I was diagnosed with Behcet's last year. The most significant features has been the ulcers, red rashes in the mouth and a sore tongue and lips which did not improve with colchicine or steroids but is improving with Plaquenil. I have HLA B5.
I also get little red sores on my arms, legs, scalp and neck. I get stinging nodules on my fingers and splinter haemorrhages on my thumb nails. These symptoms are sporadic.
I had a pacemaker put in in March 2014 for an arrhythmia that caused my heart to stop. Later that year night sweats started. They are unusual because I have normal temperature, pulse and blood pressure during the sweats. Many investigations have failed to find a cause. My bloods are good and apart from getting breathless going upstairs I am healthy.
A recent Trans Oesophageal Echocardiogram revealed a mass or vegetation on one of my pacemaker leads. My blood cultures were negative.
The cardiologist and I agreed that my condition is "complex" . The rarity of the signs, symptoms and general presentation makes it very difficult for case management and treatment.
Has anyone else had heart issues like this?
Newly diagnosed and very confused 
Is it possible to be symptom free?
Do others experience nausea and vomiting as a symptom of BD??
Scalp issues! 
