Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for July 2021

MPN specialist haematologist in the Algarve

Does anyone know of any haematologist in the Algarve who specialises in MPNs and speaks English? Thanks in advance.

Does anyone know of any haematologist in the Algarve who specialises in MPNs and...

•3 years ago

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ET and Hypothyroidism

Hi. I recently posted asking if anyone else had ET and Hypothyroidism and it seems a lot of us do. I have just been looking at hypothyroid symptoms as I am...

Hi. I recently posted asking if anyone else had ET and Hypothyroidism and it se...

•3 years ago

JAK2 results

Hello all Just a quick question really but is it possible to get a positive JAK2 test and not have an MPD? I was previously tested twice positive and twice...

Hello all Just a quick question really but is it possible to get a positive JAK2...

•3 years ago

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MPN and fitness apps like runtastic

Hi guys, just wandered if anyone having a MPN would like to team up on runtastic or freeletics (or anything else, I'm open for suggestions). In case you are...

Hi guys, just wandered if anyone having a MPN would like to team up on runtastic...

•3 years ago

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At what point are lowered wbc counts a concern

I have PV and after pegasys for 3 months my wbc is now at 2.7 thou/uL (normal range 4.0 to 11.0). I am vaccinated with the Pfizer vaccine. I would just like...

I have PV and after pegasys for 3 months my wbc is now at 2.7 thou/uL (normal ra...

•3 years ago

Vaccine efficiency

I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today about the ongoing uncertainty over the covid vaccines’ efficiency for this...

I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today ...

•3 years ago

Covid 19 Antibodies after vaccination

Blood cancer UK has an update on M)N patient response to vaccination that includes the medication patients are taking. Not a big study but informative. I...

Blood cancer UK has an update on M)N patient response to vaccination that inclu...

•3 years ago

Radio interview this morning

Morning everyone, There was an interview on BBC Radio 4 this morning, just after 6.50 am highlighting the efficacy of vaccines for people with blood cancers. A...

Morning everyone, There was an interview on BBC Radio 4 this morning, just after...

•3 years ago

Ibuprofen

Is anyone taking ibuprofen for pain while taking hydroxyurea?

Is anyone taking ibuprofen for pain while taking hydroxyurea?

•3 years ago

Pegasus interferon injection prepping

Well I have managed to do my first injection st home but had a bit of a problem prepping the injection I couldn’t seem to be able to snap the needle holder in...

Well I have managed to do my first injection st home but had a bit of a problem ...

•3 years ago

Some Good News re Covid help

If we are not getting the antibodies, or do not want the vaccine, here is something else which may help reduce the risks - they are trying to get a drug from...

If we are not getting the antibodies, or do not want the vaccine, here is someth...

•3 years ago

Covid-19 vaccination and bone marrow

I have seen a lot of reporting on this site that after vaccination many do not have the antibodies they may expect to have. Interestingly - I just fell across...

I have seen a lot of reporting on this site that after vaccination many do not h...

•3 years ago

MPN COVID-19 Vaccination Survey - results

We would like to thank everyone who completed the MPN COVID-19 vaccination survey in March. The survey was conducted by the teams at Guy’s & St Thomas’...

We would like to thank everyone who completed the MPN COVID-19 vaccination surve...

Partner•3 years ago

Change of treatment!

Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg a day, Monday to Friday for 4 weeks and then every day. To start with I...

Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg...

•3 years ago

ET - how many of you have this condition and then have it develop into MF or another condition

Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It...

Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positi...

•3 years ago

More Pegasys Injection Issues

Hi everyone, I find the posts helpful and interesting. Thanks to all. So I have been injecting pegasys for 14 weeks for p-vera. I generally follow the...

Hi everyone, I find the posts helpful and interesting. Thanks to all. So I have...

•3 years ago

Support group near us

Hi - My partner was diagnosed 3 years ago with ET and possibly pre-PMF and I wondered whether anyone knows of an MPN support group Norfolk or Cambridgeshire...

Hi - My partner was diagnosed 3 years ago with ET and possibly pre-PMF and I won...

•3 years ago

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