Covid vaccine appointment

[Otterfield]

Really happy to have just got my first vaccine appointment for Friday. I have post ET MF, on Ruxolitinib and wondering what to expect in terms of side effects. Anyone else with MF on Rux had it? Thanks.

[mhos61]

Pleased to hear that Jennie, a step in the right direction!

Good luck for Friday. X

[socrates_8]

Hey Jennie...

Happy to hear that you are breaking trail for us here... As you may recall, I too am Post ET / MF and will be interested to learn how you fair with side-effects (after-effects etc?)

Apparently, most complain of some flu-like symptoms and some arm soreness after the jab, and that's about all I've heard so far...

However, you'll be the first one that I know who's on Ruxolitinib having the Pfizer vacc's...

So I'll shall be listening intently for your reports ...

It has long been my belief that only the Pfizer & Moderna vacc's would be most suitable for all of us w/ compromised immune systems, as they are not proteins derived by viral vectors, (they're NOT LIVE), in other words...

Keep us Posted please Jennie...

Very best wishes

Steve

[Barbara140]

Hi, I have post ET MF. I had the Pfizer vaccine on 13 January, no side effects whatsoever.I participate in the ONS Covid study so will be interested to see whether my next blood test under the study shows antibodies. (This will be a few weeks away as the results take a while to come through.)

Forgot to add that I'm on Ruxolitinib 15mg twice daily.

[skipperL]

I posted several weeks ago that I have MF and am on Ruxolitinib - and that I have had both Pfizer jabs without any side effects.SkipperL

[Dovme]

Great news! Wishing you well

[tracey13]

My husband is post PV MF . He had his first vaccine on Monday he's on asprin and ruxolitanib.He had his injection at 4.45pm.

Woke up the next day with headaches and feeling exhausted .

The day after that he was absolutely fine no problems at all.

TRACEY

[tracey13 in reply to tracey13]

I forgot to mention my husband had the Oxford injection.

Tracey

[Cja1956]

Glad you were able to get your first appointment. I’ve heard some people just get a sore arm the next day. It’s the second one that seems to be more worrisome, although I don’t know anyone personally that have had that one yet. Good luck and let us know how it goes.

[billybrock]

Hi Otterfield,I have MF and have been on Ruxolitinib for about 12 months. I had my second Covid vaccine jab on 9th January. To date I have not had any side effects from either.

You should be fine. Stay safe.

[Inca in reply to billybrock]

Good to read ,I am 2yrs Rux for PV ,have my first vac tomorrow,quite worried to be honest,tho my G P assures me it is safe.I am in France ,don't know which vaccine it is .Hope all goes well for you now.