Migraine: Hi i have Fnd and... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,897 members3,159 posts

Migraine

lifeofpain profile image
6 Replies

Hi i have Fnd and fibromyalgia Have chronic migraines cannot take medications. Have been offered botox but am scared how i will react. Have had migraine for 4 days now cant get rid. Does anyone have any ideas what i could try as everything interferes with Fnd. This fnd and fibro is such a lonely place to be in.

Written by
lifeofpain profile image
lifeofpain
To view profiles and participate in discussions please or .
Read more about...
6 Replies

Which meds have you tried. I feel you because I have Fibro and get vestibular migraines. There are literally loads of anti migraine meds out there, from beta blockers, low dose antidepressants , blood pressure meds, antihistamines. Plus the new injectable CGRP drugs are meant to be very effective.

lifeofpain profile image
lifeofpain in reply toSparklingsunshine

Hi i have tried, carbamazipan,topirimate,amitriptaline, and i have issues with all meds. My body reacts in a bad way.

Sparklingsunshine profile image
Sparklingsunshine in reply tolifeofpain

Yes I've tried 6 or 7 and had to stop them due to side effects. You would benefit from being referred to a neurologist as they deal with migraines, or your local migraine clinic. Neurologists and migraine clinics have a much greater range and choice of medications than GP's. Your GP can refer you.

There are also lifestyle options, taking magnesium supplements can help, cutting out caffeine, cheese, chocolate, chinese food, alcohol, all common migraine triggers, and taking high dose vitamin B2.

lifeofpain profile image
lifeofpain in reply toSparklingsunshine

Neurologist said botox. Tried all the above am ill even taking magnesium. So hard meds would work but my fnd causes things not to work correctly on me. Thank you for your suggestions x

Aberheart profile image
Aberheart

my husband has Botox injections for dystonia in his neck. He hasn’t had any problems with this . He has them every 3 months. I think they start you off on very small doses to begin with to make sure any side effects are limited.

Jellofabulous profile image
Jellofabulous

I’ve had chronic migraine for a decade and fnd for 6 years. I did Botox for aesthetic purposes and was pleasantly surprised at how much it lessened my migraine attacks. At my next neurology appointment, I’m going to ask for the Botox injections. I’m on multiple medications to help the attacks: gabapentin. Propranolol, ajovy injection, and nurtec. But the most helpful thing at preventing them, has been the Botox.

Not what you're looking for?

You may also like...

Hello Everyone

I am new here obviously. Was a frequent post on the MS board but turns out I do not have MS, I have...

World FND Month - APRIL 2020

We have learned in ou the 8 years of Awareness programs that 1. A day of FND highlight= remind...
hope4fnd profile image
Moderator

FND symptom flare ups & sickness

Hi Fine FND Warriors. Question: Is it usual or typical to have FND symptom exacerbations when...

How can this be FND when I have a positive Babinski reflex?

I am newly diagnosed with FND - as a diagnosis of exclusion rather than with positive signs....
Babinski profile image

FND and hemiplegic migraine July 2015

Hi I've been unwell since May this year with migraines, weakness down right side, slow speech ,...
donnaw23 profile image

Moderation team

See all
FND_ profile image
FND_Administrator
hope4fnd profile image
hope4fndModerator
DNE92 profile image
DNE92Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.