Polycythemia Vera question

[Jacquis]

Hi I am in the process of getting some holiday insurance and the options are Polycythemia or Polycythemia Rubra Vera. I have only been diagnosed a couple of months with ET and PV JAK2 positive. My question is is Polycythemia Vera the same as Polycythemia Rubra Vera...I'm very confused. Any info would be great. Jacqui

[Paul42]

Hi, its the same thing yes.

It can be confusing.

[Inca]

Surely ,the same? Here in France I am Vaques Jak 2,means P V,but named after the French Doctor who discovered the disease.Mazwill know....the whole three M P Ns are a bit of a mystery,Best to you.Good luck with insurance.

[Hughesf]

If your jak2 positive it's PRV.. tell insurance company.

I pay £52 for a years cover with stay sure

Frank

[jane13]

hughes f is right: polycythaemia without the vera is a condition without a genetic change, that can go away, think u can get it by smoking for example. if u have the jak mutation u r prv.

[mark382]

Just to add confusion I am JAK 2 negative and my haematologist said I had Polycythaemia Rubra Vera as I queried it for a critical illness claim. She said Polycythaemia is just short for PV.

As I understand it it is Secondary Polycythaemia that can go away ie smoking.

[Jacquis]

Thank you everyone for your replies I will get some insurance bought now!

[Mazcd Partner MPNVoice]

Other names for polycythaemia vera

Polycythaemia vera is also known as:

Primary polycythaemia

Polycythaemia rubra vera

Erythremia

Splenomegalic polycythaemia

Vaquez’’s Disease

Osler’’s Disease

Polycythaemia with chronic cyanosis

Myelopathic polycythaemia

Erythrocytosis megalosplenica

Cryptogenic polycythaemia

The US spelling of polycythaemia is ““polycythemia””