JIA-er Katy Shares Her Progress: From 10 Month... - JIA-at-NRAS

JIA-at-NRAS

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JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old

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Kai--
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JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old

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Katy has had JIA since infancy (diagnosed at 10 months old πŸ‘Ά ) & now shares her experience 26 years later πŸ‘±β€β™€οΈ : m.youtube.com/watch?v=s3GAU...

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I'd found Katy's experience deeply moving 😌 & inspiring ✨.

Perhaps it may move & inspire you (& your youngster) too? 😌 πŸ™

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πŸ™ πŸ€ 🌺 🌞

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Kai-- profile image
Kai--

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Supplementally, a few more JIA experiences are shared at: Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...

Cole's mum, Christine πŸ‘©πŸ» , may have day-to-day practical experience of particular interest to parents, guardians, caretakers . . . of young JIA-ers πŸ‘Ά πŸ‘¦ πŸ‘§ : facebook.com/Reversejia-125... , naturalcurejia.org/ , instagram.com/reversejia/

Very best wishes to you & your youngster πŸ‘©β€πŸ‘¦πŸ‘¨β€πŸ‘¦ .

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πŸ™ πŸ€ 🌺 🌞

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Anne-NRAS profile image
Anne-NRAS

Thank you for sharing this video of Katy, detailing her story. Its great to see a young woman with a debilitating condition who has made some quite significant changes to her lifestyle and they have worked for her.

I do have a duty of care however, to advise any parent or young person viewing the video and reading your comments that it's very important to remember that everyone is different. Our genes our unique and so are uniquely affected by what we put into our bodies. The differences may be tiny but our genes and cells, among other biological systems are responsible for what our bodies do and how they react (in very basic terms), and so for any parent or young person considering a significant change in diet or moving away from the treatment plan, please really consider and consult with your own health care professional or your child's before undertaking these lifestyle changes.

Kai-- profile image
Kai-- in reply to Anne-NRAS

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Fully agreed, Anne-NRAS! πŸ‘πŸ‘

Thank you kindly for underscoring these significant points. πŸ™ 😌

Dietary/ lifestyle changes are always done hand-in-hand 🀝 with our medical team πŸ‘©β€βš•οΈπŸ‘¨β€βš•οΈ, under the watchful eye πŸ‘ β€” continual monitoring πŸ“ˆπŸ“‰ β€” of our rheumatologist πŸ‘©β€βš•οΈ . βœ”οΈ

(Apologies πŸ™ if anyone was left with the mistaken impression that our medical advisors or our current treatment plans are left wayside. Nothing is further from the truth.)

We work fully, cooperatively with our physicians πŸ‘¨β€βš•οΈ πŸ‘©β€βš•οΈ & continue with our medications πŸ’‰ πŸ’Š / treatment plans. Any dietary/ lifestyle techniques considered for implementation are thoroughly discussed, researched, & worked through our medical team. πŸ‘πŸ‘

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Again, thank you very much for highlighting these critical points, Anne-NRAS. πŸ™ 😌

Much, much appreciated. πŸ™ πŸ€ 🌺 🌞

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Anne-NRAS profile image
Anne-NRAS

and I think you have highlighted my point Kai, that parents should consult with their child's OWN paediatric rheumatologist before embarking on an alternative treatment plan and whilst I am writing, any parent can call me or our helpline for evidence based information about common treatment plans and alternative approaches. anne@nras.org.uk or 01628 823524

Kai-- profile image
Kai--

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Mr. & Mrs. Claus πŸŽ… 🀢 dropped off gifts πŸ”– of good cheer β˜ƒοΈ from beloved Katy πŸ‘©πŸ» ( facebook.com/khoogendam?fre... ).

(Presents for not only the young πŸ‘Ά πŸ‘¦ πŸ‘§ , but for all ages. πŸ‘© πŸ‘¨ πŸ‘±β€β™€οΈ πŸ‘± πŸ‘΅ πŸ‘΄ )

We needn't bend down to look under the tree πŸŽ„πŸŒŸ

. . . or wait until Christmas Day ❄️ 2️⃣5️⃣ 🌨 to open,

. . . merely glance downward 😌 to see πŸ‘ πŸ‘ :

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🎁 A Day in a Life- Living with Rheumatoid Arthritis (1st Symptoms of JRA at 10 Months Old: Chronic Pain, Uveitis, & Glaucoma; Graduation from Shriner's Hospital for Children 1992–2012):

m.youtube.com/watch?v=h2uVi...

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🎁 What Katy can do now β€” October 21, 2017: m.youtube.com/watch?v=8zmPw...

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Joyful Holidays πŸ€— πŸŽ‰ to you & your beloveds πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦πŸ‘¨β€πŸ‘©β€πŸ‘¦β€πŸ‘¦πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘§ .

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πŸŽ„ πŸ”– 🎁 πŸŽ… ❄️ β˜ƒοΈ 🌨

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Kai-- profile image
Kai--

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"Genes load the gun, lifestyle/ environment pull the trigger"

”Your genes are NOT your fate"

(Additional thoughts for RA-ers/ Autoimmuners of all ages.)

[Originally posted at: β€˜Test to find out if my daughter may be pre disposed to RA?’ ( healthunlocked.com/nras/pos... )]

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5minutespeace & bpeal1 might you kindly consider Katy ( healthunlocked.com/jia/post... ), Cole, Jenn, & Joseph’s ( healthunlocked.com/nras/pos... ) experience? πŸ€”

Might you consider connecting with Cole’s mum, Christine πŸ‘©β€πŸ‘¦ ( naturalcurejia.org/ )? πŸ€”

My simple layman’s understanding is "genes load the gun, lifestyle/ environment pull the trigger".

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bernese1225, there are multiple tests ( healthunlocked.com/nras/pos... ) interpreted by astute, skilled rheumatologist that may be able to reveal if autoimmune diseases are beginning to reveal themselves (emerge) in your daughter. (Flickers of autoimmune flame can begin to show signs of β€˜activity’ years before disease starts manifesting outwardly via pain & other symptoms.)

Kindly, please πŸ™ understand, ”your genes are NOT your fate" ( ted.com/talks/dean_ornish_s... ).

(Genes/ DNA are not destiny. 😌 )

There’s much you daughter can do to side step/ avoid "pulling the trigger", if her genetic gun is already pre-loaded with RA, diabetes, hypo/ hyper-thyroid, or whatever cluster of autoimmune diseases her genes may be holding.

Wishing you each, the very best for yourselves & your beloved girls. πŸ‘Ά πŸ‘§ πŸ§’ πŸ‘±β€β™€οΈ πŸ§‘

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😌 πŸ™ πŸ€ 🌺 🌞

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