Georgehb

[Georgehb]

Hi, I am 56 years old and have polycythemia vera . I have had it for almost 2 years.

[Mazcd Partner MPNVoice]

Hello George, welcome to our forum, please feel free to ask any questions you have about your PV or how you are feeling, you will get lots of answers from the lovely people on this forum. Best wishes, Maz

[Georgehb in reply to Mazcd]

Many thanks for your message and I have already received a few responses, which have all been very positive .

George

[Paul42]

Hi George, welcome

I am 45 was diagnosed with PV 3 years ago.

Hope you are doing well.

Paul

[Georgehb in reply to Paul42]

Hi Paul , I am doing fine thank you. I am taking aspirin and hydroxycarbomide to keep mine under control. I how that you are doing well.

George

[Paul42 in reply to Georgehb]

Doing good thanks, i am on ruxolitinib

[Susana7]

Hi George, welcome. I also have PV (with high platelets) and was diagnosed in 2014. I am 52. I started interferon last year and am doing very well on it, with normal counts now. Hope you are doing well. Susana

[Georgehb in reply to Susana7]

Hi Susana , thank you for your reply . I am taking aspirin and hydroxycarbomide and doing OK. It's lovely to hear positive responses from people with the same problem . George x

[Sand-Dancer]

Hi George. Welcome! I also have PV. Diagnosed 11 years ago and doing great on aspirin and Hydroxycarbomide .

Hope you are ok too.

Lesley x

[Georgehb in reply to Sand-Dancer]

Hi Lesley , thank you for your reply. That's great news that the medication keeping it under control . It is also very reassuring for me to hear that. Many thanks again for your reply . George x

[Sand-Dancer in reply to Sand-Dancer]

Just give me a shout if you have any more questions 😀

[Georgehb in reply to Sand-Dancer]

Thank you, I will and you are welcome to get in touch if you need any help. It's reassuring to be able to chat with other people with the same condition.

George

[Georgehb in reply to Sand-Dancer]

Hi Lesley,

I hope that you are fit and well? I wondered with you spending some of your time abroad if you suffer from heat rash and if so, how you deal with it. I enjoy walking, but even with shorts on I come out in a blotchy heat rash.

Kind regards

George xx

[Sand-Dancer in reply to Georgehb]

Hi George. I walk every day and don’t have any adverse side effects to report. Do you drink lots of water? Could you be allergic to your factor 50? 🤣. I use baby factor 50 as I’m allergic to anything with perfume in it - my thoughts are if it’s good enough for my granddaughters skin I’m sure its fine for me 😊. Where are you living? Lesley x

[Georgehb in reply to Sand-Dancer]

Hi Lesley,

Thank you for your reply. The factor 50 could be an issue. I will try the children's version. I live in Hull, which is East Yorkshire, but tend to walk out in the wilds.

George xx

[Sand-Dancer in reply to Georgehb]

Anything is worth a try isn’t it? Good luck. L x

[Litefootes]

Hey George, welcome. I'm 60 (turned just last week and trying to learn to say that number out loud!) and have PV JAK2 neg for 12 years now. Phlebotomies and 81 mg aspirin are what keeps my counts under control. Good luck, and you've found a great place for info and kinship.

Carol

[Georgehb in reply to Litefootes]

Hi Carol, thank you for your message. I am not sure why my age came up as 56 on here, because I am 59. soon to be 60 too. I am really pleased to have found this site and all the people who have messaged me are lovely and positive. I was quite down when I was first diagnosed , but have come to terms with it now and this group has really helped to reinforce the positives. Thank you again for your message.

George

[MariaB27 in reply to Georgehb]

I have recently been diagnosed with this George and I agree these posts really help, thank you all

Maria