Migraine: Hi i have Fnd and... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Migraine

lifeofpain profile image
6 Replies

Hi i have Fnd and fibromyalgia Have chronic migraines cannot take medications. Have been offered botox but am scared how i will react. Have had migraine for 4 days now cant get rid. Does anyone have any ideas what i could try as everything interferes with Fnd. This fnd and fibro is such a lonely place to be in.

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lifeofpain
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6 Replies
Sparklingsunshine profile image
Sparklingsunshine

Which meds have you tried. I feel you because I have Fibro and get vestibular migraines. There are literally loads of anti migraine meds out there, from beta blockers, low dose antidepressants , blood pressure meds, antihistamines. Plus the new injectable CGRP drugs are meant to be very effective.

lifeofpain profile image
lifeofpain in reply toSparklingsunshine

Hi i have tried, carbamazipan,topirimate,amitriptaline, and i have issues with all meds. My body reacts in a bad way.

Sparklingsunshine profile image
Sparklingsunshine in reply tolifeofpain

Yes I've tried 6 or 7 and had to stop them due to side effects. You would benefit from being referred to a neurologist as they deal with migraines, or your local migraine clinic. Neurologists and migraine clinics have a much greater range and choice of medications than GP's. Your GP can refer you.

There are also lifestyle options, taking magnesium supplements can help, cutting out caffeine, cheese, chocolate, chinese food, alcohol, all common migraine triggers, and taking high dose vitamin B2.

lifeofpain profile image
lifeofpain in reply toSparklingsunshine

Neurologist said botox. Tried all the above am ill even taking magnesium. So hard meds would work but my fnd causes things not to work correctly on me. Thank you for your suggestions x

Aberheart profile image
Aberheart

my husband has Botox injections for dystonia in his neck. He hasn’t had any problems with this . He has them every 3 months. I think they start you off on very small doses to begin with to make sure any side effects are limited.

Jellofabulous profile image
Jellofabulous

I’ve had chronic migraine for a decade and fnd for 6 years. I did Botox for aesthetic purposes and was pleasantly surprised at how much it lessened my migraine attacks. At my next neurology appointment, I’m going to ask for the Botox injections. I’m on multiple medications to help the attacks: gabapentin. Propranolol, ajovy injection, and nurtec. But the most helpful thing at preventing them, has been the Botox.

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