Experiences with

Autoimmune diseases

Autoimmune diseases - bit of a slippery slope - a paediatrician friend once said when I shared my 4th autoimmune diagnosis. Now I fear I’ve got another to add to the list! Does anyone also have Systemic Scleroderma?

This is a good story and in particular lessons learned by an MD with autoimmune diseases. https://blogs.webmd.com/psoriatic-arthritis/20230323/care-coordination-the-patients-dilemma-in-an-age-of-specialization Thought I’d share with the best support group ever!

[/i] The new center will enable big data analytics of medical information and biological samples from patients with autoimmune diseases Tel Aviv University (TAU) announced on Sunday that it has established Israel's first multidisciplinary center for the study of autoimmune diseases.

https://www.newscientist.com/article/2099313-autoimmune-diseases-may-be-side-effect-of-a-strong-immune-system/

We aimed to investigate the incidence and prevalence of 19 of the most common autoimmune diseases in the UK, assess trends over time, and by sex, age, socioeconomic status, season, and region, and we examine rates of co-occurrence among autoimmune diseases.

[i]Genetic traits of Black Death survivors linked to diseases today[/i] [i]Scientists find people with ERAP2 variant survived 14th-century plague at much higher rates[/i] https://www.theguardian.com/society/2022/oct/19/gene-black-death-survivors-linked-autoimmune-diseases

A failure of tingible body macrophages (TBMs), a type of immune cell tasked with cleaning up its environment, might play a role in the development of autoimmune diseases like lupus, according to a recent study.

https://starctmag.com/health/novel-discovery-may-hold-key-to-reversing-autoimmune-diseases-23052-2022/

[/i] [i]It is frequently associated with other autoimmune diseases such as type-I diabetes, thyroiditis, vitiligo, and pernicious anemia.

I’m amazed how stoic he managed to be as, apart from his known back pain, it seems to confirm Dr J Chandy’s paragraph on JFK in his book, “Vitamin B12 Deficiency in Clinical Practice”; also that autoimmune diseases often run in families, as well as being very common in those with Northern European ancestry

Which can leave us almost forgetting there are medicines which are used in some autoimmune diseases. This trial should remind us. And make us ask if some of the psychological/psychiatric/mental health issues which some suffer could have an autoimmune cause.

Brooke Goldner's protocol for healing autoimmune diseases? If yes, did it help with any symptoms or did it bring your thyroid antibodies down?

I know some people here are super knowledgeable, and I just wondered what their thoughts are on autoimmune diseases and the contraceptive pill. I have always avoided the pill, as didn’t feel it was right to meddle with my hormones.

But I think I’m still going to look for a clued up Rheumatology dept, that’s got more idea about autoimmune diseases. I have dry eyes and basement cell dystrophy and as hydroxychloroquine can affect your eyes I don’t that it’s really good for me to have at all.

Called VENT-03, the investigational treatment will target cGAS, a protein whose activation has been implicated in a range of autoimmune diseases, including systemic lupus erythematosus (SLE). Last year, Ventus received a Lupus Research Program Idea Award from the U.S.

I know we are more susceptible to additional autoimmune diseases if we have one but does this happen often?? I’m hoping not. I’m down to 1.5 mg after almost 3 years.

In the validation of this assay, 24 individuals with these autoimmune endocrine diseases were tested and all were IFBA negative. However, 5 of 15 of patients with rheumatoid arthritis were IFBA positive during the validation of this assay.

Yesterday it was reported that five young patients, who had suffered with systemic lupus erythematosus, are in remission after CAR-T-cell therapy, raising hopes that similar success might be achieved in other autoimmune diseases such as rheumatoid arthritis and multiple sclerosis https://www.theguardian.com

https://www.pvreporter.com/is-there-a-connection-between-mpns-and-autoimmune-diseases/ Best, David

I also have 2 other autoimmune diseases, Primary billary cholangitis and autoimmune inflammatory arthritis.