Pregnant with PV

[DariBee]

Hi

I just found out I am pregnant I am 37 so not youngest for my first pregnancy. It was planned so I am happy but also a bit worried what will be the next steps to manage my pregnancy as best I can. I am on Aspirin and Pegasys right now.

I was trying to google the management of PV pregnancies but haven't found much about it. I do have a hematologist but I wouldn't say she is an MPN specialist (not sure if we have any in Slovakia) and now I am worried if she knows what is the goal of treatment during pregnancy and what are the safe levels of blood counts and other things which should be monitored. I would like to know more myself so I can also keep an eye on it.

My questions are: Does anybody from here have experience with PV pregnancy? Or do you know what are the recommended ranges of blood counts during pregnancy? How often should I be monitored now? What should be monitored? Thanks for any reactions

[Mazcd Partner MPNVoice]

Hello DariBee, congratulations on your pregnancy, how exciting for you.

We have information on our website about MPNs in pregnancy which hopefully will help you

mpnvoice.org.uk/living-with...

Best wishes, Maz

[DariBee in reply to Mazcd]

Hi Maz, thank very much you for the link I have already found this one. Most of the information I have now is from this site. It is useful.

[hunter5582]

Congratulations on your good news. Not sure if your healthcare system will pay for a consult outside of Slovakia, but if so there may be some options not too far away. .

If you are able to travel next door there is a MPN Specialist in Brno, Czech Republic.

mpnforumlist.wordpress.com/...

You can find other MPN Specialists listed here.

mpnforum.com/list-hem./

Do please let us know how things go.

[DariBee in reply to hunter5582]

Thank you hunter That's such a good idea, Brno is not far. I'll try to contact doctor Doubek. Thanks! I'll keep you posted.

[hunter5582]

Hope that works. I have family in Brno and have been there four times. It is a lovely city and great fun to visit. I never made it over to Slovakia, but it is on my to-do list.

Všetko najlepšie pre teba. Hope Google translate got that right!

[DariBee in reply to hunter5582]

Ooh, you've been in Brno 🤗 Yes it's a nice city with friendly people. Next time you should gtake a train to Slovakia, it's just one hour away :)... I am going to have an appointment with my gynecologist and hematologist next week. I'll see what plan they'll propose and then I'll contact doctor Doubek from Brno for a consultation.

[hunter5582 in reply to DariBee]

I will put a trip to Slovakia on my agenda the next time I am over there. Hope you are able to get an appointment with the MPN Specialist without any trouble.