Jaw Pain - Anyone suffering with TMJD - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Jaw Pain - Anyone suffering with TMJD

fifields profile image
6 Replies

I haven’t seen an FND specialist yet, but have suffered with TMJD pain for over 8 years, caused by my jaw muscles being in constant spasm. My current maxillofacial consultant suspects FND due to some other symptoms / observations. I have no mechanical defects, and Botox injections to masseter muscles have not provided any benefit, though now I also find it hard and a little painful to chew even soft pasta.

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fifields profile image
fifields
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6 Replies
Jofisher profile image
Jofisher

Check out fibromyalgia as I have both and TMJ comes with this as well just an idea

fifields profile image
fifields in reply to Jofisher

Is there a forum here or elsewhere for that? I do have CFS etc.

Jofisher profile image
Jofisher in reply to fifields

Check out fmaware.org

Lecture profile image
Lecture

I've got an orthophonist to deal with my problems of jaws

Willothewisp81 profile image
Willothewisp81

This is very interesting as I've never heard of TMJD before. I also experience jaw and ear pain, plus muscle spasms in my jaw that cause it to suddenly snap shut when I relax or go to sleep (causing several chipped teeth). It is one of the symptoms that was listed when I was first being investigated by the neurolgist who eventually diagnosed me with FND, the jaw pain and spasms was just put down under FND. I have never been given any advice on how to manage it but I have had to see the dentist about my teeth and was given a moth guard which helps to protect my teeth. After realising that the pain I get around my ears is connected I started seeing a cranial sacral therapist who does an amazing job of losening the tendens around my jaw which makes a huge difference to the pain.

Dulci21 profile image
Dulci21

This thread is so helpful. Many thanks to those who have contributed.

I was diagnosed with trigeminal neuralgia several years ago and more recently with TMJD. My jaw locks completely and I feel as if my face is being 'pushed' towards one side, often accompanied by intense pain at the back of my head on the same side. I have recently been referred for Xrays of my jaw. My suspicion is that the symptoms are all part and parcel of my FND. The pain level is a real challenge and, like others here, I also have difficulty with eating and talking!

I am so sorry for fellow sufferers but it is helpful to read of others with similar symptoms

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