After almost 8 weeks of 40mg+40mg of cortisone to try to get to grips with a chronic gvhd in the liver my finger tips are extremly sensitive, cracked and painfull. Does anyone have any tips on how to alleviate and improve things?
For information, the corticoid treatment isn't working well enough and since last week Jakavi has been started in an attempt to improve things - unfortunately the cortisone has to be used for a while longer to :
i)wean me off progressively
Ii)wait to ensure that the Jakavi improves things and i don't have too adverse a reaction to Jakavi (i'm on the lowest dose - 2×5mg per day but am Jak2 negative and have no spleen enlargement).
Thanks for any help