Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for November 2016

Hematocrit levels

Hi all. I hope everyone is feeling good! I had my hospital appointment last week and was told my blood levels are great. I received my follow up letter...

Hi all. I hope everyone is feeling good! I had my hospital appointment last wee...

•7 years ago

Good morning my lovely MPN Family

I've Missed you all x I hope your all keeping well & fit & healthy as possible ❤️ All is good here , keeping very busy with Baby Carter ( only thing is not...

I've Missed you all x I hope your all keeping well & fit & healthy as possible...

•7 years ago

Criticial Illness - Insurers: Aviva (claim denied)

Hello - I'm new! Does anyone have the ABI article which cites ET and PV are classified as cancers and should be covered by CI cover? I've read a lot of posts...

Hello - I'm new! Does anyone have the ABI article which cites ET and PV are cla...

•7 years ago

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Long term travelling with MPN

Hi all, My Fioncie and I are interested in an extended period of travel for our honeymoon. Something in the region of 6 - 12 months. There are a few financial...

Hi all, My Fioncie and I are interested in an extended period of travel for our ...

•7 years ago

Knee op

Hi Twinkly How are you after your knee op? I am 3 weeks post partial knee replacement and having my good and bad days as expected. I hope you are doing well....

Hi Twinkly How are you after your knee op? I am 3 weeks post partial knee replac...

•7 years ago

bestdoctors.com

I am classed as triple neg, I read up on it and feel this is correct, but I still don't feel I have a definitive diagnosis. It has been slightly better since...

I am classed as triple neg, I read up on it and feel this is correct, but I sti...

•7 years ago

Eczema & MPN's & Hydroxycarbamide

Occasionally, I get very dry skin in between my fingers which can lead to tiny little cuts and these are very irritating at times. I was prescribed epiderm...

Occasionally, I get very dry skin in between my fingers which can lead to tiny l...

•7 years ago

Claiming critical illness

Hi. My insurance company said I can put in a claim for critical illness for et. However the haemotologist is taking forever with the forms. Any idea how long...

Hi. My insurance company said I can put in a claim for critical illness for et. ...

•7 years ago

Polycythemia jak2 negative

Hi all After we last chatted I did some research as I was not very happy with the lack of advice my local consultant had been giving me and the fact that he...

Hi all After we last chatted I did some research as I was not very happy with th...

•7 years ago

Secondary polysithemia

I have had this for about 4 years. Hematologist removes blood when needed. My breathing is very compromised when blood gets thick. Been told my copd causes...

I have had this for about 4 years. Hematologist removes blood when needed. My ...

•7 years ago

Pilot and puppy have 40 winks.

Hi everyone, Thought I'd post this photo to make you all smile! ( sounds as though one or two of you poor souls need cheering up a bit) This is a photo of our...

Hi everyone, Thought I'd post this photo to make you all smile! ( sounds as thou...

Volunteer•7 years ago

Rubbish day!

I feel so very tired, I'm struggling to stay awake. I think I need to ask my boss if I can take a break It's very cold so I walk fast and march right down the...

I feel so very tired, I'm struggling to stay awake. I think I need to ask my bos...

•7 years ago

My platelets are high, but I'm not on medication

I've noticed a few members on here with platelets lower than mine, who have been prescribed medication. I have ET, JAK2 negative, and my platelets run at...

I've noticed a few members on here with platelets lower than mine, who have been...

•7 years ago

ET and jak2

Hi. After numerous blood tests I have been diagnosed with ET. My husband joined the forum recently and we were given lots of support. I've been diagnosed at...

Hi. After numerous blood tests I have been diagnosed with ET. My husband joined ...

•7 years ago

why are my platelet numbers suddenly increasing?

Hi. My platelet numbers have recently begun to increase for no apparent reason. I'm curious if anyone else has experienced it and what it's from and what it...

Hi. My platelet numbers have recently begun to increase for no apparent reason. ...

•7 years ago

Blood test on Bone ?

Hi all. i noticed on my blood test form. apart from the usual FBC etc he put another one on form bone ! what can they tell from this test i only saw it...

Hi all. i noticed on my blood test form. apart from the usual FBC etc he put ...

•7 years ago

I am scared

I went the docz and they said my apleen is mildly inlarge ahould i ne scared will i be ok whats it from

I went the docz and they said my apleen is mildly inlarge ahould i ne scared wil...

•8 years ago

Bone pain

I have had 4 bone marrow biopsies, with the most recent being 10 months ago (January 2016). All has been ok, except that I've been getting an ache just over...

I have had 4 bone marrow biopsies, with the most recent being 10 months ago (Jan...

•8 years ago

Interferon alpha

Hi I'm ET & jak2 positive, just on aspirin but due to start on interferon alpha injections, anyone had experience with this, good or bad? Thank you Melanie

Hi I'm ET & jak2 positive, just on aspirin but due to start on interferon alpha ...

•8 years ago

Polycythemia Vera question

Hi I am in the process of getting some holiday insurance and the options are Polycythemia or Polycythemia Rubra Vera. I have only been diagnosed a couple of...

Hi I am in the process of getting some holiday insurance and the options are Pol...

•8 years ago

Georgehb

Hi, I am 56 years old and have polycythemia vera . I have had it for almost 2 years.

Hi, I am 56 years old and have polycythemia vera . I have had it for almost 2 ye...

•8 years ago

Rising haematocrit levels

Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been...

Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 yea...

•8 years ago

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