Posts - MPN Voice | HealthUnlocked

MPN Voice

10,647 members • 14,730 posts

All posts for December 2020

Vaccin Covid vs Policitemia Vera

Hello everyone, does anyone know if it is recommended to get the COVID 19 vaccine if you have Policithemia Vera? Do you know details: contraindications,...

Hello everyone, does anyone know if it is recommended to get the COVID 19 vaccin...

cata

•4 years ago

7 Replies

Shingles!

Last week I felt the first tingling feeling of Shingles, but it disappeared. I happened to have an appointment with my consultant and she decided to prescribe...

Last week I felt the first tingling feeling of Shingles, but it disappeared. I h...

Otterfield

•4 years ago

5 Replies

Covid Vaccination- Thanks for all replies

I'd like to thank you all very much for your very helpful views on this matter. My hospital, James Cook in Middlesbrough has begun vaccinating today. I 'd just...

I'd like to thank you all very much for your very helpful views on this matter. ...

azaelea

•4 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Covid Vaccination

Hello all, I'm over 80 and have ET JAK2+ and will probably be one of the first, after NHS workers and care homes to be offered the vaccination. Does anyone...

Hello all, I'm over 80 and have ET JAK2+ and will probably be one of the first, ...

azaelea

•4 years ago

18 Replies

AOP Orphan announces 5-year results on BESREMi® in PV at the ASH Annual Meeting 2020

Besremi showed clear advantages in efficacy and safety/tolerability versus best-available-treatment (mostly hydroxyurea) in this long-term treatment analysis...

Besremi showed clear advantages in efficacy and safety/tolerability versus best-...

Manouche

•4 years ago

7 Replies

Mutation

I have ET with mpl mutation but have no idea what that means

ciye

•4 years ago

2 Replies

VITAMIN 'D' STUDY & UPDATES...

Post by MPN-MATE Admin » Mon Dec 07, 2020 8:13 pm Hey everyone... :D Not long ago, we were all having a short but interesting discussion concerning...

Post by MPN-MATE Admin » Mon Dec 07, 2020 8:13 pm Hey everyone... :D Not lon...

socrates_8

•4 years ago

23 Replies

A CONVERSATION WITH MPN SPECIALISTS

Post by MPN-MATE Admin » Mon Dec 07, 2020 7:57 pm Evening All... :D Thought some of you might be interested in some of the new research and findings that...

Post by MPN-MATE Admin » Mon Dec 07, 2020 7:57 pm Evening All... :D Thought ...

socrates_8

•4 years ago

Be the first to reply

Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival

« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV...

« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifyi...

Manouche

•4 years ago

1 Reply

Which is safest- low dose aspirin or chloropidegrel

Which had the least side effects.. aspirin or chloropidegrel

Dioub

•4 years ago

11 Replies

I had a pneumonia vaccination today and have had awful chills and a high temp. Is this normal and can I take paracetamol. I’ve already taken

Has my post posted . Because I really need an answer

Juliet46

•4 years ago

10 Replies

Trying to get pregnant with ET

Hello everyone, I have ET for last 4 years. I am on Aspirin only, platelets count is pretty constant between 600 to 700. I am 37 years old and have two kids. I...

Hello everyone, I have ET for last 4 years. I am on Aspirin only, platelets coun...

mustabshra

•4 years ago

6 Replies

Staying safe

Hi all. Just wanted to let you all know. I have spoken to my managers at work today and they have agreed that the clinically extremely vulnerable should not...

Hi all. Just wanted to let you all know. I have spoken to my managers at work to...

poly2

•4 years ago

14 Replies

Starting meds & worried

Hi all. Had phone call with doc yesterday & platelets are now over the 1500 mark (1569) so I need to start medication. I’m only 41 with 2 young kids so I’m...

Hi all. Had phone call with doc yesterday & platelets are now over the 1500 mark...

DoubleF79

•4 years ago

16 Replies

Thanks

Thank you everyone for your tips and help and thoughts I’m greatful to all 🌻

Windy51

•4 years ago

2 Replies

Side effects of Ruxolitinib

I've been offered a place on the Mithridate trial and wondered if anyone can tell me about any side effects that they experience from Ruxolitinib?

I've been offered a place on the Mithridate trial and wondered if anyone can tel...

60Something

•4 years ago

10 Replies

Will there be a list of Pros and cons of each of the vaccines?

With the Pfizer vaccine ready to be given out from next week, followed soon after no doubt by the Moderna & Oxford vaccines, with others to follow it would be...

With the Pfizer vaccine ready to be given out from next week, followed soon afte...

MarkD6701

•4 years ago

2 Replies

Long-Term Use of Besremi in Polycythemia Vera: 5-Year Results from a Randomized Controlled Study and Its Extension

« Patients with polycythemia vera (PV) require life-long treatment to prevent thromboembolic events and minimize the risk of progression. Ropeginterferon...

« Patients with polycythemia vera (PV) require life-long treatment to prevent th...

Manouche

•4 years ago

14 Replies

Rising platelets

Hi, during recent bloodtests I was discovered to have platelets of 600 that have been rising for past 3 years and have been referred in the next two weeks to...

Hi, during recent bloodtests I was discovered to have platelets of 600 that have...

106776

•4 years ago

7 Replies

Inconclusive results from BMB

My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tests results for lymphoma and leukemia. Red blood cell, white blood cell and...

My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tes...

margaritampn

•4 years ago

6 Replies

ET Diagnosis and symptoms not on list.

Hello, I was diagnosed in June 2020 with ET Jak2 mutation, platelets around 600,000 , I am a 53 year old male and on 81 mg of aspirin. When I look a the list...

Hello, I was diagnosed in June 2020 with ET Jak2 mutation, platelets around 600,...

Rockhigh

•4 years ago

17 Replies

Is there a link between PV and Alopecia areata (AA)?

Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb 2020 a blood test picked up high red blood cells / haemoglobin and...

Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb ...

Lettie_WP

•4 years ago

2 Replies

Christmas cards

Are the Christmas cards still available does anyone know?

JP1952

•4 years ago

4 Replies

Can someone help me understand!!!

Got my email so am I going back to work or not am I the only one that doesn't understand it?

Got my email so am I going back to work or not am I the only one that doesn't un...

Avamia94

•4 years ago

1 Reply

E mail from Matt Hancock

I received a very long e mail from a Matt Hancock yesterday regarding the new instructions due to being clinically extremely vulnerable due to suffering PV...

I received a very long e mail from a Matt Hancock yesterday regarding the new in...

Hughley

•4 years ago

5 Replies

Thoughts please. Aimed at the many with a better brain than me !

I’m still pondering vit k . Very aware we can always find an article on web that ‘suits’ us So objective thoughts welcome What do you make of this link?...

I’m still pondering vit k . Very aware we can always find an article on web that...

Mostew

•4 years ago

19 Replies

Email from Blood Cancer UK

Has anybody else received an email from blood cancer UK regarding the Covid vaccine? If this has been discussed before then please excuse me. I felt so...

Has anybody else received an email from blood cancer UK regarding the Covid vacc...

jillydabrat

•4 years ago

27 Replies

Hi has anyone with MF experienced taking Ruxilitinib and then your symptoms returning as if it’s not working anymore.

Skye333

•4 years ago

3 Replies

Taking both HU and Pegasys?

I'd like to hear if people have successfully taken both HU and Pegasys together, and their reasons for doing this. I have noticed a couple of posts recently...

I'd like to hear if people have successfully taken both HU and Pegasys together,...

MPNBlog

•4 years ago

4 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2020

Vaccin Covid vs Policitemia Vera

Shingles!

Covid Vaccination- Thanks for all replies

Covid Vaccination

AOP Orphan announces 5-year results on BESREMi® in PV at the ASH Annual Meeting 2020

Mutation

VITAMIN 'D' STUDY & UPDATES...

A CONVERSATION WITH MPN SPECIALISTS

Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival

Which is safest- low dose aspirin or chloropidegrel

I had a pneumonia vaccination today and have had awful chills and a high temp. Is this normal and can I take paracetamol. I’ve already taken

Trying to get pregnant with ET

Staying safe

Starting meds & worried

Thanks

Side effects of Ruxolitinib

Will there be a list of Pros and cons of each of the vaccines?

Long-Term Use of Besremi in Polycythemia Vera: 5-Year Results from a Randomized Controlled Study and Its Extension

Rising platelets

Inconclusive results from BMB

ET Diagnosis and symptoms not on list.

Is there a link between PV and Alopecia areata (AA)?

Christmas cards

Can someone help me understand!!!

E mail from Matt Hancock

Thoughts please. Aimed at the many with a better brain than me !

Email from Blood Cancer UK

Hi has anyone with MF experienced taking Ruxilitinib and then your symptoms returning as if it’s not working anymore.

Taking both HU and Pegasys?

Search posts

Pinned Posts

Latest poll

What age were you when your MPN was diagnosed?

Topics

Archive