I have my 2nd doctors appointment tomorrow following confirmation that I have PV which was confirmed after a bone marrow biopsy.
I am JAK 2 negative but am suffering badly with fatigue,confusion,ringing in the ears,and very severe tingling all over which feels like I have had an electric shock.
I have had a few days where the symptons are manageable but most days are terrible.
I have had a horrible few days and have ended up sleeping most of the weekend and I'm now back in work not feeling any better.
I spoke with my Hematologist a week ago who has advised that they will see me again in a couple of months but they will not be looking at doing another Venus section as I did not feel any benefit from the first one.
Work have been outstanding with me over this but I could do with some advice regarding my doctors visit tomorrow.
I don't want it to be a wasted visit so can anyone help with what I should be asking the doctor please that may help either get me back to Hematologist or manage these symptons better than I have been??
I have already posted something before with a little more detail if needed