National Rheumatoid Arthritis Society

National Rheumatoid Arthritis Society (NRAS)

  • Get answers and support from other RA patients
  • Use our tracker to monitor your condition
  • Connect with NRAS, the UK-based charity supporting people with RA

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Latest activity

  • a few seconds ago
    responded to Fed up!
    Allanah thought I would wait until get over tooth infection as need tooth out and know rheumy won't give me anymore steroids etc with an open wound in mouth, just hope get tooth out sooner then later x
  • 15 minutes ago
    no I am only on 5 a day at the moment then start 4 next week then 3 the week after and so on
  • 17 minutes ago
    I'm in Wales, I have been told that the prescription has gone in and am now just waiting for a phone call to say when they are going to deliver it
  • 27 minutes ago
    Pred for me too. How much do you take? I'm on 10 a day, been told that I've got to stay on this until I start the embrel and then taper off very slowly. Its not doing much for me at the moment
  • 29 minutes ago
    Oh dear, where are you? Im in Scotland and was told 5 working days on receipt of the form. Apparently BUPA delivers here, who 'does' you
  • 32 minutes ago
    OH Cathy I am also still waiting, they said 2 weeks, that was 2 weeks ago,!! I think we went at the same time for Enbrel, so lets hope it wont be long now, ( fingers crossed !) I have also been put back on Pred while I wait ! It's no fun is it. xx
  • 37 minutes ago
    responded to Fed up!
    That's so awful. Have you rang the Rheumy line, I think they really need to see you too xx
  • an hour ago
    Ah thanks Bazzy, how're you now? Yes I might try writing that's a good idea as sometime sew can be more concise when writing as I can waffle a bit haha!! X
  • an hour ago
    responded to Fed up!
    Hi crazyjo, sorry to hear your feeling rubbish again such an unpredictable illness this. Hope you get your mouth sorted I have had a cough for about two and a half weeks I just cant shake it off think I may need antibiotics have already missed out...
  • an hour ago
    Hi Rosie_rabbit, Have you ever thought about writing her a letter? you explained the current situation in very well written words so may be just may be this would be the way to get through to your friend ... just an idea. Glad also to hear your ...
  • an hour ago
    responded to CRAMP!
    I agree with you, the warmth does help but it's a double edged sword because it then makes my shins itch unmercifully. It's a really fine balance to get it right
  • an hour ago
  • an hour ago
    responded to CRAMP!
    Yes I suffer from severe cramps every night. I must stress I do not suffer from RA or related problems as far as I am aware, I say that because I do get all sorts of back pain but I have just dismissed it as age related. The cramps are awful, as ...
  • an hour ago
  • 2 hours ago
    Thank you and yes a clue of people have said that to me too. I'm finding it's having the opposite effect actually as I'm just so relieved to finally be feeling better that it's making me feel really good ..my husbands very very pleased with my ...
  • 2 hours ago
    responded to CRAMP!
    I used to get the most severe leg cramps from early evening onwards. What with those and the restless legs even the amitriptyline didn't work. I was desperate because I was only getting short bursts of sleep between the cramp, the restless legs ...
  • 2 hours ago
  • 2 hours ago
    responded to How long?
  • 2 hours ago
    Pain increasing again and so fed up with having no control on this disease. To top it off think got infection in my mouth as whole side of my face killing me, off to dentist in a bit, prob more tablets.. Bad enough get over 20 items a month on my ...
  • 3 hours ago

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