I haven't posted for a while as a lot has been going on but thought it would be a good time now.
I was diagnosed with PV JAK 2 - back in August 2016 and have been receiving regular vensections but haven't really noticed much of an improvement and I have recently had to stop working.A few months back my haematologist said that he did not feel my all my symptoms were down to this condition so asked my doctor to refer me for further checks.
My current symptoms are Chronic Fatigue,tingling in legs,muscle spasms,ear ringing to name just a few.
I have so far been referred to a sleep clinic( no issues)
Am attending a follow up appointment on Monday with an Endocrinologist, and have also been referred to a Neurologist.
My doctor said that as I had been suffering for 6 months now with the symptoms that there are a number of places I will now be referred to too ensure there is nothing else going on apart from PV.
I really feel something else is going on as my haematologist is so sure I should not be suffering like this with PV so wanted to share this in case anyone else thinks the above checks might help
Sorry for any typos