Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for September 2017

Annoying platlets

My last two visits to the Haem have seen my platlets dropping slightly from a high of just over a 1000 down to 863 at my last visit but yesterday and to my...

My last two visits to the Haem have seen my platlets dropping slightly from a hi...

•7 years ago

Great news

Saw my consultant today and she said "platelets are under control" 375. She was going to do venesection but h.b down to 14.4 and hematocrit now down to 44...

Saw my consultant today and she said "platelets are under control" 375. She was ...

•7 years ago

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Joined in error sorry

•7 years ago

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ET in Australia

Hi, diagnosed last week with ET. I'm 47 and work full time. Still undergoing some testing to determine treatment but as I've had no clotting issues fingers...

Hi, diagnosed last week with ET. I'm 47 and work full time. Still undergoing som...

•7 years ago

Edinburgh forum

Hi Are many of you going to Edinburgh next week? Very nervous newlyish diagnosed here! I'm worrying that i'll end up in tears listening to others stories...

Hi Are many of you going to Edinburgh next week? Very nervous newlyish diagnos...

•7 years ago

GNR

1 year ago I done Great North Run for MPN Was a fantastic experience But my I'm so glad I didn't agree to it this year Feeling so tired /virus & cold , Good...

1 year ago I done Great North Run for MPN Was a fantastic experience But my I'm...

•7 years ago

Hydrea and Chest Pain

I've had Hydrea for ET for about twelve years and for the past seven or so have experienced chest pain for which no cause has been found. Is it known whether...

I've had Hydrea for ET for about twelve years and for the past seven or so have ...

AnneMargaretMary

•7 years ago

Affect of viruses and infection on platelets.

I have been researching different influences viruses etc can have on platelets and have found some very lengthy technical data on them. I wanted to know more...

I have been researching different influences viruses etc can have on platelets a...

•7 years ago

Long overdue update on PV JAK-

Hi Everyone, I haven't posted for a while as a lot has been going on but thought it would be a good time now. I was diagnosed with PV JAK 2 - back in August...

Hi Everyone, I haven't posted for a while as a lot has been going on but thought...

•7 years ago

MPN meeting

Hi all, it's a while since I have written a post but I do read all yours. I am still in early stage MF but I'm waiting for an appointment at St James in Leeds...

Hi all, it's a while since I have written a post but I do read all yours. I am s...

•7 years ago

Natural medicine

Has anyone had success using natural medicines such as garlic, cinnamon etc to reduce hb or platelets? Recently diagnosed PV and investigating all avenues.

Has anyone had success using natural medicines such as garlic, cinnamon etc to r...

•7 years ago

Pins and needles and numb hands and feet

Hi there. Has anyone with ET else experienced these whilst on inteferon? When my dosage increased to 135mcg a week and then 180mcg I started getting this at...

Hi there. Has anyone with ET else experienced these whilst on inteferon? When my...

•7 years ago

Does the TV only add 10lbs?

So Organ Donation Awareness week, I had the pleasure of meeting Catherine Jones, the Health Correspondent from Channel 5 News on Monday.....Here's what we got...

So Organ Donation Awareness week, I had the pleasure of meeting Catherine Jones,...

•7 years ago

I'm so fed up with bruises .They last so much longer and are quite painful .

Do you have this awful problem ? I have been scratched across my face by my puppy dog .Its taking weeks to heal and it's been so painful .I get knocked about...

Do you have this awful problem ? I have been scratched across my face by my pup...

•7 years ago

Cumbria here, wanting to see a specialist.

Hi I have ET and have been thinkkng about being referred to a specialist. My haematologist is ok, but we only have a local distric general, so advice is very...

Hi I have ET and have been thinkkng about being referred to a specialist. My hae...

•7 years ago

vitamn B12 timed release

hi does anyone take these supplements? i have ET and am on aspirin daily. I'm hoping they might help with the fatigue. Thanks Tara

hi does anyone take these supplements? i have ET and am on aspirin daily. I'm h...

•7 years ago

Scuba & MF while on Jakafi?

Hey guys... :) Here's an interesting question for some of you to ponder... I have decided that life might be even shorter than I had originally perceived ,...

Hey guys... :) Here's an interesting question for some of you to ponder... I ha...

•7 years ago

Home-life insurance first time buyer

Hello! I am hoping to get life and home insurance as i am buying a house but when I was with our mortgage broker, she put my details through the comparison...

Hello! I am hoping to get life and home insurance as i am buying a house but whe...

•7 years ago

Ruxalitinib

Hubby has now been on ruxalitinib 20mg a day for a month 1st week he thought he was feeling a little easier from terrible night sweats and awful itching. Now...

Hubby has now been on ruxalitinib 20mg a day for a month 1st week he thought he ...

•7 years ago

ET - JAK 2 negative

Does anyone know the difference between JAK positive and JAK Negative. Had second opinion from another haemo. Last week and was surprised to learn I have JAK...

Does anyone know the difference between JAK positive and JAK Negative. Had seco...

•7 years ago

Mango leaf tea

Hi I'm new here, I've just started using mango leaf tea to mange my blood glucose, has anyone ever tried this and what has been your experience. Thanks

Hi I'm new here, I've just started using mango leaf tea to mange my blood glucos...

•7 years ago

High platelets count

Hi does anyone can tell me if is good to take Vit D whislt i am taking a Hydroxycarbamide chemodrugs fir my high platelets count.thank u.

Hi does anyone can tell me if is good to take Vit D whislt i am taking a Hydroxy...

•7 years ago

HCT monitor

I recently purchased a monitor on eBay which measures HCT as well as blood sugar levels. Tested it on my last hospital visit against the lab test they took....

I recently purchased a monitor on eBay which measures HCT as well as blood sugar...

•7 years ago

New Diagnosis

I was just diagnosed with this on Tuesday. My doctor told me to take a baby aspirin and quit smoking. That's all he said before he showed me to the door,...

I was just diagnosed with this on Tuesday. My doctor told me to take a baby aspi...

Krazy-Kat-Mama1960

•7 years ago

Very concerned and confused

I received my results from a regular blood test. My WBC, RBC, Hemoglobin and Hematocrit are all elevated. As well as my MCV and RDW. I'm not sure what all this...

I received my results from a regular blood test. My WBC, RBC, Hemoglobin and Hem...

Krazy-Kat-Mama1960

•7 years ago

Can I share signs & symptoms please?

I'm wondering about symptoms may I share plus I don't have high platelets, not right now but have in the past. Elevated rbc, Hb, hemocrit right now. No kidney...

I'm wondering about symptoms may I share plus I don't have high platelets, not r...

•7 years ago

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