FND taking over life

[Seamer37]

Help. FND seems to be progressing at a very fast rate, symptoms are making very depressed. Hospital are mucking me around and I am out of area for treatment centres. Can't get mental health treatment due to the waiting lists. Then they just offer more cpd which I have had loads.

Life is just over and it's ruining my family

[kev60]

Hi, I started having problems in 2018, but did not get a diagnosis for 19 months. then it appeared as I had had the diagnosis that was it and I was discharged. my FND affects the way I walk, talk and think, I walk like I am drunk and in 2018 it was so bad they thought I'd had a stroke. had neurophysio and had to learn how to walk again , not 100% I would say I am at 60-70% and seem to have plateaued just have to learn to live with it. for me my memory loss is the worst forgeting what i did a few hours ago, i am having cbt to help with this maybe it will work maybe not. the thing is you have to try anything and everything that you can and there are no quick answers. there is a lack of informative help and i sometimes wish it would all end. but how ever bad it gets i think of the other people i have met with FND and it is so varied and i feel like i am not the worst off, at the moment i am trying to find a hobby(never had one before) to take my mind off my problems. i found a magazine called warhammer age of sigmar its a read, build, paint and play fantasy figures in a war game. i may not play the game but find it helpful building the figures and painting them, thats just me maybe you could find something you can do. good luck i the future. kevin

[ToesKnees]

There is the saying, “Where focus goes, energy flows.” make friends with your body and work with it, each thing you try is a chance for you to create the right conditions for your body to repair, regenerate and feel better.

[ToesKnees in reply to ToesKnees]

Try to except the new symptom or issue and "not fight against or resist it" recognize it except it as just another natural part of FND and hopefully when your body is ready it will let it go.

I've tried fighting against it and it just last longer or feels progressive. I hope this helps 🙏

[ToesKnees]

Have you by any chance made any quick changes in medications recently? That can be tough with FND

[Seamer37 in reply to ToesKnees]

No I have had a change in brands all the time which I am trying to get sorted at the GP but no actual new medications

[ToesKnees in reply to Seamer37]

Yes I'm sensitive to brand changes I hope you get that sorted 🙏