Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective'

Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective'

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Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective'

Below are 2 segments from post "Great little article on potential dangers of touting a 'cure' for RA" ( healthunlocked.com/ra-warri... ) that might help place dietary/ lifestyle (d/l) approaches 'into context/ perspective' as far as overall RA/ autoimmune 'treatment' is considered.

[Merely my layman's (non-medical, non-scientific) opinion/ perspective.]

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Please pardon length. 🙏

These complex, nuanced topics appear to be fraught with continual misunderstandings & misperceptions, thus taking a bit of 'yammering' 🗣 💬 💬 to try to clarify.

[Apologies. Lack facility to encapsulate topic into snappy 'sound-bites'. 🙏 ]

Would deeply appreciate anyone grasping what I'm stumblingly, bumblingly trying to convey, to say it much more succinctly. 🙏 (Thank you in advance for any 'translations' you can provide. Much appreciated. 🙏 )

[Where's our long-gone 'Babel Fish' Ade_Bell to translate?! ☺️ 🤔 Miss you, dude. 😌 Hope you're doing well. 🙏 ]

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6️⃣3️⃣ Sally, 'The Galloping Grandma': healthunlocked.com/cure-art...

6️⃣2️⃣ Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins: healthunlocked.com/cure-art...

6️⃣1️⃣ Dr. Brooke Goldner's Free 3-Day Webinar, '6 Steps to Reversing Autoimmune Disease with Supermarket Foods': August 3/Thu, 7/Mon, 10/Thu 2017: healthunlocked.com/cure-art...

6️⃣0️⃣ 'No' to Fish Oil Too?: healthunlocked.com/cure-art...

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5️⃣9️⃣ Top Rheumatoid Arthritis Blogs & Websites (from 'Feedspot'): healthunlocked.com/cure-art...

5️⃣8️⃣ Psoriatic Arthritis & Skin Psoriasis: Nicole S. O’Shea's Journal (& Journey): healthunlocked.com/cure-art...’sheas-journal-journey

5️⃣7️⃣ Anyone experience with Pulmonary Nocardia (Nocardiosis)?: healthunlocked.com/blf/post...

5️⃣6️⃣ Osteoarthritis: Prevented with Diet & Exercise? University of Surrey (U.K.) study in 'Nature Reviews Rheumatology': healthunlocked.com/ra-warri...

5️⃣5️⃣ "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

5️⃣4️⃣ Life is all about how we see things. Context is everything. Perspective is everything.: healthunlocked.com/nras/pos....

5️⃣3️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.) Now Underway: healthunlocked.com/ra-warri...

5️⃣2️⃣ Reg, Coordinator of 'Redcar Arthritis Care Group', Shares His Thoughts about Movement/ Exercise & Arthritis: healthunlocked.com/nras/pos...

5️⃣1️⃣ Cornetto Trio? From Maya Angelou to Confucius to 'Oprah'!?: healthunlocked.com/nras/pos...

5️⃣0️⃣ "What Doctors Don't Know About the Drugs They Prescribe" by Ben Goldacre: healthunlocked.com/nras/pos...

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4️⃣9️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.): healthunlocked.com/nras/pos....

4️⃣8️⃣ "People who say it cannot be done should not interrupt those who are doing it.": healthunlocked.com/fibromya....

4️⃣7️⃣ "When someone shows you who they are, believe them.": healthunlocked.com/fibromya....

4️⃣6️⃣ Ankylosing Spondylitis (AS): healthunlocked.com/nras/pos...

4️⃣5️⃣ Have you been on the "Paddison Program Forum"?: healthunlocked.com/ra-warri...

4️⃣4️⃣ Anyone on the "Paddison Program Forum"?: healthunlocked.com/nras/pos...

4️⃣3️⃣ "How U.S. Health Care Became Big Business": Medical Journalist, Dr. Elisabeth Rosenthal talks with NPR's Terry Gross: healthunlocked.com/ra-warri...

4️⃣2️⃣ Quinoa, Buckwheat, Sweet Potatoes, Leafy Greens, . . . 'Baseline Phase' of PP Diet Fulfills Nutritional Requirements (Diverse & Complete): healthunlocked.com/nras/pos...

4️⃣1️⃣ Healing Power of Resilience, Optimism, & Hope: Moving Forward from Trauma, PTSD, Physical & Psychological Abuse & Illness — Dave Pelzer: healthunlocked.com/nras/pos...—-dave-pelzer

4️⃣0️⃣ Warm welcome, Hopeyj19!: healthunlocked.com/nras/pos...

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3️⃣9️⃣ From Wheelchair to Bikram Yoga (in 10 Months): healthunlocked.com/nras/pos...

3️⃣8️⃣ "A Kitchen Fairy Tale" by Iida, How She Healed Herself with a Plant-Based Diet (according to 'Tribe Magazine'): healthunlocked.com/nras/pos...

3️⃣7️⃣ Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

3️⃣6️⃣ EarthToLor: Psoriasis, RA, Depression, Weight Gain; Triple Therapy & More; Potatoes & Rice: healthunlocked.com/nras/pos...

3️⃣5️⃣ New Arthritis Podcast: "Can Arthritis Potentially End a Musical Career?": healthunlocked.com/nras/pos...

3️⃣4️⃣ Cardiologist, Dr. Monica Aggarwal, Reduces Her RA Inflammation via Plant-Based Nutrition, Diet, Lifestyle: healthunlocked.com/nras/pos...

3️⃣3️⃣ AndySwarbs Shares His RA Hero's Journey — Joe Campbell Style: healthunlocked.com/ra-warri...—-joe-campbell-style

3️⃣2️⃣ Olive Oil — not Popeye's 'Olive Oyl': healthunlocked.com/ra-warri...—-not-popeyes-olive-oyl

3️⃣1️⃣ Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet — turning_pain_n2_purpose: healthunlocked.com/nras/pos...—-turning_pain_n2_purpose

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2️⃣9️⃣ "Super Juice Me!" Documentary by Jason Vale: healthunlocked.com/nras/pos...

2️⃣8️⃣ "Fat, Sick & Nearly Dead" Documentary by Joe Cross: healthunlocked.com/ra-warri...

2️⃣7️⃣ Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...

2️⃣6️⃣ Jenn, Cole, & Joseph: JIA-ers Who Share Hope & Practical Experience: healthunlocked.com/jia/post...

2️⃣5️⃣ Empathetic 'Knee Photo' for Deejojo: healthunlocked.com/nras/pos...

2️⃣4️⃣ "Tis but a scratch . . .": healthunlocked.com/ra-warri....

2️⃣3️⃣ Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos...

2️⃣2️⃣ Roxana, 'The Sofia Vergara of Peru' (& now 'The States'), Improves Her Hashimoto's (Hypothyroid) & Rheumatoid Arthritis (RA): healthunlocked.com/thyroidu...

2️⃣1️⃣ Any 'Ankylosing Spondylitis'-ers (AS)?: healthunlocked.com/ra-warri...

2️⃣0️⃣ Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos...

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1️⃣9️⃣ Dr. Pam Popper on: Hypothyroidism; Iodine, Thyroid Function & Thyroid Disease: healthunlocked.com/thyroidu...

1️⃣8️⃣ Self-Management Event in Southampton on Feb. 14 & 15 from 'Arthritis Action': healthunlocked.com/nras/pos...

1️⃣7️⃣ X-Ray Yoga: healthunlocked.com/ra-warri...

1️⃣6️⃣ Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment: healthunlocked.com/nras/pos...

1️⃣5️⃣ Suicide -- Career & Otherwise: healthunlocked.com/nras/pos...

1️⃣4️⃣ Meditation, Mindfulness, Movement, Breathing, Relaxation, Stress Reduction . . .: healthunlocked.com/nras/pos....

1️⃣3️⃣ 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not): healthunlocked.com/ra-warri...

1️⃣2️⃣ "When You Know Better, You Do Better!": healthunlocked.com/fibromya...

1️⃣1️⃣ Dietary/ Lifestyle Considerations for Rheumatologists to 'Ruminate On': healthunlocked.com/nras/pos...

🔟 Spoon Theory, Spoonie, Spooning: healthunlocked.com/nras/pos...

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9️⃣ Douglas Lisle: 'The Pleasure Trap': healthunlocked.com/nras/pos...

8️⃣ Dean Ornish, Neal Barnard, T. Colin Campbell, Caldwell Esselstyn, John McDougall, Michael Klaper, Michael Greger: healthunlocked.com/nras/pos...

7️⃣ "Poofed" Info, References, Links, Your Replies, etc. (at ALL 'Kai-- Posts'): healthunlocked.com/nras/pos...

6️⃣ FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

5️⃣ Vogons, Vulcans, Vegans: healthunlocked.com/nras/pos...

4️⃣ Microbiome, Pooing, Toilet Humour: healthunlocked.com/nras/pos...

3️⃣ For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos...

2️⃣ FREE 3-Part 'Serology (RF, ACPA, Anti-CCP, ANAs, ANCA) in Rheumatology' Series from Dr. Robert Coughlan's 'Rheumatology Toolbox': healthunlocked.com/nras/pos...

1️⃣ "Live Your Life. . . ": healthunlocked.com/nras/pos....

⏺ Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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  • Segment 1:

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    From my understanding of the 'Paddison Program' (PP):

    🔵 SOME of us improve to a point where we no longer require meds & maintain wellness via dietary/ lifestyle means.

    Some may consider this 'cure', some 'long-term remission', or some use other words . . .

    Whatever 'terminology' we wish to use, we continue working with our rheumatologist to be monitored to ensure we're safe & there's no further disease progression.

    This is all done in conjunction with our rheumatologist's guidance/ approval.

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    🔵 Some of us improve to a point where our meds are reduced & we're able to maintain wellness via dietary/ lifestyle means along with our reduced meds. This, too, is all done under our rheumatologist's guidance/ approval.

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    🔵 And, for some, the process does not work.

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    All of this is stated up-front.

    Anyone researching & actually reading & following PP is well aware of this.

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    This is merely my layman's (non-medical/ non-scientific) understanding of the process:

    Just as with med-only approaches, dietary/ lifestyle + med approaches have varying results: some improve, some no difference, some worsen.

    Unfortunately, no one -- not even our rheumatologist -- can predict the outcome for each of us -- whether we choose to use meds alone, or meds in conjunction with dietary/ lifestyle changes.

    It's ALL 'trial & error' just like a med-only approach -- all trial & error self-experimentation.

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    At post: 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not) ( healthunlocked.com/ra-warri... ) there are 2 videos of 2 young ladies who've each followed their own path; and, each have touched on PP at some point along their journey.

    People who've time to watch & listen to the videos, may place such programs as PP -- in its 'proper context':

    • neither vilifying/ scare-mongering/ condemning . . .

    • nor mis-labeling: cure-all/ panacea/ overnight miracle . . .

    but merely identifying it as yet ANOTHER tool in managing a lifetime autoimmune disease/ RA.

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    And, depending upon the results of the individual implementing the PP process:

    • some claim 'fake',

    • some claim 'cure',

    • and, some claim 'improvement' -- even 'remarkable improvement', which is 'miraculous' for them.

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    Merely my opinion:

    🔴 It's wise for anyone choosing to implement any approaches (meds, diets, lifestyles etc.) to research & go in with eyes wide open -- to read the source material with calm, clear, level headedness -- not with rose-colored glasses of unrealistic expectations.

    🔴 It's foolish for anyone choosing to implement any approaches (meds, diets, lifestyles etc.) to not research & to have their eyes closed -- to not read the source material with calm, clear, level headedness -- & with rose-colored glasses of unrealistic expectations.

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    Wishing you the very very best, Lucy11. 🙏

    I appreciate your placing PP in context. 👍

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    🙏 🍀 🌺 🌞

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  • Very well put Kai👍🏻

  • Thank you kindly, Simba92. 🙏

    In similar vein, so much of this seems to boil down to 'Python-esque' truths. 🤔 🙃 As Graham Chapman (as 'Brian') in "Life of Brian" implores us to . . . think for ourselves, as we're all individuals . . . :

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    (Perhaps apropos for an awful lot of us . . . 🙃 😂 😉 )

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  • Segment 2:

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    Spot on, Lucy! 👍

    We are not in disagreement.

    Yes, the distinction in markers should be noted & treated accordingly. 👍

    No argument here. 👍

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    We can't control anyone's fear-driven 'wishful thinking' or 'denial of reality' -- in whatever mental state they're in -- in the early, middle, or advanced stages of disease.

    What is clearly written, clearly stated -- & re-stated -- cannot be blamed for another's 'misunderstanding'.

    Neither can fear nor confusion be used as an excuse for 'misunderstanding' or exercising faulty/ poor judgement.

    I fully understand & take your point, Lucy, & agree with it up to a point. Your observations are well-made & well taken. You've no disagreement from me. I strongly believe you come from a place of valid experience, sound judgement, & good intention. 👍

    I hope those who read this, note the markers of distinction & work with their rheumatologists.

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    For clarity -- no one is advising (or has advised) to 'go med-free'.

    We each carefully weigh the pros & cons of various treatments/ approaches for ourselves (our unique conditions) & confer with our physicians/ rheumatologists & loved ones in deciding how we wish to proceed. We have a multitude of facts & options set out before us & use our own head & heart to ultimately decide what is best for us -- in our 'window of opportunity'.

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    To minimise misunderstanding & faulty judgement I encourage 'trusted loved ones' to sit down & learn along with the sufferer/ patient & attend the rheum appointments as well -- to learn, understand, review, & thoroughly discuss treatment options.

    This 2nd, 3rd . . . set of eyes (& brains) provide a 'checks & balance' ⚖ -- to help us not 'misunderstand or misperceive' information if our minds are clouded with fear, confusion -- or simply swimming in 'brain fog'.

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    Keeping in mind all that you've just noted, Lucy, I think it's also worth noting the following (to keep a 'larger picture' in context/ in perspective):

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    The fact that scheduling a rheum appointment can take MONTHS before an initial visit (never mind follow-up visits) means -- learning & implementing diet/ lifestyle (d/l) techniques in those intervening months is an immediate (no cost) 1st step in attempting to slow down (reverse?) disease progression -- reduce (eliminate?): inflammation, swelling, pain, etc..

    And, per usual -- it works for each individual to varying degrees . . .

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    Whatever that dietary approach [Dr. Irwin Lim's 'BJC Health' dietary approach ( bjchealth.com.au/diet ; shop.bjchealth.com.au ) or Sarah Ballentyne's AIP approach ( thepaleomom.com/start-here/... ) or Clint Paddison's d/l approach, etc..)] that we each deem useful, doable, appropriate for ourselves -- is 'something' rather than 'nothing'.

    That is, "doing something is better than doing nothing" -- even if it's merely minimising/ eliminating the commonly agreed upon inflammatory foods & life stressors/ triggers. 👍

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    Parenthetical Aside:

    Merely making pre-diagnosed, newly diagnosed -- even long-term diagnosed people aware of what they're putting in their mouths, the movements they do (or don't do) , & the 'thoughts' they think, etc. -- as having impact on their disease progression & overall well being, is a hurdle.

    Some -- yes some -- believe there's ZERO, 0️⃣, 🅾, ⭕️ connection & will (emphatically, gleefully, . . .) argue that point to the death. ⚰ ⚱

    😳 😱 🙃

    Yes, according to their life experience the aforementioned (diet, movement, thoughts/ attitude, etc.) have nothing, NOTHING whatsoever to do with their 'overall well being' (never mind their disease). 😳

    [Yes, they live & breathe amongst us, & appear to 'actively discourage' those curious about d/l from pursuing/ researching it as a legitimate means of improving/ healing (in conjunction with meds). ]

    [I'd noted a few 'satirical bits', about some of the more outrageous (egregious) 'characters' I've encountered on forums (over time) who've made some pretty 'outrageous' claims/ accusations. Think you might get a kick out of the mini-satirical blurbs. Just let me know, & I'll forward them on to you. Might provide a good-natured, hearty laugh -- in Pythonesque fashion. 😂 🙃 😆 ]

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    Back on topic:

    Some pre-diagnosed or newly diagnosed RAers/Autoimmuners have no awareness of d/l approaches to influence the course of disease progression. Their primary care (family/ gp ) physicians all to frequently 'appear to be' unaware of the food/ gut/ brain/ autoimmune connection -- & even (some) rheumatologists (in this day & age) are still unaware or insist/ persist "diet has no effect". 😳 😱

    (Yes, they, too, 'live & breathe' amongst us 😆 😂 🙃 & gawd only knows how many sufferers they've 'put off' trying to help themselves -- improve their conditions -- via d/l techniques!!! 😳 😱 )

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    Of course, there are physicians & rheumatologist who 'see' the connection -- yet, if you're one of the unlucky patients who's saddled with 'a d/l denier' [like a 'holocaust denier' 😳 🙃 or a cigarette-smoking-is-bad-for-you denier ('back in the day')] then you're not likely going to hear about d/l techniques unless you start poking around 'the Internet' & talking to actual people using these techniques.

    You're merely going to follow the protocol that your beloved, trusted, respected, med-only trained physician is going to recommend to you because you may be oblivious to the fact that you can incorporate d/l changes (along with meds) as part of 'your personal regime'.

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    This is the sad (scary?) state of medicine as practiced in many traditional institutions (globally?) amongst traditional approved/ sanctioned protocols implemented by the physicians most of us have access to -- in this day & age.

    Those who can afford better health care, 'get better'.

    And, the rest of us scramble to try to 'fit together the pieces of the puzzle' for ourselves when the protocols our (beloved, trusted, respected) physicians/ rheums recommend become ineffective or cease working altogether.

    [That is the daily reality for some of us who've scrupulously 'followed doctors orders'.]

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    It's all horrifically (nightmarishly 👹 👺 ♿️ ) funny & not funny!! 😂 😭

    A sobering reality many of us live through.

    [Tis the high (& low) comedy & drama 🎭 of our current medical care treatment in chronic, life-long autoimmune disease.]

    Implementing a d/l approach in the intervening months -- before the meds are prescribed -- I'd venture to guess for the MAJORITY of sufferers is "no harm, no foul."

    We are very much in agreement, Lucy. 🙏 👍

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    Many of us continue to work through the d/l nuances (learning, implementing, 'trial & error' self-testing throughout the months/ years) -- under our rheums watchful eye -- & improve along the way.

    We're slowing down/ halting/ reversing the 'ebb & flow' trajectory of disease. We're stabilising, improving, healing -- not worsening.

    That in itself is a blessed relief. 🙏

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    We're 'on the same page', Lucy.

    There's no disagreement. 🙏

    Yes, absolutely -- the distinction in markers should be noted & treated accordingly. 👍

    Keep well, dear lady, keep well.

    Wishing you improvement, health, & happiness along your RA/ autoimmune journey. 🙏 🍀 🌺 🌞

    .

  • For dietary/ lifestyle (d/l) discussions from a variety of perspectives, posts you may like to consider:

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    • Talking to NRAS about diet: healthunlocked.com/nras/pos... [Highly recommend taking time to read through the 70 + comments for anyone seriously considering implementing a d/l approach (along with their meds). 👍 Found andyswarbs last comment (at bottom of page) insightful/ profound. 🤔 😌 ]

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    • For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan:

    healthunlocked.com/nras/pos... [See 'replies' for clarifications about d/l approaches in relation to 'leaky gut theory', etc.]

    .

    • "Diet" search results at:

    🗣 👥 NRAS: healthunlocked.com/search/d...

    🗣 👥 Arthritis Action: healthunlocked.com/search/d...

    🗣 👥 American RA Warriors: healthunlocked.com/search/d...

  • Additional dietary/ lifestyle (d/l) discussions from a variety of perspectives that may be of interest:

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    • Feeling sorry for people here: healthunlocked.com/nras/pos... [Again, highly recommend taking time to read through 120+ comments for anyone seriously considering implementing a d/l approach (along with their meds). 👍 🤔 😌 ]

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    • A new day, let's see what we have learnt: healthunlocked.com/nras/pos... [This 'follow-up' post (& its 50+ replies) are equally as interesting/ insightful.]

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  • Reminds me of "The Blind Men and the Elephant" by John G. Saxe (read by Tom O'Bedlam):

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    .

    A 'truth' perhaps worthy of a repeat: John Godfrey Saxe "The Blind Men and the Elephant " Poem animation Indian parable:

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    And, a version for our 🤖 friends, who like to 'robotically' (unthinkingly, unquestioningly) 'repeat' things ad nauseum: poemhunter.com/poem/the-bli... [The voice is just too funny. Can't help but pass along for the sheer delight of a good giggle. 😄 😄 😄 ]

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  • Also reminiscent of — in a humorous parallel in a way — to Joe Campbell cheerfully quoting Daisetz Suzuki (old Zen philosopher):

    billmoyers.com/content/ep-2...

    "He [D. Suzuki] was in his 90s. He started to lecture in Switzerland that I heard in Ascona. He stood up with his hands on his side, and he said:

    .

    'God against man, man against God, man against nature, nature against man, nature against God, God against nature. Very funny religion.' "

    .

    [So far, haven't been able to find the video of JC saying this. If you 'see/ hear' him saying it (the manner in which he smilingly says it with deep understanding) may well bring a smile of recognition to you. ☺️ Truly lovely, joyous . . . 🤗 ]

    Parallels/ reflects the various (conflicting?) 'philosophical' perspectives voiced within the posts — with a dash of good humour, cheer, insight. ☺️

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  • If curious about diet/ lifestyle 🤔 , "What the Health" documentary may interest you:

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    Additional 🆓 clips & info at "What the Health film": healthunlocked.com/cure-art...

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    🙏 🍀 🌺 🌞

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