So Organ Donation Awareness week, I had the pleasure of meeting Catherine Jones, the Health Correspondent from Channel 5 News on Monday.....Here's what we got up to;
Thought this was quite relevant seeing as my liver disease and need for a transplant are interlinked with my PV!
P.S. I have another endoscopy on the 26th Sept....anyone want to take my place?
x
Great piece Michelle, tweeted. X
Michelle, that's a great clip, thank you for sharing it with us all, let's hope this campaign makes a huge difference. Maz x
Hi Chelle, really good article, thank you for sharing. I was on the doner register but when I was diagnosed with my ET, I was told that I could not donate due to my condition and the toxicity of the drugs I now take, which was really sad, but I still tell people to go on the register as it could save someone life once you are gone, from cystic fibrosis suffers, kidneys, liver, heart eyes and many more, it is a wonderful thing to do.
So once again thank you
And no I would not like to take your place for the endoscopy, had one a few years ago now, but lucky for me I was sedated, which I hope they will do for you.
Good luck
Jean x
Jean, this will be my 4th of the year and my 25th in the last 4 years so am well and truly versed in the procedure. I have bleeding in my stomach so it's a Maintenence procedure.
With regard to the organ donor list, you can still be in it, I've never removed myself and shan't either, I spoke to the donor teams and they have said I have a strong heart and my eyes are good, regardless if they can use anything else like lungs or kidneys....they check it all first anyway. With medication and technology coming on leaps and bounds it's better to be safe than sorry. If my liver transplant fails in the early stages and they can open me back up and use that liver for someone else, that's what I want. If I'm not in the register they won't use it....
I want to give back to the NHS as much as I can. They have saved me more times than I can remember.
Hope your having a good evening x
Oh that's good to know Chelle, thanks for that.
Just chilling out this evening, as have a busy weekend. I have Hospital next week and will ask them again, as I would like to do my bit.
Jean x
Thanks Chelle for sharing. Great piece. Let's hope it and the campaign make a difference. Does having an MPN automatically disbar you from becoming a donor? Even if you're not on drugs? Hadn't thought of that before.
And thanks for the offer of an endoscopy but really, no thanks!
Nope your not disbarred your still welcome to be in the list. When they take your organs they note if there is anything wrong with you and go from there. There are so many people that fie without knowing they have cancer, or some underlying disease, but that's the transplant teams job, to decide if something is or isn't suitable.
Thank you x
Hope your transplant is soon Chelle,good luck with endoscopy,Really hope all goes well for you A S A P,thinking of you.,e-hugs and very best wishes,Sally xx
Hi Chelle , wishing you all the best for your endoscopy ! Thanks for posting details of the campaign , is there a age limit to go on organs donation ? I joined it many years ago now ,want to make sure im still on it . best wishes Holly x
I don't know if there is an age limit, I don't think so....maybe a question I should ask. x
Does fatigue come on gradually
Does the nausea with HU diminish?
Hello to everyone. First timer here. Only two weeks into this and on Aspirin and Hydroxycarbamide.
does PV change life expectancy?
