Pregnant with PV: Hi I just found out I am... - MPN Voice

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Pregnant with PV

DariBee profile image
7 Replies

Hi

I just found out I am pregnant :) I am 37 so not youngest for my first pregnancy. It was planned so I am happy but also a bit worried what will be the next steps to manage my pregnancy as best I can. I am on Aspirin and Pegasys right now.

I was trying to google the management of PV pregnancies but haven't found much about it. I do have a hematologist but I wouldn't say she is an MPN specialist (not sure if we have any in Slovakia) and now I am worried if she knows what is the goal of treatment during pregnancy and what are the safe levels of blood counts and other things which should be monitored. I would like to know more myself so I can also keep an eye on it.

My questions are: Does anybody from here have experience with PV pregnancy? Or do you know what are the recommended ranges of blood counts during pregnancy? How often should I be monitored now? What should be monitored? Thanks for any reactions :)

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DariBee
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7 Replies
Mazcd profile image
MazcdPartnerMPNVoice

Hello DariBee, congratulations on your pregnancy, how exciting for you.

We have information on our website about MPNs in pregnancy which hopefully will help you

mpnvoice.org.uk/living-with...

Best wishes, Maz

DariBee profile image
DariBee in reply to Mazcd

Hi Maz, thank very much you for the link :) I have already found this one. Most of the information I have now is from this site. It is useful.

hunter5582 profile image
hunter5582

Congratulations on your good news. Not sure if your healthcare system will pay for a consult outside of Slovakia, but if so there may be some options not too far away. .

If you are able to travel next door there is a MPN Specialist in Brno, Czech Republic.

mpnforumlist.wordpress.com/...

You can find other MPN Specialists listed here.

mpnforum.com/list-hem./

Do please let us know how things go.

DariBee profile image
DariBee in reply to hunter5582

Thank you hunter :) That's such a good idea, Brno is not far. I'll try to contact doctor Doubek. Thanks! I'll keep you posted.

hunter5582 profile image
hunter5582

Hope that works. I have family in Brno and have been there four times. It is a lovely city and great fun to visit. I never made it over to Slovakia, but it is on my to-do list.

Všetko najlepšie pre teba. Hope Google translate got that right!

DariBee profile image
DariBee in reply to hunter5582

Ooh, you've been in Brno 🤗 Yes it's a nice city with friendly people. Next time you should gtake a train to Slovakia, it's just one hour away :)... I am going to have an appointment with my gynecologist and hematologist next week. I'll see what plan they'll propose and then I'll contact doctor Doubek from Brno for a consultation.

hunter5582 profile image
hunter5582 in reply to DariBee

I will put a trip to Slovakia on my agenda the next time I am over there. Hope you are able to get an appointment with the MPN Specialist without any trouble.

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