Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for January 2021

Covid vaccine

is anyone getting vaccine with polycythanemia and is it safe to have

is anyone getting vaccine with polycythanemia and is it safe to have

•3 years ago

Blood test

I’m at the hospital waiting to see doctor about my blood test it’s been three months my platelets were on 470 last time so hopefully today it is good and I can...

I’m at the hospital waiting to see doctor about my blood test it’s been three mo...

•3 years ago

Itching (pruritus) with ET?

Happy New Year! New here - recently diagnosed w suspected ET (platelets 740 - 980 over past three years). Found out am jak2 v617f positive - did a bone marrow...

Happy New Year! New here - recently diagnosed w suspected ET (platelets 740 - 98...

•3 years ago

Want to take advantage of all our features? Just log in!

or

Venesection and Covid 19 Vaccine

I have PV Jak2 positive. Every three or four months I have a venesection to keep my HCT value low. Otherwise doing OK on medication. Not really understanding...

I have PV Jak2 positive. Every three or four months I have a venesection to kee...

•3 years ago

Headache Remedy

Does anyone know if it’s ok to take any other headache medicine alongside 81mg of aspirin and jakafi 20 mg twice daily? I’m newly diagnosed with myelofibrosis...

Does anyone know if it’s ok to take any other headache medicine alongside 81mg o...

•3 years ago

The touch of covid

I feel that I need to talk to someone and I know your always here for everyone My 98 year old mum fell and broke her hip and I was told she might not survive...

I feel that I need to talk to someone and I know your always here for everyone ...

•3 years ago

Delaying the second dose of COVID vaccine

« We know that this "prime-boost" approach tends to work BETTER with a longer interval. Once the immune system is primed, the memory cells don't go away; and,...

« We know that this "prime-boost" approach tends to work BETTER with a longer in...

•3 years ago

Exercise and Prolonged Pain

I have had ET for some years now and am on aspirin. I have noticed more recently that if I exercise, even lightly, I ache for days afterwards, to the point I...

I have had ET for some years now and am on aspirin. I have noticed more recently...

•3 years ago

Worrying misconceptions.

Upon reading some replies to recent posts on the forum, i'm concerned that some people think that once they have had the 2nd shot of the recently approved...

Upon reading some replies to recent posts on the forum, i'm concerned that some ...

•3 years ago

Be the first to reply

Hopes dashed on first day of New Year

It was on the 6.30 news that those people who have had the first vaccination for Coronavirus and are expecting their second shots in 3 weeks will now have to...

It was on the 6.30 news that those people who have had the first vaccination for...

•3 years ago

Eyesight disturbances?

I have heard that ET can involve eyesight disturbances. Bought new glasses from opticians following eye test and go back tomorrow to have another test as...

I have heard that ET can involve eyesight disturbances. Bought new glasses from ...

•3 years ago

Happy New Year

To everyone and good health and early, early letter inviting us for a vaccine appointment. For me, I pushed my ET diaognosis to the back of my mind and just...

To everyone and good health and early, early letter inviting us for a vaccine ap...

•3 years ago

Oxford Vaccination

Oxford vaccination ? live ,I have just heard an expert speak on BBC news this morning ,stating the Oxford virus is live. I wonder if GP surgeries and...

Oxford vaccination ? live ,I have just heard an expert speak on BBC news this mo...

•3 years ago

COVID and hydroxycarbamide

Has anyone had COVID whose is taking hydroxycarbamide.

Has anyone had COVID whose is taking hydroxycarbamide.

•3 years ago

1
...
4
5