Update re FND podcasts via Neurology Journal and request for info re the dx of Functional Cognitive Disorder ...

[210272]

... apparently the next two episodes of the FND Roundtable discussions have already been recorded and will be available sometime during the next 4 - 5 weeks. I've been told I can send some questions to the podcast co-ordinator (and have already done so) but apparently these will be filtered via the podcast editors and the round table members are under no obligation to respond.

Meanwhile my UK neurologist thinks that Functional Cognitive Disorder (FCD) is being over diagnosed and I think cognitive vestibular interactions may be being missed or misdiagnosed as FCD in the process. If anyone here has a dx of FCD and is willing to share their experiences of the diagnostic process, I'd be very grateful.

[Lady4]

Great thanks, the last one was informative. Maybe put FCD in the search box and contact someone from their previous post.

[210272 in reply to Lady4]

My pleasure and thanks, that's a good idea.

[Lady4 in reply to 210272]

I did a quick search earlier, but recall a post about about a ladys mom having to deal with all sorts of issues.

[210272 in reply to Lady4]

Thanks and I see a lot of posts about people dealing with numerous issues but when I did a search here I couldn't see anything on this particular topic. I've heard from a few people who have been diagnosed with FCD for really odd reasons, like they attended the appointment alone and can follow the plot of a basic television show. One woman said that the doctor ignored what she told him about the impact of cognitive impairments on her work (she was a nurse and wasn't able to do her job safely) and he claimed that she could remember what medications she was on even though she'd told him she wasn't on any medications. So I'm concerned that the powers that be are making FCD a subtype of FND without any good checks and balances about how the diagnosis is made.

[Mattie21]

When has splitting conditions into a mountainous number of subtypes ever been beneficial...no cures appear, it's just time wasting, publication generating without actually advancing progress in management of conditions. The newest thing is consulting with people with lived experience to develop theoretical frameworks, definitions and useful research questions....fnd should be getting ahead, not launching down these failed side paths..... fnd is as wild. Weird. Complex as it comes. Whether it's limb weakness, seizures or motor issues we all experience a bunch of overlapping symptoms who cares which one we get first.

[210272 in reply to Mattie21]

I prefer splitting to lumping, especially when it comes to the 'human construct' that is PPPD. Totally agree with you regarding lived experience expertise. As such, I find it hard to understand why FND is in DSM.

[Lady4]

Hi, I did also see a lot of posts referring to CBT, ie treatment suggested, might be worth reading through a few of those to see if anyone can help.