Hi Everyone, I was diagnosed with JAK2 ET about three years ago.... I also am positive for Chek2 gene. My platelets range from 970-1090 and I've been taking aspirin 81mg x2 pee day. I met someone recently that was shocked that I am not on one of the medications but my hematologist says I should just remain on the aspirin?
On a spectate note.... i have strong family cases of Breast& colon cancer. Since having genetic testing and positive Chek2 I am being strongly encouraged to have a prophylactic double mastectomy. I'm concerned about my JAK2... my hematologist says he'll have my on hydrea for 2-4 weeks to lower my platelets.... has anyone else had this experience? I live in Miami so we do have a lot of good doctors here but I want to be sure I'm proceeding appropriately.
Thank you, Cindy