 years ago

10 Replies

Lowering platelets

Hi had anyone tried lowering platelets naturally? Like with certain foods or diets?

Hi had anyone tried lowering platelets naturally? Like with certain foods or die...

faith949

•3 years ago

19 Replies

COVID vaccine

I’m going for my first vaccine tomorrow. Has anyone had it already and did you get any after effects?

I’m going for my first vaccine tomorrow. Has anyone had it already and did you g...

hall2

•3 years ago

22 Replies

Vaccine side effects versus disease vulnerability?

Wondering if there is a correlation between side effects and potential disease vulnerability? ie the greater the side effects the more at risk you would have...

Wondering if there is a correlation between side effects and potential disease v...

Paul123456

•3 years ago

3 Replies

Extremely vulnerable

I wasdiagnosed with ET and JAK mutation about 3 months ago and take hydroxycarbamide and clopidogrel. My platelets were in the 900 s then 6 weeks later in the...

I wasdiagnosed with ET and JAK mutation about 3 months ago and take hydroxycarba...

Hidden

•3 years ago

8 Replies

Need a good MPN specialist in California.

Hi I’m 37, I am currently dealing with elevated platelets they are in the millions and still no doctor has diagnosed me with anything. One doctor even said...

Hi I’m 37, I am currently dealing with elevated platelets they are in the millio...

faith949

•3 years ago

15 Replies

Interferon

My hematologist decided to try interferon. Starting it soon kind of scared cause I heard it causes depression and anxiety, also flu like symptoms. Anyone else...

My hematologist decided to try interferon. Starting it soon kind of scared cause...

faith949

•3 years ago

6 Replies

Interferon muscle cramps

I am in the process of switching from HU 18 pills per week to interferon. Taking both at present. I had my second injection yesterday and no symptoms no flu...

I am in the process of switching from HU 18 pills per week to interferon. Taking...

Dovme

•3 years ago

7 Replies

Symptoms and Progression

My husband was diagnosed with Jak2+ ET in 2018. He was 52. He was hospitalized with purple toe syndrome and blockage of marjor artery in his leg. He had...

My husband was diagnosed with Jak2+ ET in 2018. He was 52. He was hospitalized w...

yoshimoto

•3 years ago

10 Replies

New JAK2 diagnosis

Hello everyone, I have just just been diagnosed with JAK2 after bloodtests showed a high platelet count ( over 1000). My other counts were elevated but not...

Hello everyone, I have just just been diagnosed with JAK2 after bloodtests showe...

Androg

•3 years ago

9 Replies

Story on the BBC about MPN mis diagnosis

Hi All, Has anyone seen the story on the BBC about the lady who was initially mis-diagnosed with a MPN? https://www.bbc.co.uk/news/uk-55767782 Mark

Hi All, Has anyone seen the story on the BBC about the lady who was initially m...

MarkD6701

•3 years ago

45 Replies

Blood pressure low = fainting

My blood pressure is very low and I keep fainting I’m unsure what I can do about this as I don’t want to keep passing out but I can’t seem to control the...

My blood pressure is very low and I keep fainting I’m unsure what I can do about...

Sallylouisexo

•3 years ago

12 Replies

Let’s help one another

Hi, I wrote this poem already in another thread but wanted to share it with you all in the hope it might bring some peace, cheer and love back to this forum....

Hi, I wrote this poem already in another thread but wanted to share it with you ...

Aime

•3 years ago

16 Replies

Dental implant wit ET

Hi has anyone with ET had dental treatment ie tooth implant when on aspirin and hydroxy . Is ok please Thanks

Hi has anyone with ET had dental treatment ie tooth implant when on aspirin an...

Jane-r

•3 years ago

10 Replies

It’s not just IBS!!

I think I have gastroparesis. My symptoms line up but the doctors just keep shoving me away with IBS. How can I get the doctors to listen to me? This is pure...

I think I have gastroparesis. My symptoms line up but the doctors just keep shov...

Sallylouisexo

•3 years ago

7 Replies

Do mpn patients who receive vaccine develop antibodies the same as other people do?

Although I know people who have an MPN can receive the vaccine- my question is whether MPN patients are similar to other people after they receive the vaccine...

Although I know people who have an MPN can receive the vaccine- my question is ...

jeanr

•3 years ago

3 Replies

How do I find a doctor for a second opinion

I was recently diagnosed with ET. While browsing this site I found a place where people recommended doctors they had found to be good. I live in the USA. Now I...

I was recently diagnosed with ET. While browsing this site I found a place where...

Kekoa

•3 years ago

6 Replies

Sorry, but I Cannot Stay

Hi everyone I hate to write this post but for my own sanity I have made the decision to leave the site. I have made such good friends here who have shown me...

Hi everyone I hate to write this post but for my own sanity I have made the deci...

jillydabrat

•3 years ago

83 Replies

Interferon Injection before Covid Vaccine Q;

I am booked for my first Covid vaccine next Saturday. I am due my interferon injection on Wednesday. Is it ok to have the interferon injection just before the...

I am booked for my first Covid vaccine next Saturday. I am due my interferon inj...

Threelions

•3 years ago

9 Replies

On hydroxycarbmide

Hi been on this medication for 4 years now and I’m finding with time I seem to have more health problems I’m jak 2 pos ET but I’m told the my low sodium is not...

Hi been on this medication for 4 years now and I’m finding with time I seem to h...

Holly2021

•3 years ago

10 Replies

Mild platelet elevation

Hi, I have been stuck in limbo with mildly raised platelets since March 2020. Started at 420, then 430, 440 and now have been 450 since October 2020. My gp...

Hi, I have been stuck in limbo with mildly raised platelets since March 2020. S...

Scientist47

•3 years ago

21 Replies

Shingles and essential thrombocythemia

Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X

Has anyone experienced shingles while on Pegasys interferon for essential thromb...

BeckyG88

•3 years ago

6 Replies

Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera

« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and...

« Interferon-α (IFN-α)–based therapies can induce sustained hematologic response...

Manouche

•3 years ago

1 Reply

Free Vitamin D supplement.

After seeing posts very recently about no sign of promised Vit.D , just letting you know I received mine through the post yesterday. Everything comes to those...

After seeing posts very recently about no sign of promised Vit.D , just letting ...

azaelea

•3 years ago

10 Replies

Feeling a bit rough after the vaccine

Hi All, I had the vaccine yesterday and everything went well. The only downside is that I felt like I'd got a bad cold last night. Anyone else with similar...

Hi All, I had the vaccine yesterday and everything went well. The only downsid...

MarkD6701

•3 years ago

23 Replies

Very happy/unhappy!

Hello my MPN brothers and sisters, Today I received information/invitation from NHS for Covid19 vaccine. I went and registered myself on the link they provided...

Hello my MPN brothers and sisters, Today I received information/invitation from ...

light

•3 years ago

15 Replies

Starting hydroxyurea and scared

Hi everyone, My platelets have risen from 530 to 728 in the last 12 months and heme called and told me I should be on 500mg Hydroxurea twice per day and start...

Hi everyone, My platelets have risen from 530 to 728 in the last 12 months and h...

Olmstmg

•3 years ago

34 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for January 2021

Covid19 vaccination

Has anyone had the vaccine at Guys hospital

Covid vaccine appointment

Received Covid19vaccine.

Lowering platelets

COVID vaccine

Vaccine side effects versus disease vulnerability?

Extremely vulnerable

Need a good MPN specialist in California.

Interferon

Interferon muscle cramps

Symptoms and Progression

New JAK2 diagnosis

Story on the BBC about MPN mis diagnosis

Blood pressure low = fainting

Let’s help one another

Dental implant wit ET

It’s not just IBS!!

Do mpn patients who receive vaccine develop antibodies the same as other people do?

How do I find a doctor for a second opinion

Sorry, but I Cannot Stay

Interferon Injection before Covid Vaccine Q;

On hydroxycarbmide

Mild platelet elevation

Shingles and essential thrombocythemia

Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera

Free Vitamin D supplement.

Feeling a bit rough after the vaccine

Very happy/unhappy!

Starting hydroxyurea and scared

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