persistence symptoms clinic .Am I Wrong?

[Analogue45]

hi has anyone been signposted to persistent symptoms clinic , it mental health based and physio , the appointment was 10 mins in taxi and there for about half an hour , very hard , painful but she said the main place is in Durham which is around 35 mins away to do physio..

I told her it’s to far and I couldn’t travel that far and then do physio and travel back it’s just to far and to painful,,, “You waited in the reception an extra 5 mins you be fine “

I just a bit flustered open up the appointment with I will listen to you ect and she finishes with you be fine , If I could travel that far I would be able to see my mam and dad a lot more then twice a year it’s so hard ,

She’s phoning me Thursday to see about the appointment ect at Durham, ,, I just going to tell her where to go don’t like being forced and told you be fine , I know my limits ,

Am I in the wrong?

[Hidden]

No I don't think your wrong I had to tell my GP that I couldn't do physio because it takes me all my time to get dressed and out the door,i'm in a lot of pain aswell and feel really weak if we feel the way we do struggling to do normal daily tasks then how the hell can we do physio.It annoys me as well that people says you'll be fine AYE RIGHT TAKE MY BRAIN AND BODY GO DO PHYSIO THEN COME AND TELL ME YOUR FINE, NO CHANCE.I wouldn't put myself through something that is going to stress me out and cause me more pain but that's just my view on it everybody has a different opinion.I was worried 😟that my GP would think that I was refusing help but once I explained to her about how difficult it would be she was understanding.Take care, good luck

[Analogue45 in reply to Hidden]

Thanks for replying yes I know exactly how you feel , i just feeling really stressed about it just weighing on me now .feeling down

[210272]

You are not wrong at all. Travel to appointments (either for assessment/diagnosis or treatment) is a huge barrier for a lot of patients (I think this was a recent topic in the Neurolife Now survey) and being fobbed off with 'you'll be fine' isn't OK. I think if you emphasise that you really want to try evidence based treatments but that the travel is too much for you, your GP will understand. They may also be able to consider social prescribing (eg six sessions of physio at home) as a viable alternative, at least to start with.

[Analogue45 in reply to 210272]

Thanks for replying I just want to be left alone now I had enough with all medical people,

[Lady4 in reply to Analogue45]

Hugs xx

[Lady4]

I know this type of attitude and flippant comments can be frustrating but take a step back and think about what you really need and verbalise that in a calm manner.

[Panther5000]

I only have had severe pain in my thighs but I slowly did exercise each day even if I didn't want to. I started with strength training on Vida since insurance pays for it. 15 min at first and I couldn't get through all the exercises. Each day I could do more. The pain got better until it went away. I had to stop the strength training for some reason I don't remember and started doing chair yoga instead.

Now I have some pain in my neck.; in my left calf but only when I pedal my under desk stationary bike if I can relax my muscle as I am exercising it seems to get better each time. I know it is hard to work through the pain but as long as you have a doctor saying there is nothing physically wrong with your muscles I would think lack of us would be more painful. I think I naturally tried to breath thru things as I did the exercise.

I challenge everyone on here to start where you are at and chose one small exercise that moves were it hurts the most, start small but be persistent see if anything improves.

Do breathing exercises to help calm down things as you are doing it.