I found this very moving and would we... - Functional Neurol...
I found this very moving and would welcome your thoughts. It was posted on World Brain Day last year (I think).
Hi, yes I agree, brought tears to my eyes and he is spot on.FND sufferers have been abandoned, fight to get timely help, not always the correct information or correct diagnosis and or correct medication, this just increases the anxiety, which can in turn, increase the severity of symptoms or increase the number of different symptoms.
For those, who don't read the links because it can be difficult at times, I quote a little section at the end:
"I would advise someone newly diagnosed with a health condition, firstly to be kind to yourself. Secondly, pace yourself as everyone’s health issues affect us all in different ways. Thirdly, look to others and support groups like the Brain & Spine Foundation to help you. They are more in touch with your condition, and they can bring invaluable experience and support to help you on your new journey in life.
Plainly, please just support each other. Keep battling for a better, more supportive and caring health and support system for those afflicted by limiting health conditions. We are invisible in plain sight and you are NOT alone.
Love to you all – you are amazing!"
Gordon's Story, Brain and Spine Foundation
Wow thank you for this 210272 very moving giving me the strength to keep going very true words. I am currently struggling as are we all. Waiting for another brain scan as my memory and mistakes are getting worse. I’ve also had infections none stop since I caught covid last September. I am worried all the antibiotics will stop working soon. And I also look after my husband and have to work. So I’ve got to keep going. A lot of others do not understand at all. This is why I like this group even if I don’t often reply as this group knows exactly what we are all going through. Strength and love to all ❤️
