Hi, hoping this is the right place to put this but I am after people's experience/views due to the limited information I can find online! I have recently been diagnosed with ET off a bone marrow biopsy as negative to all the gene markers and max platelets so far of 550 (so already feel in the minority given most people seem to be far higher at diagnosis!). I had complications at the end of my pregnancy which caused doctors to look closer at my bloods but given I am only just 30 I'm now terrified of the long term implications of this disease and life expectancy.
Does anyone have any information on this or are there people out there on this forum who have been living with this disease for 30+yrs without complications?!