From Wheelchair to Bikram Yoga (in 10 Months)

[Kai--]

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From Wheelchair to Bikram Yoga (in 10 Months)

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From andyswarbs blog, 'Food and Arthritis' ( foodandarthritis.blogspot.c... ):

"Video showing dietary effects on my Rheumatoid Arthritis

Here is a video of a talk I gave recently to the Oxford Vegan Festival to help others understand the dramatic effect food can have on rheumatoid arthritis. Some people who are cynical argue either I am a special case or some other excuse. I am in no way special. Also, apart from the fact I have so far had no surgery, my arthritis was as bad as it gets. Had I accepted doctor's advice I would be in a mobility scooter today and probably be having changes made to my home to make it arthritis-friendly. . . . "

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'Oxford Vegan Festival' presentation, Andy's Diet and Arthritis: m.youtube.com/watch?v=TxGWZ...(Not working as expected?)

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3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet — turning_pain_n2_purpose: healthunlocked.com/nras/pos...

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⏺ Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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[Kai--]

⌛️ At minute 6:00 , Andy shows us the diet he's tailored to his particular bodily needs: Andy's Arthritis-Free Diet Card 🍃 🍐 🍲 🍴

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⌛️ At minute 12:40, Andy shows us his progress performing Bikram Yoga poses: Daily Bikram Yoga Consolidates Success 😳 😱

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⌛️ At minute 15:30, Andy shows us his diet change from veganism to cannibalism: And on top of everthing else

⚠️ Kindly avert eyes 👀 if delicate stomach. ⚠️

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Yes, from hot wheels ♿️ to hot yoga 😅 in 10 months! 😳

(Pretty darn remarkable. 😯 😃 )

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[A continual inspiration to me & many many others! 😌

Many thanks, kind sir. 🙏 ☺️ 🍀 🌺 🌞 ]

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[Kai--]

If you're interested in more of Andy's journey, he:

📝 Blogs at: foodandarthritis.blogspot.c...

🐥 Tweets at: mobile.twitter.com/andyswarbs

🗣 Posts & replies at HU forums: healthunlocked.com/user/and...

🎙 Podcast at: paddisonprogram.com/andy-is...

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[Kai--]

If you're curious about the (just passed) Oxford Vegan Festival:

👤 Facebook: facebook.com/oxfordveganfes...

🕸 Website: oxfordveganfestival.com

[Hidden]

I didn't watch this video but I watched the podcast previously. I've actually done a lot of research on this programme. I think these threads praising the PP need to be ensure that they don't skip very important pieces of information. Andy was on methotrexate around the time that he started the PP. He's still on methotrexate and he hasn't sustained a long period of remission off any DMARD medication. Obviously, it would be amazing if he does and clearly, I wouldn't wish RA symptoms on my worst enemy. However, he is not the only individual who has given a testimonal without being able to evidence a long period of remission of all DMARDs. I would be interested in any case studies/stories with objective evidence (such as; normal CRP and ESR and/or no further joint erosions on imaging) who have maintained remission for, say, 2 years on a method like the PP or AIP.

[Kai-- in reply to Hidden]

[Part 1 of 4]

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Excellent points, crashdoll! 👍

Many thanks for beautifully raising. 🌺 🙏

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Think everyone would love all the boxes ticked for those of us who've implemented dietary/ lifestyle practices long term:

◻️ off all DMARDs

◻️ retained normal CRP/ ESR

◻️ showed no further joint erosion via imaging

◻️ maintained remission for 2+ years

◻️ etc. . . .

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Spot on! 👍

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Aside:

I'd tried to contact early forum participants (early on when I'd first arrived at the NRAS forum) who'd discussed their dietary/ lifestyle approaches years ago.

I'd not heard back from them — not 1.

(Nor have I seen any of them returning/ participating in this forum, in recent memory. 😔 )

I'm guessing those individuals could hold some wonderful insights 👀 , keys 🔑🗝 for us all. 🙏

Would love for any of them to re-visit, come forward, and update us on their status. 😃 🙏

Don't know how/ if there's any way to re-connect/ re-engage with those folks as they appear to be long gone.

They could well hold some extremely useful anecdotal info/ data (years long 🤗 ) & insights for all of us. 👍

[My sense/ guess is they've 'moved on' & feel no need to return to the forum; therefore, it seems unlikely they'll return with perhaps some of the answers we all seek. Our loss. 😔 ]

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Back on topic:

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Couldn't agree with you more. 👍 👍

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🤔 How do we all work together to figure out this information amongst ourselves❓

🤔 How do we 'fit the pieces of the puzzle' together❓

🤔 How do we 'connect the dots'❓

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Think 'truth will out' eventually. . . ⚖

Rising up to surface over time . . . ⌛️

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In our lifetime? 🤔

Who knows? ¯\_(ツ)_/¯

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How much time do we each have remaining ⌛️ ? 😳 🙃 🤔

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[Kai-- in reply to Hidden]

[Part 2 of 4]

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In meantime, those of us meeting with improvements (healing) continue on . . .

Perhaps, in time, our gaggle of accumulated (mere) anecdotes may encourage science/ medicine to conduct 'proper long-term (decades long) studies' to satisfy rigorous scientific & medical criteria/ scrutiny? 🤔 🙏

(We all hope for that.)

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In meantime, those of us experiencing improving QoL (Quality of Life), continue pursuing whatever (combination of) approaches that work well for us.

For those of us who've had a taste (even a small taste) of improved QoL — we (I) don't see us ever giving up our new practices to risk backsliding to the way we 'used to be'. 😳 😯 😱

We continue marching forward in hope (belief? faith?) that we will retain our improvements — not backslide.

And, with continued efforts, hope to make even further improvements. 🙏

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😃 Best case scenario: we continue incrementally improving.

😞 Worse case scenario: we backslide/ relapse.

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Either way, for those of us for whom our approaches (whatever they may be) have worked, we'll have gained QoL for however long it lasts. 🙏 🤗

(For that 'borrowed (QoL) time', we fall to our knees in gratitude. 🙏 )

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[Kai-- in reply to Hidden]

[Part 3 of 4]

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Shifting slightly off topic — but related/ broadening outward:

Can't help but contemplate a query (I think we've all asked ourselves):

If given only 2 choices, would we prefer a:

🤔 Shorter life expectancy 👩 with increasing QoL❓

🤔 Or, longer life expectancy 👵 with decreasing QoL❓

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Think once we've answered this for ourselves, it affects the choices/ amount of 'risk' we're willing to take.

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[Guessing (merely my opinion/ speculation) those of us who do both — 'gamble' with pursuing dietary/ lifestyle approaches (in conjunction with our meds as necessary) increase the probability of improving our QoL as well as our lifespan. 👍 We try to 'cover both bases' to improve our odds of improving/ healing.]

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Then again, this ties in with how effective (or ineffective) our trail of med history has been.

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Those of us faring well on the med front, we may feel no urgency to explore other approaches (in conjunction with our meds) as we are content with the 'risk rewards ratio' (& QoL) as it's working well for us. 👍 (Gawd bless & long may it last. 🙏 👍 )

On the other hand, for those of us not as fortunate (those of us who've run the med trail as far as it will take us & have now run out of options), the dietary/ lifestyle path may then be the only option remaining for us.

Thus we've 'less to lose' on the 'risk rewards ratio' (& QoL) front.

[Hope this makes sense. Realise it may sound frightfully convoluted. ♻️ 😳 🙃 It's crystal clear 💎 swimming around 🏊 in my brain, but may sound jumbled 🔣 in translation. (Once again, oh where oh where is our beloved, articulate 'Babel fish' 🐟 Ade_Bell, to translate my intended meaning into eloquently, concise phrases? 😁 )]

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[Kai-- in reply to Hidden]

[Part 4 of 4]

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Please pardon 🙏 lengthy response, crashdoll.

You've presented wonderful points, which we've all thought/ asked ourselves. 👍

Merely sharing ('thinking aloud' 🤔) with you my thought process. 🙇

Merely trying to be as clear as possible — avoiding/ minimising misinterpretation, misunderstanding — without boring or offending you (or anyone) to tears 😭 or feeling the need to gouge one's eyes 👁 👁 out from eye-bleeding tedium. 😂 🙏

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Aside:

Merely personal opinion. I think andyswarbs' presentation is informative 🤓 (as well as inspiring ✨ ✨ ) & you may find answers to some of your specific concerns within that 16-minute audio/ visual presentation. 🤔

I'd found Andy's audio explanation along with the visual slides, photos, & Bikram yoga video rounded out his podcast beautifully. 🌺 It added another layer of understanding of his process/ experience. 👍

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Much appreciation/ thanks to andyswarbs for kindly sharing his remarkable personal journey with the global 🌍 🌏 🌎 RA community. 🙏

Andy's selfless generosity benefits us all.

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🙏 🍀 🌺 🌞

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[Hidden]

Thank you for sharing your story. It's definitely worth a try to modify my diet in an effort to feel better. Thank you!

[Kai-- in reply to Hidden]

Couldn't agree with you more, ReneeFaye. 👍

Andyswarbs' beautifully shared story is much appreciated. 🙏

[Speaking solely for myself, any dietary/ lifestyle tweaks I'm able to make that helps me feel better has been well worth trying. (It makes an undeniable difference in my QoL (Quality of Life). Bear in mind this has merely been my experience.)]

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I understand dietary/ lifestyle tweaks don't work for everyone (unfortunately) — through no fault of the implementer's efforts, abilities, desire . . .

Yet, for those of us for whom it does work, it makes a difference & is a blessed relief. 🙏 🌺

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It appears the only way to find out if it will work for our unique, individual body is to try, with the understanding that there are no guarantees, no fault-finding, no blame — neither self-blame or otherwise, etc.. 🙏 😌

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If you're interested in more of Andy's story, ReneeFaye, kindly consider viewing:

👱 Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

👱 AndySwarbs Shares His RA Hero's Journey — Joe Campbell Style: healthunlocked.com/ra-warri...

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You may glean more tips & ideas directly from Andy himself. 👍

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[Kai--]

Thank you kindly, 19northside2. 🙏 😌

Hopefully Andy's story will reach ears 👂👂 of the interested & will indeed provide 'food for thought 🍜 🤔 '.

👍 😄 🙏

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Don't know if you got a chance to hear Andy's podcast, Our Beloved AndySwarbs, a Hero's Journey ( healthunlocked.com/nras/pos... )? 🤔

His kind spirit & lovely temperament shines though his life-long ordeal with disease.

Andy's been an outstanding 'living' example (to many of us) on how to 'move forward' with gentleness, dignity — without bitterness/ rancour. 👍 🤗

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Hope you, your son, & beloveds are doing well, dear lady. 🙏 ☺️

Hope spirits 👻 👻 are up & progress is moving forward ➡️.

🙏 🍀 🌺 🌞

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[Kai-- in reply to Kai--]

Andy vs Rheumatoid Arthritis and Andy is winning:

m.youtube.com/watch?v=KpJjJ...(Not working as expected?)

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[Kai--]

If you've heard andyswarbs & Danny's experiences (from their podcasts*), this update may interest you:

• 'Talk may give hope to people with arthritis' (from 'IOM (Isle of Man Courier) Today'): iomtoday.co.im/article.cfm?...

• Without Wings — The Manx Autoimmune Arthritis Trust: withoutwings.weebly.com/ (scroll down page to see recent photos 📷 of Andy & Danny).

• Without Wings Facebook: facebook.com/withoutwingsio...

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🤔 Danny's improvement/ healing (recovery?) has been going strong for ~2+ years?

🤔 Andy's improvement/ healing (recovery?) has been progressing for ~15+ months?

Pretty darn remarkable! 😯 😳 🤗

May we, too, follow suit! 😌 🙏 ☺️

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🙏 🍀 🌺 🌞

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[Kai-- in reply to Kai--]

* For reference about Andy:

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• Andy's podcast & transcript: Andy Is Beating RA: paddisonprogram.com/andy-is...

m.youtube.com/watch?v=KpJjJ...(Not working as expected?)

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• Andy's 'Diet & Arthritis' Presentation: m.youtube.com/watch?v=TxGWZ...(Not working as expected?)

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• Andy's 'Food & Arthritis' Blog: foodandarthritis.blogspot.com/

• Andy's Facebook: facebook.com/andyswarbs

• andyswarbs ' HU postings: healthunlocked.com/user/and...

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[Kai-- in reply to Kai--]

* For reference about Danny:

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Danny's podcasts & transcripts:

• Crushing RA with Danny (Part 1): paddisonprogram.com/crushin...

m.youtube.com/watch?v=SMj-B...(Not working as expected?)

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• Crushing RA with Danny (Part 2): paddisonprogram.com/crushin...

m.youtube.com/watch?v=Qp5cO...(Not working as expected?)

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[Kai-- in reply to Kai--]

If interested in lifestyle/ dietary approaches tailored to RA/ Autoimmune healing & pain relief, additional thoughts for consideration are at "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

If you scroll downward on page, you'll see: Without Wings (The Manx Autoimmune Arthritis Trust) — Exclusive Interview: Clint Paddison (7/17/2017) (withoutwings.weebly.com/new... ). Text added (in 4 segments) along with reference links for easy referral. 🙏 🍀 🌺 🌞

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[Kai--]

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andyswarbs update:

• My story of recovery posted Oxford yoga studio blog: healthunlocked.com/cure-art...

• YogaVenue Oxford: Healing through the Hot 26: yogavenue.co.uk/blog/2018/0...

"I have had arthritis for over 40 years, mostly psoriasis, but in May 2015 it blew up into Rheumatoid Arthritis. By that November I could hardly walk and had to give up employment. In January 2016 I was retired on grounds of ill health. I faced a future bound to my home except going out in a wheelchair and having my home modified - this was truly my life coming to an end. . . .” (Read rest of story, see photos (of our very own yogi 🧘‍♂️ ), & if you’d like, leave a lovely comment. ☺️ )

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[Also posted at: Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment: healthunlocked.com/nras/pos... , Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos... ]

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[Kai-- in reply to Kai--]

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All I can say, Andy, is "The Dude Abides".

"The Dude Abides" ( vimeo.com/41099804 ).

(Highest compliment. 😌 🙏 )

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Well done, ‘dude’!! 👏 👏 🎉

Well done! 👍👍

You look terrific & bet you feel even better. 😊 ☺️ 😌

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Thank you kindly for keeping us posted. 🙏 😌

It’s so good to see you continuing to do well. 🤗

Please continue to keep us updated. Wishing you the very best, dear man. ☺️ 🙏 🍀 🌺 🌞

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