NRAS
21,776 members25,413 posts

Warm welcome, Hopeyj19!

Warm welcome, Hopeyj19!

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Warm welcome, Hopeyj19!

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Warm welcome, Hopeyj19! 🌺 🌞

Well done on finding a process that's working well for you. 👏 👏 👍

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[Please 🙏, kindly, don't be put off by this initially peculiar(?) reception. 😳 😮 🙃 ]

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There are dietary/ lifestylers (PPers, AIPers, & variety of approaches) about. 👍 (We exist. 🤗 You'll know us when you see us. 😊 😌 ☺️ )

Please feel comfortable sharing amongst those of us who genuinely interested in what works for you. 🙏

(We're all here to learn from each other. 🙏)

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The Internet's a pretty big place — lots of wide open spaces for all of us to share in peace (without any toes being stepped on). 🙏

Thankfully, HU (HealthUnlocked) & NRAS allow us to peacefully share this space. 🙏

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Perhaps, kindly consider this 'unique reception' 😳 😧 😨 in the framework of a 'friendly hazing', much in the spirit of a Pythonesque 'public stoning 😉 :

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😂 😂 😂

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You've supportive friends here, so kindly do not feel alone or 'put off'. 🙏

And, have a hearty laugh at some of the 'goings on' & please, please, take none of it personally. 🙏

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Nice to see a warm ☀️, cheerful 😊 disposition joining the forum.

Delighted to have you on board, dear lady. 🙏 🌺 🍀 🌞

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Kind regards, ☺️

Kai

healthunlocked.com/user/kai...

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I tried to place this note as a 'Reply' under your initial post 'MY RA' ( healthunlocked.com/nras/pos... ) but was unable to, unfortunately. So, hopefully you'll stumble upon this post as a warm welcome from all of us. 👦 👩 👱 👵 👴 . . .

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7️⃣5️⃣ Chiropractic, Massage, Physical Therapy to Help Manage Pain: Matthew Redman: healthunlocked.com/cure-art...

7️⃣4️⃣ JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old: healthunlocked.com/jia/post...

7️⃣3️⃣ Quality Deep Sleep: Physical/ Mental Restoration & Improving Health: healthunlocked.com/cure-art...

7️⃣2️⃣ Oats as Cooked Oatmeal or Fermented Overnight. Rolled, Steel Cut, or Whole Groat. Prebiotic, Probiotic, not Idiotic via Dr. Richard Matthews.: healthunlocked.com/cure-art...

7️⃣1️⃣ DMARD Infographic: Methotrexate (MTX), Leflunomide (LEF), Sulphasalazine (SSP), Hydroxychloroquine (HCQ): healthunlocked.com/cure-art...

7️⃣0️⃣ Paddison Program (PP): Clinical Trial, Rheumatologist Contacting Clint Paddison, 'Guide for Rheumatologists', TEDtalk, etc.: healthunlocked.com/cure-art...

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6️⃣9️⃣ Journey To 100: Evolution of Medicine (Functional Medicine & Importance of 'Community'): healthunlocked.com/cure-art...

6️⃣8️⃣ Dr. Michael Greger ('Sense & Sensibility') Shares "How Not to Die": healthunlocked.com/cure-art...

6️⃣7️⃣ Journalist Sumit Bose, Another RA-er Who's Documenting His RA Journey: healthunlocked.com/cure-art...

6️⃣6️⃣ 'Microbiome/ Gut Health Book List' from AARA: healthunlocked.com/cure-art...

6️⃣5️⃣ Practical, Brief Video Tips for RAers/ Autoimmuners: healthunlocked.com/cure-art...

6️⃣4️⃣ Supplements/ Nutrients (B12, Vit. D, Potassium, Protein . . . ) for RAers/ Autoimmuners & Plant-Based Dieters (Vegans, Vegetarians, . . . ): healthunlocked.com/cure-art...

6️⃣3️⃣ Sally, 'The Galloping Grandma': healthunlocked.com/cure-art...

6️⃣2️⃣ Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins: healthunlocked.com/cure-art...

6️⃣1️⃣ Dr. Brooke Goldner's Free 3-Day Webinar, '6 Steps to Reversing Autoimmune Disease with Supermarket Foods': August 3/Thu, 7/Mon, 10/Thu 2017: healthunlocked.com/cure-art...

6️⃣0️⃣ 'No' to Fish Oil Too?: healthunlocked.com/cure-art...

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5️⃣9️⃣ Top Rheumatoid Arthritis Blogs & Websites (from 'Feedspot'): healthunlocked.com/cure-art...

5️⃣8️⃣ Psoriatic Arthritis & Skin Psoriasis: Nicole S. O’Shea's Journal (& Journey): healthunlocked.com/cure-art...’sheas-journal-journey

5️⃣7️⃣ Anyone experience with Pulmonary Nocardia (Nocardiosis)?: healthunlocked.com/blf/post...

5️⃣6️⃣ Osteoarthritis: Prevented with Diet & Exercise? University of Surrey (U.K.) study in 'Nature Reviews Rheumatology': healthunlocked.com/ra-warri...

5️⃣5️⃣ "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

5️⃣4️⃣ Life is all about how we see things. Context is everything. Perspective is everything.: healthunlocked.com/nras/pos...

5️⃣3️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.) Now Underway: healthunlocked.com/ra-warri...

5️⃣2️⃣ Reg, Coordinator of 'Redcar Arthritis Care Group', Shares His Thoughts about Movement/ Exercise & Arthritis: healthunlocked.com/nras/pos...

5️⃣1️⃣ Cornetto Trio? From Maya Angelou to Confucius to 'Oprah'!?: healthunlocked.com/nras/pos...

5️⃣0️⃣ "What Doctors Don't Know About the Drugs They Prescribe" by Ben Goldacre: healthunlocked.com/nras/pos...

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4️⃣9️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.): healthunlocked.com/nras/pos...

4️⃣8️⃣ "People who say it cannot be done should not interrupt those who are doing it.": healthunlocked.com/fibromya...

4️⃣7️⃣ "When someone shows you who they are, believe them.": healthunlocked.com/fibromya...

4️⃣6️⃣ Ankylosing Spondylitis (AS): healthunlocked.com/nras/pos...

4️⃣5️⃣ Have you been on the "Paddison Program Forum"?: healthunlocked.com/ra-warri...

4️⃣4️⃣ Anyone on the "Paddison Program Forum"?: healthunlocked.com/nras/pos...

4️⃣3️⃣ "How U.S. Health Care Became Big Business": Medical Journalist, Dr. Elisabeth Rosenthal talks with NPR's Terry Gross: healthunlocked.com/ra-warri...

4️⃣2️⃣ Quinoa, Buckwheat, Sweet Potatoes, Leafy Greens, . . . 'Baseline Phase' of PP Diet Fulfills Nutritional Requirements (Diverse & Complete): healthunlocked.com/nras/pos...

4️⃣1️⃣ Healing Power of Resilience, Optimism, & Hope: Moving Forward from Trauma, PTSD, Physical & Psychological Abuse & Illness — Dave Pelzer: healthunlocked.com/nras/pos...—-dave-pelzer

4️⃣0️⃣ Warm welcome, Hopeyj19!: healthunlocked.com/nras/pos...

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3️⃣9️⃣ From Wheelchair to Bikram Yoga (in 10 Months): healthunlocked.com/nras/pos...

3️⃣8️⃣ "A Kitchen Fairy Tale" by Iida, How She Healed Herself with a Plant-Based Diet (according to 'Tribe Magazine'): healthunlocked.com/nras/pos...

3️⃣7️⃣ Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

3️⃣6️⃣ EarthToLor: Psoriasis, RA, Depression, Weight Gain; Triple Therapy & More; Potatoes & Rice: healthunlocked.com/nras/pos...

3️⃣5️⃣ New Arthritis Podcast: "Can Arthritis Potentially End a Musical Career?": healthunlocked.com/nras/pos...

3️⃣4️⃣ Cardiologist, Dr. Monica Aggarwal, Reduces Her RA Inflammation via Plant-Based Nutrition, Diet, Lifestyle: healthunlocked.com/nras/pos...

3️⃣3️⃣ AndySwarbs Shares His RA Hero's Journey — Joe Campbell Style: healthunlocked.com/ra-warri...—-joe-campbell-style

3️⃣2️⃣ Olive Oil — not Popeye's 'Olive Oyl': healthunlocked.com/ra-warri...—-not-popeyes-olive-oyl

3️⃣1️⃣ Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet — turning_pain_n2_purpose: healthunlocked.com/nras/pos...—-turning_pain_n2_purpose

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2️⃣9️⃣ "Super Juice Me!" Documentary by Jason Vale: healthunlocked.com/nras/pos...

2️⃣8️⃣ "Fat, Sick & Nearly Dead" Documentary by Joe Cross: healthunlocked.com/ra-warri...

2️⃣7️⃣ Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...

2️⃣6️⃣ Jenn, Cole, & Joseph: JIA-ers Who Share Hope & Practical Experience: healthunlocked.com/jia/post...

2️⃣5️⃣ Empathetic 'Knee Photo' for Deejojo: healthunlocked.com/nras/pos...

2️⃣4️⃣ "Tis but a scratch . . .": healthunlocked.com/ra-warri...

2️⃣3️⃣ Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos...

2️⃣2️⃣ Roxana, 'The Sofia Vergara of Peru' (& now 'The States'), Improves Her Hashimoto's (Hypothyroid) & Rheumatoid Arthritis (RA): healthunlocked.com/thyroidu...

2️⃣1️⃣ Any 'Ankylosing Spondylitis'-ers (AS)?: healthunlocked.com/ra-warri...

2️⃣0️⃣ Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos...

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1️⃣9️⃣ Dr. Pam Popper on: Hypothyroidism; Iodine, Thyroid Function & Thyroid Disease: healthunlocked.com/thyroidu...

1️⃣8️⃣ Self-Management Event in Southampton on Feb. 14 & 15 from 'Arthritis Action': healthunlocked.com/nras/pos...

1️⃣7️⃣ X-Ray Yoga: healthunlocked.com/ra-warri...

1️⃣6️⃣ Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment: healthunlocked.com/nras/pos...

1️⃣5️⃣ Suicide -- Career & Otherwise: healthunlocked.com/nras/pos...

1️⃣4️⃣ Meditation, Mindfulness, Movement, Breathing, Relaxation, Stress Reduction . . .: healthunlocked.com/nras/pos...

1️⃣3️⃣ 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not): healthunlocked.com/ra-warri...

1️⃣2️⃣ "When You Know Better, You Do Better!": healthunlocked.com/fibromya...

1️⃣1️⃣ Dietary/ Lifestyle Considerations for Rheumatologists to 'Ruminate On': healthunlocked.com/nras/pos...

🔟 Spoon Theory, Spoonie, Spooning: healthunlocked.com/nras/pos...

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9️⃣ Douglas Lisle: 'The Pleasure Trap': healthunlocked.com/nras/pos...

8️⃣ Dean Ornish, Neal Barnard, T. Colin Campbell, Caldwell Esselstyn, John McDougall, Michael Klaper, Michael Greger: healthunlocked.com/nras/pos...

7️⃣ "Poofed" Info, References, Links, Your Replies, etc. (at ALL 'Kai-- Posts'): healthunlocked.com/nras/pos...

6️⃣ FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

5️⃣ Vogons, Vulcans, Vegans: healthunlocked.com/nras/pos...

4️⃣ Microbiome, Pooing, Toilet Humour: healthunlocked.com/nras/pos...

3️⃣ For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos...

2️⃣ FREE 3-Part 'Serology (RF, ACPA, Anti-CCP, ANAs, ANCA) in Rheumatology' Series from Dr. Robert Coughlan's 'Rheumatology Toolbox': healthunlocked.com/nras/pos...

1️⃣ "Live Your Life. . . ": healthunlocked.com/nras/pos...

Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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11 Replies
oldestnewest

Ahh . . . now here we go . . . bit of a warmer, more fitting, reception for you, Hopeyj19: "Here comes the sun":

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1 like
Reply

Hi m nice to see you here. I hope you get as much help from the others as I do.

Nice pics Kai x

5 likes
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If not mistaken, think this is pic from Hope's backyard, if not mistaken, allanah.

Hopefully, 'Hope' will pop by & clarify for us. 🙏

Hmm m m . . (scratching head) front yard maybe . . ? 🤔

(A lot of mowing either way . . . 😂 🙃 😳 )

Reply

welcome, was a bit rocky that reception. i got blocked and am not allowed to say anymore on your thread..... sorry

1 like
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Thank you kindly for your thoughtfulness, glenb. 🙏 😌

If Hope feels comfortable enough to find her way back here (after that 'shell-shocking' (🐚 😱) reception) I think she'll appreciate your friendly welcome, glenb. 👍

1 like
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Ailsa Bosworth, NRAS CEO, has noted in a post (ironically/ fortuitously(?) named in this context) 'Bit of an assault?! ': healthunlocked.com/nras/pos... that:

. . . This forum is not a place to promote any specific products, dietary or otherwise, but a safe space for people to talk about their experiences and gain mutual support. Diet can play a part in easing or exacerbating RA symptoms but what works or doesn't work for one, cannot be generalised over a whole RA population. . . .

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Hope was kindly sharing her personal experience (I believe) not promoting anything. My understanding is this forum is supposed to be:

" . . . a safe space for people to talk about their experiences and gain mutual support."

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4 likes
Reply

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If you ever return to this forum or happen to see this post, please be aware this (below) was my reply to you & you're welcome to PM (Private Message) me if you'd like: support.healthunlocked.com/... 😌 🙏

Thank you kindly for taking time to share your wife's experience with us. Please be assured, you & you're beloved are not alone. 😌 🙏 🍀 🌺 🌞

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Reply

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If you're interested in the content of 'onesizefitsall' post 'The end of RA...?', the text is now under post Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins ( healthunlocked.com/cure-art... toward bottom of page) at Cure Arthritis Community forum.

Kindly take it 'in context' of what EmmaS-NRAS Administrator has noted about its content at 'Updated NRAS Community Guidelines' ( healthunlocked.com/nras/pos... toward bottom of page):

. . . I've had a quick chat with the other admins and we're all in agreement that even if the post hadn't been removed (either by the user or HU) then we would have taken the same action so feel it is not appropriate on this occasion to re-post.

The problem is not with the general content of the post but that they were advising people on what to do and the information, such as NICE not being allowed to suggest diet to anyone, was untrue. It’s not that they couldn’t have put a post up about how diet helped their wife's psoriatic arthritis, they just can’t suggest that people are struggling ‘unnecessarily’ on medication and that this would cure their condition. It’s all in the phrasing! The reason we were looking to remove rather than edit is that we took issue with so much of it that in order to stay, it would really need to be rewritten by the author rather than heavily edited by us. . . .

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Kindly consider reading the text of 'onesizefitsall' FIRST (over at healthunlocked.com/cure-art... ) to place the following 3 Replies 'in context' & to (hopefully 🙏 ) make sense 🤔 of the sequence of Replies. 👍👍

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[Aside: That's a (significant?) problem when 'Replies' ✨disappear✨ . Anything that 'follows' the deleted entry 'makes no sense' 🙃, because it's 'ripped out of context'. 😯 😳 Perhaps "greying out"(?) the 'offending entry' would be a more 'reasonable(?)/ thoughtful(?)' workaround(?) rather than removing the entry in its entirety? 🤔 Probably an HU (HealthUnlocked) overall forum 'functionality' query for HU to possibly consider for all HU forums where deleting Replies & Posts is practiced? 🤔 ]

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"The end of RA..." (is nigh)⁉️ 😃

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😄

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Thank you kindly, PhD Chemist (biochemistry 👨‍🔬 & genetics background ) & loving husband 🤵, onesizefitsall, for sharing your experience. 🙏 😌

Please let your beloved Sharon 👰 know she joins with fellow NRAS WFPB-ers andyswarbs & Shaun94 in improving/ healing. 👍👍

Please keep sharing your beloved Sharon's experience, onesizefitsall. 🙏

There are people eager to hear/ learn about her experience & the realistic hope that's open to so many of us.

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Those of us with experience, live in hope that "truth will out" one day. ☺️

Unnecessary suffering will fade into past & anyone genuinely interested in pursuing a dietary/ lifestyle (d/l) approach will do their research 👩‍🏫 👨‍💻 & not be deterred from exploring 🕵️‍♀️ 🔎 d/l for themselves.

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After all, so many of us are improving our conditions via food & lifestyle changes. 🤗

We can't all be relegated to the pile of merely 'lucky few'. 😳 🤔

[Yes, with respect for individuals for whom d/l processes do not work readily, there is absolute understanding, compassion, no 'blame', etc. Yet, equally, for those who have had good fortune with d/l, I'd hope the same respect, understanding, compassion, lack of 'blame', etc. would be equally afforded. 😌 🙏 ]

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⚖️ ☮️ ✌️

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Wishing you & you're loved ones 👨‍👩‍👧‍👦 continued good health, onesizefitsall.

Please take good care. 🙏 🍀 🌺 🌞

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Oh . . . I respectfully disagree with you on 1 point.

. . . . You are a saint. 😇

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(Kindly 😌 , wear your halo 💫 with pride, dear man.)

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🙏 🍀 🌺 🌞

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Merely supplemental info supporting/ re-affirming your & Sharon's experience, underscoring the resources you've kindly noted:

Dr. Michael Greger . . . : healthunlocked.com/cure-art...

What the Health film: healthunlocked.com/cure-art...

. . .Whole Foods Plant-Based Diet/ Lifestyle . . . & 'Forks Over Knives': healthunlocked.com/nras/pos...

. . . John McDougall,. . . Michael Greger: healthunlocked.com/nras/pos...

Paddison Program . . . : healthunlocked.com/cure-art...

Why Does the Medical System Ignore the Importance of Diet? . . .: healthunlocked.com/cure-art...

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Aside: don't know if you & Sharon would ever consider sharing your story over at other forums as well? 🤔

Arthritis Action ( healthunlocked.com/arthriti... )

Cure Arthritis Community ( healthunlocked.com/cure-art... )

I think both of these forums would have participants interested in learning about Sharon's experience.

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And, personally, I'd love to hear 👂 (& see 👀 ) Sharon's story in her own words, from her own mouth 👄 on video 📹 .

Don't know if that 'type of thing' interests either of you? 🤔 🤔

[I follow PP podcast & see (& continue to learn from) many, many wonderful people around the world 🌍 🌏 🌎 doing extraordinarily well.]

Don't know if Sharon & you would ever consider doing such a podcast? 🤔

You could be the first husband wife 🤵👰 interview!! 😁

Merely idea 💡 🤔 , floated out into the universe 🌌 . . .

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🙏 🍀 🌺 🌞

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"The end of RA..." (is nigh)‼️ 🤔

(There is realistic hope. 🤗 )

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Reply

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If you're interested in the content of 'onesizefitsall' post 'The end of RA...?', the text is now under post Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins ( healthunlocked.com/cure-art... toward bottom of page) at Cure Arthritis Community forum.

Kindly take it 'in context' of what EmmaS-NRAS Administrator has noted about its content at 'Updated NRAS Community Guidelines' ( healthunlocked.com/nras/pos... toward bottom of page):

. . . I've had a quick chat with the other admins and we're all in agreement that even if the post hadn't been removed (either by the user or HU) then we would have taken the same action so feel it is not appropriate on this occasion to re-post.

The problem is not with the general content of the post but that they were advising people on what to do and the information, such as NICE not being allowed to suggest diet to anyone, was untrue. It’s not that they couldn’t have put a post up about how diet helped their wife's psoriatic arthritis, they just can’t suggest that people are struggling ‘unnecessarily’ on medication and that this would cure their condition. It’s all in the phrasing! The reason we were looking to remove rather than edit is that we took issue with so much of it that in order to stay, it would really need to be rewritten by the author rather than heavily edited by us. . . .

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Kindly consider reading the text of 'onesizefitsall' FIRST (over at healthunlocked.com/cure-art... ) to place the previous 3 Replies 'in context' & to (hopefully 🙏 ) make sense 🤔 of the sequence of Replies. 👍👍

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[Aside: That's a (significant?) problem when 'Replies' ✨disappear✨ . Anything that 'follows' the deleted entry 'makes no sense' 🙃, because it's 'ripped out of context'. 😯 😳 Perhaps "greying out"(?) the 'offending entry' would be a more 'reasonable(?)/ thoughtful(?)' workaround(?) rather than removing the entry in its entirety? 🤔 Probably an HU (HealthUnlocked) overall forum 'functionality' query for HU to possibly consider for all HU forums where deleting Replies & Posts is practiced? 🤔 ]

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Reply