JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old
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Katy has had JIA since infancy (diagnosed at 10 months old πΆ ) & now shares her experience 26 years later π±ββοΈ : m.youtube.com/watch?v=s3GAU...
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I'd found Katy's experience deeply moving π & inspiring β¨.
Perhaps it may move & inspire you (& your youngster) too? π π
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Written by
Kai--
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Supplementally, a few more JIA experiences are shared at: Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...
Thank you for sharing this video of Katy, detailing her story. Its great to see a young woman with a debilitating condition who has made some quite significant changes to her lifestyle and they have worked for her.
I do have a duty of care however, to advise any parent or young person viewing the video and reading your comments that it's very important to remember that everyone is different. Our genes our unique and so are uniquely affected by what we put into our bodies. The differences may be tiny but our genes and cells, among other biological systems are responsible for what our bodies do and how they react (in very basic terms), and so for any parent or young person considering a significant change in diet or moving away from the treatment plan, please really consider and consult with your own health care professional or your child's before undertaking these lifestyle changes.
(Apologies π if anyone was left with the mistaken impression that our medical advisors or our current treatment plans are left wayside. Nothing is further from the truth.)
Again, thank you very much for highlighting these critical points, Anne-NRAS. π π
Much, much appreciated. π π πΊ π
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and I think you have highlighted my point Kai, that parents should consult with their child's OWN paediatric rheumatologist before embarking on an alternative treatment plan and whilst I am writing, any parent can call me or our helpline for evidence based information about common treatment plans and alternative approaches. anne@nras.org.uk or 01628 823524
We needn't bend down to look under the tree ππ
. . . or wait until Christmas Day βοΈ 2οΈβ£5οΈβ£ π¨ to open,
. . . merely glance downward π to see π π :
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π A Day in a Life- Living with Rheumatoid Arthritis (1st Symptoms of JRA at 10 Months Old: Chronic Pain, Uveitis, & Glaucoma; Graduation from Shriner's Hospital for Children 1992β2012):
My simple laymanβs understanding is "genes load the gun, lifestyle/ environment pull the trigger".
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bernese1225, there are multiple tests ( healthunlocked.com/nras/pos... ) interpreted by astute, skilled rheumatologist that may be able to reveal if autoimmune diseases are beginning to reveal themselves (emerge) in your daughter. (Flickers of autoimmune flame can begin to show signs of βactivityβ years before disease starts manifesting outwardly via pain & other symptoms.)
Thereβs much you daughter can do to side step/ avoid "pulling the trigger", if her genetic gun is already pre-loaded with RA, diabetes, hypo/ hyper-thyroid, or whatever cluster of autoimmune diseases her genes may be holding.
Wishing you each, the very best for yourselves & your beloved girls. πΆ π§ π§ π±ββοΈ π§
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