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MPN Voice

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All posts for December 2020

Does interferon alpha prolong survival and prevent progression in patients with PV?

« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to Ghaith Abu-Zeinah, Weill Cornell Medicine, New York,...

« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposi...

Manouche

•4 years ago

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ASH 2020 | Timing of driver mutations and clonal dynamics in MPNs: a new paradigm for blood cancer development

Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short You Tube is full of some very interesting theories, and one in particular that I...

Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short Yo...

socrates_8

•4 years ago

8 Replies

Sharps Bin

I have a sharps bin for my Interferon needles, it's getting full, so I ring my local surgery to see if they can dispose, NO. Rang the pharmacy, NO They...

I have a sharps bin for my Interferon needles, it's getting full, so I ring my l...

shiftzz

•4 years ago

14 Replies

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Increasing evidence that Interferons are our best treatment option for PV

Both low risk and high risk PV....

Paul123456

•4 years ago

10 Replies

Vitamin D from the NHS

I haven't been offered Vitamin D by the NHS so I did Google search and this came up:...

I haven't been offered Vitamin D by the NHS so I did Google search and this came...

Hat3

•4 years ago

8 Replies

Ruxolitinib/Jakafi interaction with Warfarin/Coumadin

Can anyone advise? I am three weeks into a brand new course of Ruxolitinib, and on a long-term course of Warfarin. I researched possible interactions, and...

Can anyone advise? I am three weeks into a brand new course of Ruxolitinib, and ...

RobinBrum

•4 years ago

6 Replies

UK Covid Vaccine & Ruxolitinib

Anyone had the UK Vaccine that takes Ruxolitinib for post et-MF. If so how was it for you? Any side effects?

Anyone had the UK Vaccine that takes Ruxolitinib for post et-MF. If so how was i...

StreetPastor

•4 years ago

5 Replies

RUXCOVID study (NCT04362137) ~ FAILED TO BENEFIT

Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm Ruxolitinib fails to provide clinical benefit in patients with COVID-19-related cytokine storm...

Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm Ruxolitinib fails to provid...

socrates_8

•4 years ago

3 Replies

Anagrelide or Peg Interferon

Hi everyone. Since having to give up Hydroxy nearly 2 years ago, because of side effects , I have been on aspirin and omeprazole only. That has worke until...

Hi everyone. Since having to give up Hydroxy nearly 2 years ago, because of sid...

Splb3317

•4 years ago

8 Replies

The effect of influenza vaccination on trained immunity: impact on COVID-19

« In conclusion, a quadrivalent inactivated influenza vaccine can induce trained immunity responses against SARS-CoV-2, which may result in relative...

« In conclusion, a quadrivalent inactivated influenza vaccine can induce traine...

Manouche

•4 years ago

2 Replies

Weight

Hi everyone does anyone think Hydrea puts weight on does anyone know for sure because I have put some on just curious do I blame the medication it is it me

Hi everyone does anyone think Hydrea puts weight on does anyone know for sure be...

Windy51

•4 years ago

12 Replies

Interferon

Hi all I have just read a article about people suffering long Covid mentioning about Interferon Wondering if it has any connection to interferon...

Hi all I have just read a article about people suffering long Covid mentioning ...

Gunner73

•4 years ago

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An Explosion of Options for MPNs Forthcoming

« The Virtual ASH Meeting was just held in early December. It demonstrated that although we missed the in-person interactions, the progress in the world of...

« The Virtual ASH Meeting was just held in early December. It demonstrated that ...

Manouche

•4 years ago

1 Reply

Joint pain and atmospheric pressure

I have been suffering with pain in my knees which radiates to my shins, thighs and hips. I have it every day but I think it's worse when atmospheric pressure...

I have been suffering with pain in my knees which radiates to my shins, thighs a...

Otterfield

•4 years ago

14 Replies

RUXOLITINIB & Pulmonary Hypertension (PH)

Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, or perhaps I should have said, more recently while cycling... I have noticed...

Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, ...

socrates_8

•4 years ago

4 Replies

Holidays

Merry Christmas and a prayer for a better New Year to all my MPN family. It’s been sometime since I’ve posted but keeping up with everyone. There’s signs in...

Merry Christmas and a prayer for a better New Year to all my MPN family. It’s be...

Scrollernut

•4 years ago

2 Replies

Picture of nucleated red blood cell

Attached is a picture of a nucleated red blood cell which is what you would see in myelofibrosis. You can see that all the other red blood cells lost their...

Attached is a picture of a nucleated red blood cell which is what you would see ...

clubdino

•4 years ago

8 Replies

Picture of blast cell

I took this picture from a cat who had leukemia. Their blood cells are identical to ours. As you can see the blast cell is huge compared to the other white...

I took this picture from a cat who had leukemia. Their blood cells are identical...

clubdino

•4 years ago

1 Reply

Teardrop RBC

For anyone interested I am attaching a picture of teardrop red blood cells. Sometimes you may see this noted on your reports especially if you have MF.

For anyone interested I am attaching a picture of teardrop red blood cells. Some...

clubdino

•4 years ago

2 Replies

Worth a read

https://www.google.co.uk/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjdj9HNksjtAhXPiFwKHaPcC0gQFjANegQIBRAC&url=https%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fpmc%

https://www.google.co.uk/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjdj9...

Mostew

•4 years ago

11 Replies

Update 4.0

Just had my follow up MRI and it looks good. The brain is continuing to heal from the tumor/surgery and that recovery is looking good. I have not had any of...

Just had my follow up MRI and it looks good. The brain is continuing to heal fr...

hunter5582

•4 years ago

32 Replies

Critical illness payment for PV

Hello, I did search but didn't find anything current. My son was diagnosed with PV about 2 years ago. I have had a critical illness insurance policy for years,...

Hello, I did search but didn't find anything current. My son was diagnosed with ...

lea44

•4 years ago

6 Replies

Pot Belly

Hi Does anyone have a problem with a pot belly. I have found recently that my trousers are tight and I am sure my spleen is not the cause. I have MF on...

Hi Does anyone have a problem with a pot belly. I have found recently that my t...

WeeHarry

•4 years ago

11 Replies

High Eosinophils

Hello all I'm new here with a couple of significant health worries. I have be sent to a hematologist with elevated white blood count 12.5 and high eosinophils...

Hello all I'm new here with a couple of significant health worries. I have be se...

JannerJohn

•4 years ago

2 Replies

Symptomatic with moderate raised platelets

Hi all, is there any correlation between how high your platelets are before you experience symptoms? My platelets are between 500-600 and I seem to be...

Hi all, is there any correlation between how high your platelets are before you ...

Lions3

•4 years ago

6 Replies

Pegasys and Blood Pressure Medication

I’ve been put on low dose Ramipril ( an ACE inhibitor ) by my GP nurse practitioner for borderline hypertension. I am also on a high dose 180mcg Pegasys and...

I’ve been put on low dose Ramipril ( an ACE inhibitor ) by my GP nurse practitio...

swimswam

•4 years ago

5 Replies

Et and itchy skin 😩

Itchy skin recently Not sure if et related as it only seems to happen when I am anxious or thinking about it?

Itchy skin recently Not sure if et related as it only seems to happen when I am...

Irishgal12

•4 years ago

9 Replies

Statins and Type 2 Diabetes

Not strictly speaking an MPN question but I’d be interested to know if anyone has had a similar experience of statins and insulin resistance as a possible side...

Not strictly speaking an MPN question but I’d be interested to know if anyone ha...

AndyT

•4 years ago

8 Replies

Bone scan results

Hi, I have just had a phone call from Endocrinologist saying she thinks I should be on treatment for thinning bones. I’m ET JAK 2 positive. A bit worried about...

Hi, I have just had a phone call from Endocrinologist saying she thinks I should...

Bield

•4 years ago

10 Replies

Face and Ears hot/flushed in the morning

PV, JAK2+, Pegasys 45mcg Anyone else get hot flushed face and ears particularly in the morning? Is this just a PV symptom?

PV, JAK2+, Pegasys 45mcg Anyone else get hot flushed face and ears particularly ...

JT_Marlin

•4 years ago

1 Reply

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2020

Does interferon alpha prolong survival and prevent progression in patients with PV?

ASH 2020 | Timing of driver mutations and clonal dynamics in MPNs: a new paradigm for blood cancer development

Sharps Bin

Increasing evidence that Interferons are our best treatment option for PV

Vitamin D from the NHS

Ruxolitinib/Jakafi interaction with Warfarin/Coumadin

UK Covid Vaccine & Ruxolitinib

RUXCOVID study (NCT04362137) ~ FAILED TO BENEFIT

Anagrelide or Peg Interferon

The effect of influenza vaccination on trained immunity: impact on COVID-19

Weight

Interferon

An Explosion of Options for MPNs Forthcoming

Joint pain and atmospheric pressure

RUXOLITINIB & Pulmonary Hypertension (PH)

Holidays

Picture of nucleated red blood cell

Picture of blast cell

Teardrop RBC

Worth a read

Update 4.0

Critical illness payment for PV

Pot Belly

High Eosinophils

Symptomatic with moderate raised platelets

Pegasys and Blood Pressure Medication

Et and itchy skin 😩

Statins and Type 2 Diabetes

Bone scan results

Face and Ears hot/flushed in the morning

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