Experiences with

Leflunomide

Does anyone take Leflunomide with Etanercept? If so, what is your dosage of Leflunomide ?

Does anyone of you take Leflunomide and Adalimumab and had covid???? And did they stop taking Leflunomide during covid???? Thank you

hello my RA doc prescribed me LEFLUNOMIDE to be take with hydroxychloroquine. Anyone else take this combination? I have been on hydroxychloroquine off and on for a couple of years. My hands and feet are getting stiff and sore again

hello all I was put on leflunomide at the beginning of November. A week after I started I had a bad flare. But after that my symptoms improved some. It was increased last Friday. Since then I have also been struggling with a flare. But I have also today got the most awful low mood.

We are stopping the leflunomide. In perimenopause I stopped the leflunomide two years back for 10 weeks and my enzymes returned to normal. But the RA became serious so we restarted the leflunomide. I was okay for a good year plus but more weight gain and can't lose it.

Thanks everyone who responded to my post Much appreciated, - I’ve messaged the RA team and I’ll await a response. It’s the heat and pains in the hands I’m really struggling with but fingers crossed 🤞 Have a good day everyone 😊

Has anyone here been on Leflunomide but stopped? I'm particularly interested to know for those of you who it caused hair thinning, did it grow back again after stopping

Morning all , I have been using the Leflunomide for 3weeks now 10mg but also on 30 mg prednisone every day first week 25 now 20.

I've been taking Leflunomide for nearly 8 weeks, so far yet to feel any benefit at all. However I wake up most mornings with a headache. Perhaps 5 times of seven, sometimes the headache wakes me around 4 or 5 am. Also my skin, which tends to be dry has been extremely dry and itchy too.

Hello I have just had a Rheumy appointment and she is pushing for me to go onto METX or LUFL as a steroid sparer to aid my steroid reduction Started 40 mg Pred August 2024 very quick taper to 20mg (2 weeks at 40mg then tapered by 5mg a week to 20mg) From my previous post ..... s Started to get stabbing

It was decided a couple of weeks ago that due to ongoing stomach and bowel problems and weight loss I should pause taking Leflunomide. Because I'm still having GI issues I'm now to have a 'wash out' (Colestramine). It's a powder you mix with water or similar.

Leflunomide affected my liver results so much I was taken off this.I have been unable to be pain free for some time at a lower level of prednisolone, but was told to continue only taking 6mg of prednisolone daily by the consultant.

Consultant has suggested trying leflunomide. I understand this is a once a day tablet, taken at the same time each day. Is there a good time to take it to minimise the side effects?

I’ve had no issues with methotrexate but couldn’t cope with sulfasalazine or leflunomide.

In mid Sept, switched from MTX to Leflunomide 15mg plus 1.5 grams Sulfasalazine, as MTX was making me lethargic, My CPR was initially high at 70 but fell to 20 by late Sept, likely due to prednisone.

Hello all, I have RA and am taking 40 mg amjevita biweekly and 20mg leflunomide every day with 2mg folic acid. I’ve been on leflunomide for about 3 months after stopping methotrexate due to chronic nausea.

I am about to start taking leflunomide. If I decide 7.30 is generally a good time for me to take it, is it ok if occasionally I take at 8.30 or 6.30 if circumstances prevent me from taking at 7.30?

Edit: hospital has now apply funding for me to get JAK inhibitor ( as biologics don't seem to work anymore for me) Might take a few weeks/months before I start new treatment though 🤞🤞hopefully JAK will work for me Hello,I am on tociluzimab and leflunomide but it's not working anymore .( also tried

I started 20mg Leflunomide and upped Pred back to 10mg just over a month ago having been diagnosed with LVV after 18 months on Pred for PMR. I am having GI problems particularly at night with abdominal discomfort feeling nauseous bit of a cough dry throat. Feeling quite unwell this am.

I am back to 10mg Pred and 10mg Leflunomide and can't see the end of the tunnel! Awaiting electrocardiogram and Ct scan. Can others provide helpful information regarding their experiences.