Is this just happening to me ?

[Yvette49]

Hi everyone, sorry if this is

A little gory, but wondering if anyone else has been experiencing the same. On 29th sept while I was out I had dioreah pour from me, no warning, and not feeling unwell at all. Got home cleaned up next day feeling unwell, can’t eat, woozy/giddy slept all day, the thing day feel bit better, get up eat a little, then as day goes on, feel rough, go to bed slept for 3 days on and off. This went on till 9th Oct. Finally it departs,

29th Oct, feeling not 100% stayed in bed for a while longer but got worse as day went on, lethargic headachy, can’t eat, very giddy walking. Developed a cough, ribs hurt from coughing, no cold. 30th got up to settee, had sandwich and tea, starting to feel better, today is 31st I am yet to get up, but head feels bit better.

Is this all just me and my PV? ( I am on interferon ) Maybe a virus? Or like a neighbour is saying, “ it’s the vaccine “

Thanks for reading 💞

[Paul_1971]

Sounds more like something like gastroenteritis which is very debilitating...

Can take weeks to recover, hope you feel better soon

[Cja1956]

Sounds like a really bad stomach virus and dehydration. You need to replace your fluids that you lost. Not everything can be attributed to our MPNs. Hope you feel better soon.

[Otterfield]

I suggest that you contact either your GP or your haematologist and have a stool sample taken as you may need treatment. I had a campylobacter infection a few months ago so I can empathize.

[Yvette49]

Thanks everyone for your reply, I have Drs appt on 2nd 😁

[Wyebird]

Could be anything- I’m on peg and I have had a few bouts of mild diarrhoea. I also sometimes feel light heated. I had a really bad bout of feeling unwell after one injection. Did you do a lateral flow test whilst you were ill.?

[Yvette49 in reply to Wyebird]

Hi Wyebird, thanks for reply, yes did test it was negative, think it must be a bug, but had it twice since end of sept, “and” I had it last Xmas, went for Covid test on Xmas day, negative. Just seems to keep reoccurring looking forward to seeing the Dr, hope he puts me right.

[Wyebird in reply to Yvette49]

All I can say is that for some unknown reason I was really rough for a month. I do hope you get answers and it gets cleared up soon xx

[nightshadow in reply to Yvette49]

It could still be a virus or bacteria that your immune system is not able to completely overcome so it bounces back. Glad you've an appointment so quickly.

[Yvette49 in reply to nightshadow]

MAybe….it took three weeks to get this appointment.

[MCW22]

In May 2 weeks after my2nd astra zeneca jab I suddenly felt unwell, a couple of hours later I started vomiting which went on for hours. I assumed it was a diverticulitis flare so an ambulance was called. Whilst the paramedics were here I had a total loss of bowel control along with bleeding. They wouldn't take me to hospital, saying that I probably had a bug.Dr's phone appointment, given antibiotics which didn't help, spent a week in bed writhing in agony, stool sample sent to doc which of course was full of blood led to a colonoscopy. Diagnosis ischaemic colitis, which I now know is caused by a blood clot cutting off the blood supply to the bowel, hence loss of control and is a medical emergency.

I wonder if it was a blood clot as a result of the vaccine or a blood clot caused by my high white cell count (currently 31)

Carol

[Joetcalr]

I've had this since being on peg, thankfully I was at home, poor you, it must have been a nightmare. If you find anything out, do let us know. Best regards Jo

[Yvette49 in reply to Joetcalr]

It really was….I was in John Lewis with my daughter, I thought I had a haemorrhage it was so bad ( this was the sept bout) last Xmas I was home :-). Frightened to go out now Will let you know 👍

[Yvette49]

Wow, that was a scary time for you, has it happened again ? When I was bad in sep, I could get Drs appt. till this one tomorrow, next time I will ring 111 I’m still coughing, can’t seem to shit it. Roll on tomorrow.

[MCW22 in reply to Yvette49]

Oh you've got to laugh at what comes up with auto correct 🤭 we know what you meant to say. Tenna pants are very good and will give you the confidence to go out and about again.

Carol

[Yvette49 in reply to MCW22]

Oops 🤣🤣🤣 not sure Tenna pants would have helped 🙁

[Tico in reply to MCW22]

I'm like you Carol, laughed out loud when I read it considering the nature of the subject! Nothing like the old auto to give us a laugh! Tina.x🤣🤣🤣

[Pct01]

Hi. Same thing happened to me only thank goodness I was at home. Diarrhea went on for 48hrs with severe fatigue. Finally after few days was 👌. I had just gotten the booster vaccine a few days before. So who knows cause.Hope you are doing better now.

[Meatloaf9]

Sounds like some kind of a bug to me. I have several friends who tested positive for Covid and their only symptom was diarrhea at the start. It then progressed to respiratory symptoms and kept coming and going in a couple of them. Have you had a covid test? Good luck going forward, hope you feel better soon.

[WithMPN2020]

I was definitely wiped out after my 2nd vaccine shot. It hit me the next day and I hardly left bed. With a few days I felt better.

[Yvette49]

Update, been to Drs, it’s either a bug or virus, she is getting me to do to stool tests, one for the bug, and one to rule out bowel cancer 🤞 also she felt I was having A fribillation, so have had a heart scan this afternoon.