Moving forward: Before my diagnosis, I... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Moving forward

mavem100 profile image
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Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have a seizure in my sleep I wouldn't pinpoint it until I made the connection. My mobility was limited even when driving and going places and half the time I was scared. I had no help during my recovery because there was no proof of any diagnosis and I felt alone, ashamed, and abandoned. I felt like I was a burden and not wanted, there were only the reports and a small clip of me having a seizure. I remembered that my head was throbbing in an area on my head where the ER doctor found a black spot on the right side of my brain, to this day the only cause would be my previous head injury that had happened a few years ago before the incident.

Right now I had some time and thinking while moving forward with my life, my doctor had recommended that I go to physical therapy as a part of my treatment. I was going at least twice a week under Medicaid and rehabilitating the entire right side of my body. My leg had limited strength as well as my right arm and neck. It was a long six months, and times when I wanted to prove that I was stronger but ended up almost hurting myself in the process. The work and treatment paid off and later went to see a nerve chiropractor who specifically helped me with nervous system rather than my bones. This happened towards the end of my physical therapy treatment and was seeing him once a week and soon I was able to move and be more alert and able to move. By the time my treatment ended, I was able to fully recover I was able to get the doctors' note to say that I was cleared to attend school at the Job Corps Center in the US. I am now a current graduate from the Center and right now I am working as a Nursing Assistant at a hospital.

My current goals' right now and when I started the Job Corps Center was I wanted to go into the physical therapy world. I never knew that I would end up with three trades and plans to go back to college. Rehabilitation Technician, Nursing Assistant, and lastly Office Administration; along with certificates and qualifications I earned. I have been working as a Nursing Assistant for a month now and have been looking into the Occupational therapy field which deals with people who need further assistance other than exercising the muscles and mobility, but reteaching how to do normal tasks like feeding and bathing. Right now, I started 12 hr shifts plus overtime but I am unsure what decision since I have been working there for over a month. I want to learn how to work and go to school; while continuing my passions and dreams that I want to achieve. How do I manage a heavy work schedule while going to college; plus having a diagnosis to manage like FND? I know that there have been chances of relapsing even after recovery which in the end of training in school I learned how to do it, but in the long run where can I start and how do I finish?

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mavem100
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Lady4 profile image
Lady4

How about specialising in PT or OT specific for FND, join us at Re-Active and see what a difference they are making. They also have a Brain Bytes membership for OT's/PT's etc.

That way you can help others but manage your symptoms (if you have a re-lapse). Plus when your qualified you could even set up your own practice and work your own manageable hours (long term).

Lecture profile image
Lecture

Hello,

Anything that can help in functional neurological disorders is good to take.

For my part, I do speech therapy for my laryngeal dysfunction and dysphagia, physiotherapy for my back and cervical arthrosis and I do respiratory physiotherapy for my hyperventilation problem.

I come to a session with a notepad, I write the recommendations that are given to me and that I transcribe in Word, then I have them supervised by my physiotherapist. So I can do my exercises independently at home. Usually at bed break, with as a reward a good breakfast, otherwise I do not think to practice them.

Yours

Lecture

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