I am scared

[ash123----]

I went the docz and they said my apleen is mildly inlarge ahould i ne scared will i be ok whats it from

[Paul42]

Hi,

What MPN do you have?

There are different reasons for different people.

Mine is very enlarged, I do just fine.

[ash123---- in reply to Paul42]

They said my spleen is 12.5 will i be ok

[ash123---- in reply to Paul42]

I have an mildly in large spleen its 12.5 and i apper caschectic will i be ok is that from the spleen

[ash123---- in reply to Paul42]

Why is ur enlarged

[Paul42 in reply to ash123----]

Hi i have Pv, mine is at 22.5 cm.

Even different MPN's have different reasons why the spleen may be enlarged.

Paul

[socrates_8 in reply to Paul42]

Apologies Paul...

Yours is obviously 10cm larger at 22.5cm. I can't really imagine how uncomfortable that must be when mine is only 12.5cm, and yet I almost always feel its discomfort...

I rarely take breakfast for that same reason...

Steve (Sydney)

[Paul42 in reply to socrates_8]

That's the strange thing I never feel any discomfort.

Its obviously caused me problems internally. But I have no pain and doesn't affect my appetite.

[socrates_8]

Hey Ash...

I am Post ET/Myelofibrosis and my spleen is also slightly enlarged... Interestingly at the same size that the two of you have previously mentioned (12.5cm)

In my case it is alright at the moment but it does have the effect of making me feel like my stomach is already full, when I usually have not eaten anything etc...

Steve (Sydney)

[ash123---- in reply to socrates_8]

Why is it get big its dont notnmean u have cancer right what ot from i dont eat right

[socrates_8 in reply to ash123----]

Hi Ash,

I cannot have any idea as to what is causing your enlarged spleen. What do your doctors tell you about your condition?

What MPN do you have?

Mine is Post Essential Thrombocythemia (PET)/Myelofibrosis. Yes that is classified as a type of blood cancer.

However, as others have already stated, many things could cause an enlarged spleen.

Jane13 has answered that question well below...

And Maz has also suggested that you revisit your doctors... All good advice in my view.

Best wishes

Steve (Sydney)

[jane13]

"What's it from" is a good question: lots of things can cause an enlarged spleen. If u have the mpn conditions covered by this site then u have an enlarged spleen because it's doing some of the work that your bone marrow used to do because your bond marrow has a mutation. Many of us here will have an enlarged spleen - sometimes very enlarged - most without problem. Those of us with only mildly enlarged spleens won't notice it at all so I doubt it's a problem for you in itself. But, like you, we need more information about what caused it.

Suggest u go and see you doc again asap and ask him "why do i have an enlarged spleen", then come back again and tell us more. Good luck

[Karen1970]

Hi. I have PV and my spleen is 16.5cm and I don't have much trouble with it. The normal size is 11cm so yours is not that bad xx

[ash123---- in reply to Karen1970]

Will i be ok is that why i throw upcuz the spleen. And u think it from smokin weed

[Karen1970 in reply to ash123----]

Yes you will and stop smoking weed as your spleen will be the least of your worries in years to come...

[ash123---- in reply to Karen1970]

So u think i got this from smokin

[Karen1970 in reply to ash123----]

No I don't

[francesb]

Hi, my consultant told me that the spleen gets enlarged because with MPNs the bone marrow is making too many blood cells and they get "dumped" in the spleen which then struggles to get rid of them all. I suggest you ask your doctor about this. Best wishes, Frances.

[Paul42 in reply to francesb]

It depends, that is generally true of PV patients and to a lesser degree ET patients. With MF the spleen enlarges because it produces the blood as the bone marrow struggles.

[Stephen399b]

I have ET and systemic mastocytosis. Haemo says my spleeen is at 16cm and slightly enlarged for a man my size (6ft tall, 13 stone). It cause me no bother. Don't do panic by Google!!

[Mazcd Partner MPNVoice]

Hello Ash 123, you must go back to your doctor and ask for a full explanation as to why your spleen is enlarged and what it means for you, we are unable to give you any further advice on this. Good luck, Maz.

[ash123---- in reply to Mazcd]

U think of i eat right ot go bak to ots size

[Mazcd Partner MPNVoice in reply to ash123----]

You really must get more advice from your haematologist regarding this.

[tracey13]

My husbands spleen is enlarged he's got pv jak2 positive.

It's normal for it to be enlarged with pv.