Posts - MPN Voice | HealthUnlocked

MPN Voice

10,722 members • 14,843 posts

All posts for July 2021

Negative tests

Hi all, Platelets 600000 for 10 years, all test negative. All scans clear thank god. Sent back to my GP, on aspirin 75mg and annual check up. Many thanks...

Hi all, Platelets 600000 for 10 years, all test negative. All scans clear than...

De12

•3 years ago

4 Replies

Effects of Pfizer.

Has anybody else had this problem? I was on Pegasys and then after my first Pfizer injection all my blood counts, haem, whites and platelets dropped...

Has anybody else had this problem? I was on Pegasys and then after my first Pfiz...

Anita53

•3 years ago

6 Replies

Ruxolitinib and vaccine efficacy

Has anyone extracted anything useful from the blizzard of recent press coverage and small-scale studies with immunosuppressed individuals, about what exactly...

Has anyone extracted anything useful from the blizzard of recent press coverage ...

Rob58

•3 years ago

11 Replies

Want to take advantage of all our features? Just log in!

ET symptoms ?

Hi all,first of all, I've been following the forum for quite some time , thank you Maz and everyone helping in here ! I have ET JAK2, 34 years old, roughly...

Hi all,first of all, I've been following the forum for quite some time , thank y...

Maella

•3 years ago

9 Replies

Hu and sun exposure

Hi all, I am 71 now PV and starting HU. I have been warned to stay out of the sun or wear long shirts and pants and a hat and sunscreen when outside. I...

Hi all, I am 71 now PV and starting HU. I have been warned to stay out of the ...

Meatloaf9

•3 years ago

48 Replies

Does taking lower dose aspirin advisable for years?

I’ve been taking aspirin for 5 months straight now and I feel like I’ll be doing it for years. I know some people says it the possible side effects outweighs...

I’ve been taking aspirin for 5 months straight now and I feel like I’ll be doing...

livelovelaugh1992

•3 years ago

18 Replies

PEG-Interferon and bowel side-effects

Apologies in advance for what may seem like a rather negative - and unsavoury - post but I would be grateful to learn of the experiences of other MPNers. As...

Apologies in advance for what may seem like a rather negative - and unsavoury - ...

JaK2ET

•3 years ago

8 Replies

chemo cut by 20% after vaccine

ET, PositiveJax 2, hydroxy almost 3 years. I had Pfizer vaccine March 6 & 27. Blood test on March 24 showed that platelets, WBC, neutrophils had all...

ET, PositiveJax 2, hydroxy almost 3 years. I had Pfizer vaccine March 6 & 27. ...

h2ogal

•3 years ago

12 Replies

Update Integrative hospital London

The long awaited appointment was yesterday. Good job I don’t get disappointed . The Dr was clearly confused so first 5 minutes spent with her telling me she...

The long awaited appointment was yesterday. Good job I don’t get disappointed . ...

Mostew

•3 years ago

12 Replies

No antibodies fear after C19 vaccine

I spoke to my GP regarding the reports of people with MPDs not developing antibiodies following Covid vaccine. She said there was no empirical evidence of...

I spoke to my GP regarding the reports of people with MPDs not developing antib...

lynnieb

•3 years ago

17 Replies

Confusion over vaccine efficacy for MPNS

A headline this morning seems to be focused on the dangers to people with immune deficiency and the lack of protection afforded to this group. Blood cancers...

A headline this morning seems to be focused on the dangers to people with immune...

amarylis

•3 years ago

7 Replies

Just a quick thank you x

I just wanted to say thank you to those that replied to my question on ill after jabs I' apologise to not responding to you individually but yet again...

I just wanted to say thank you to those that replied to my question on ill aft...

Boobles

•3 years ago

1 Reply

Saxenda weight loss medication

I have myelofibrosis and take hydroxycarbamide. Can anyone tell me if there are any reasons why i should not have Saxenda which is a medicine to help you loose...

I have myelofibrosis and take hydroxycarbamide. Can anyone tell me if there are ...

Ginny70

•3 years ago

3 Replies

Pegasus interferon taking paracetamol before injection

I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still...

I have just completed my third injection 2 of which I did myself the first by th...

Hughley

•3 years ago

10 Replies

Lightheaded and chest/back pain possible blood clot?

I am ET JAK+. My platelets are at 519 right now. A few days ago I began having dizzy spells. It got so bad after a few days I had decided to go to my primary...

I am ET JAK+. My platelets are at 519 right now. A few days ago I began having d...

Tingle20

•3 years ago

27 Replies

Reducing Pegasys dose?

Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platelets down to 480 on last count. Because side effects are an issue for me (mostly...

Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platele...

IrishSarah

•3 years ago

39 Replies

B12 Deficiency and Oedema - MPN PV

Evening MPN'ers - I've had an appointment with my GP this afternoon, due to a problem with swollen feet and ankles, which has been an ongoing issue for a few...

Evening MPN'ers - I've had an appointment with my GP this afternoon, due to a pr...

Kari1961

•3 years ago

7 Replies

Phlebotomy and reducing counts

Hello Thank you all for such valuable information! I am recently diagnosed at 70 years young after routine blood work. I am an avid runner and very active all...

Hello Thank you all for such valuable information! I am recently diagnosed at 70...

Sunnylesser

•3 years ago

5 Replies

What is the next step?

I had a blood test last week as I’ve been feeling pretty rubbish and had some pain in left side and in my neck. The results are back and the GP is saying...

I had a blood test last week as I’ve been feeling pretty rubbish and had some pa...

GemH2014

•3 years ago

6 Replies

MF

My ET has progressed to MF just found out today , hematologist going to decide what medication to start me on to go back in a months time .

My ET has progressed to MF just found out today , hematologist going to decide w...

indy22

•3 years ago

19 Replies

Wow, just happened across this comprehensive and impressive resource for anyone new on the road re ET, PV or MF. Thanks Chicago!

Sure beats those pathetic booklets, pamphlets or directions to sites made for juveniles, or beyond even....

Sure beats those pathetic booklets, pamphlets or directions to sites made for ju...

Magentas

•3 years ago

15 Replies

Interferon

Just done my 1st injection, simple enough, now hoping any side effects will be minimal.

Just done my 1st injection, simple enough, now hoping any side effects will be m...

ciye

•3 years ago

36 Replies

Probiotics, MF and Ruxolitinib

Just something that came up while I was chatting briefly to my haematology nurse. I asked her if taking probiotics was a good idea for me, fully expecting her...

Just something that came up while I was chatting briefly to my haematology nurse...

Otterfield

•3 years ago

29 Replies

Weight gain with ruxolitinib

Hi can anyone help please? I've been on ruxolitinib since November and my weight is creeping up. I have always eaten well and exercise alot but this change is...

Hi can anyone help please? I've been on ruxolitinib since November and my weight...

soomoo

•3 years ago

31 Replies

Blood cancers & vaccination

Hi don't know if its right or not but I was looking on Google other night to read that blood cancers might not be protected from having both vaccines done can...

Hi don't know if its right or not but I was looking on Google other night to rea...

Jody00

•3 years ago

9 Replies

Covid Antibodies and MPNs

Hello fellow MPNers. After listening to the interview with Blood Cancer UK on BBC R4, concerning the effectiveness of vaccines in providing protection to...

Hello fellow MPNers. After listening to the interview with Blood Cancer UK on B...

Ovingite

•3 years ago

28 Replies

Recently diagnosed with ET

Been reading on this site for awhile trying to learn more about this. I just had a six month blood test and all this came up. I appreciate everyone telling...

Been reading on this site for awhile trying to learn more about this. I just had...

blueseas45

•3 years ago

17 Replies

Anxiety and palpitations

Hi l have ET and Jak2 l take warfrin and hydroxy. I have had tests for irregular heart beats which have included ECG monitoring and cardiac stress tests...

Hi l have ET and Jak2 l take warfrin and hydroxy. I have had tests for irreg...

Hidden

•3 years ago

2 Replies

Sometimes patience isn’t a virtue!!!

I waited for letter as promised for new appointment at Integrative London Hospital in Aug to replace the one they had cancelled. Rang to say hadn’t heard only...

I waited for letter as promised for new appointment at Integrative London Hospit...

Mostew

•3 years ago

9 Replies

Really ill since 1st jab

I had my first az jab in Feb 2021 within 5 days I ended up on 3g sachets antibiotics steroids and still on the damn things also i have had 17 hemiplegic...

I had my first az jab in Feb 2021 within 5 days I ended up on 3g sachets antibio...

Boobles

•3 years ago

5 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for July 2021

Negative tests

Effects of Pfizer.

Ruxolitinib and vaccine efficacy

ET symptoms ?

Hu and sun exposure

Does taking lower dose aspirin advisable for years?

PEG-Interferon and bowel side-effects

chemo cut by 20% after vaccine

Update Integrative hospital London

No antibodies fear after C19 vaccine

Confusion over vaccine efficacy for MPNS

Just a quick thank you x

Saxenda weight loss medication

Pegasus interferon taking paracetamol before injection

Lightheaded and chest/back pain possible blood clot?

Reducing Pegasys dose?

B12 Deficiency and Oedema - MPN PV

Phlebotomy and reducing counts

What is the next step?

MF

Wow, just happened across this comprehensive and impressive resource for anyone new on the road re ET, PV or MF. Thanks Chicago!

Interferon

Probiotics, MF and Ruxolitinib

Weight gain with ruxolitinib

Blood cancers & vaccination

Covid Antibodies and MPNs

Recently diagnosed with ET

Anxiety and palpitations

Sometimes patience isn’t a virtue!!!

Really ill since 1st jab

Search posts

Pinned Posts

Latest poll

What age were you when your MPN was diagnosed?

Topics

Archive