How do I find a doctor for a second opinion

[Kekoa]

I was recently diagnosed with ET. While browsing this site I found a place where people recommended doctors they had found to be good. I live in the USA. Now I can't find the link. Can someone direct me to the link?

Thanks in advance.

[Hidden]

Who diagnosed your ET? Have you had the genetic tests? What makes you doubt the diagnosis?

[hunter5582]

Here is the linkmpnforum.com/list-hem./

Consultation with a MPN-expert doc is really important. Most hematologists have little/no experience treating MPNs due to their rarity. Expert consultation will help to ensure optimal care. I use two hematologists. I have a local hematologist who is a wonderful doc, but not a MPN expert (by his own definition). He handles my ongoing care. I also have a MPN Specialist who is based out of the Johns Hopkins MPN Clinic. He consults with me and my local hematologist about my care plan. This arrangement works great.

Please do whatever it takes to ensure you have a MPN-expert doc on your care team.

[Kekoa in reply to hunter5582]

Thank you! That is exactly what I'm trying to do.

[Kekoa in reply to hunter5582]

I want to thank you for your recommendation of finding an mpn specialist. I traveled out of state to get a second opinion with a specialist. I had a bone marrow biopsy which showed that I have mds/mpn-rs t. A little more complex than the ET I was originally diagnosed with. I am so glad I made the choice to get a scum opinion from a specialist.

[Kekoa in reply to Kekoa]

Second opinion. Sorry.

[hunter5582 in reply to Kekoa]

I am glad you were able to get a proper diagnosis. That will lead to a proper treatment plan.