SCLC & Topotecan

[Claudia211]

Morning. Has anyone taken oral Topotecan, would like more information on side effects etc.

[Jacs55]

Hi my husband had toptecan. The side effects were not as harsh as the infusion chemo. Is this your first round or 2nd?

[Claudia211 in reply to Jacs55]

This will be my third round. What were sise effects on the oral topotecan. Thanks for replying.

[Jacs55 in reply to Claudia211]

None really a little bit of sickness and tiredness. Unfortunately it didn'tdo anything for him. How long have you been diagnosed. We are into our 2nd yearand still going strong

[Claudia211 in reply to Jacs55]

What treatment did you have after topotecan

[Jacs55 in reply to Claudia211]

None it is all syptom control

[Claudia211 in reply to Jacs55]

Is this working. I am having an awful time on topoteca, so tierd and breathless. I was not like this before.

[Jacs55 in reply to Claudia211]

My hubby came off of it he was so unwell

[Claudia211 in reply to Jacs55]

Did he have similar symptoms, Fed up really. How do they manage symptoms.

[Jacs55 in reply to Claudia211]

Steroids and anti sickness meds that's all they could offer

[Claudia211 in reply to Jacs55]

Hope hubby is doing ok. I am just so tierd and no energy.

[Jacs55 in reply to Claudia211]

Yeah he was the same it really drained him. Considering none of the treatments worked well. He is doing really well. He has surpassed the doctors expectations. Keep strong and positive and you will get through it. Sending you positive feelings x

[Claudia211 in reply to Jacs55]

That's good news then. Did your hotel babies tierdness improve after treatment. I am having treatment at Shrewsbury, wonder where you are based.

[Jacs55 in reply to Claudia211]

We are im Essex

[Jacs55 in reply to Jacs55]

He is still very tired but they say it's the cancer that's causing it

[Claudia211]

Morning. Thanks for your reply. Was their any hair loss and the big D and wondered how long did he take it for. I was diag Sept 14, I then had 6 Carbo/Etopside and 15 radiotherapy, all good until Dec 16, then had just carbo. Saw consultant last week and he is recommending Topotecan, hence my request on side effects. What treatment is your husband having now.

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello Claudia211,

below I have added a link to cancer research it has an information page on Topotecan which includes a list of possible side effects. It is important to remember that drugs effect everyone differently and side effects vary from person to person.

cancerresearchuk.org/about-...

If you would like to talk to someone at the Helpline please don't hesitate to give us a call on our Freephone Helpline 0800 358 7200.

Kind regards,

Roy Castle Helpline.

[Claudia211 in reply to RoyCastleHelpline]

Thankyou i was looking for personal experiences and results. But so far does not seem to be many on this chemo