Weight : Hi everyone does anyone think Hydrea puts... - MPN Voice

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Windy51 profile image
12 Replies

Hi everyone does anyone think Hydrea puts weight on does anyone know for sure because I have put some on just curious do I blame the medication it is it me

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Windy51 profile image
Windy51
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12 Replies
Dovme profile image
Dovme

For me personally l think it’s inactivity perhaps linked to several causes ie stress taking new meds, fatigue worries and also eating to many carbs during lockdowns. l also gained a few kilo but lost it fairly easily with dieting and excercise. Will probably gain again now with Christmas ( it’s the chocolates and stollen) and now a second lockdown.

Windy51 profile image
Windy51 in reply to Dovme

No COVID has had nothing to do with me in that way I’m in Australia it’s been ok here really

bordeauxgirl profile image
bordeauxgirl

I have been on Hyroxy for 6 years , also previously 104 days in lockdown, no, I don't think it is the drug, more likely as someone else said , inactivity and eating more because we are confined. I had lovely neighbours doing some shopping , but most of all it is just BOREDOM, I made three quilts and did a painting , didn't have time to get bored , in fact I actually enjoyed the freedom of myself time. My family had to put up with me feeding them when I was ready. if you have a hobby 'dive right in' by the way I went from 12st.8lb to 11st. 7 lb, Happy Christmas everyone.

Swede profile image
Swede

Hi, well, I started to gain when I started the medication and I gained a total of 15kg, over abour 10 years. I asked my doctor and she agreed and said it does affect the metabolism. She also mentioned that it is really difficult to lose that medication-weight and she is right there. I might have 5 kg to blame myself for but ...... the rest I think, is with help of medication.

mhos61 profile image
mhos61

I’ve been on hydrea for over four years, and it hasn’t affected my weight, although, my dose (1x5 weekly) is quite low.My bmi is presently 21. I have a fairly good diet and take light exercise, mainly walking.

Everyone’s metabolism is different.

Bluetop profile image
Bluetop

I have been on hydroxy for 5 years. So far weight gain hasn't been a feature for me.

lizzziep profile image
lizzziep

I put weight on as soon as I started to take hydroxy, I think if you are prone to weight gain anyway then it contributes to it. I'm still struggling to lose it.

Wyebird profile image
Wyebird

I’ve put loads on but I think it’s due to fatigue as I used to be very active

AdaJane007 profile image
AdaJane007

I have put weight on with the Hydrea. I went on it last December and my weight went steadily upwards, and finally stabilised after about 8 months. I have put on a stone. I am walking more and trying to cut down on calories, but it doesn't seem to help. I am gonna try a bit harder in the New Year.

redumbrella profile image
redumbrella

I have been on Hydrea for about 14 months with no issues on weight.

Garry

Cookiebaker profile image
Cookiebaker

I have been on hydroxyurea for 23 months. I am active and have gained 12 pounds . At first I didn’t feel good and thought if I ate I would feel better but it didn’t make me feel better. I began feeling better when my platelets decreased and I have been trying to lose with little success. I have ET. Good luck with your weight loss and be sure to let us know if you have any tips for losing. I am 71.

Devilgirl profile image
Devilgirl

I've also put weight on since starting Hydrea 12 months ago but also just gone / going through the change after op last year so think mine could be either or a combination.

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