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MPN Voice

10,784 members • 14,980 posts

All posts for September 2020

NATURAL BP & MAYBE PLATELET REMEDY ???

Post by MPN-MATE Admin » Thu Sep 17, 2020 8:04 pm Hey everyone... :D I hope all are doing well and managing throughout this rather fascinating chapter of...

Post by MPN-MATE Admin » Thu Sep 17, 2020 8:04 pm Hey everyone... :D I hope a...

socrates_8

•4 years ago

13 Replies

Is it polycythemia vera?

Hi I m 40 yrs old male. For last 4 years i observed hb little high 17 something and rbc little over normal with hct over 50 at present. Searching the cause i...

Hi I m 40 yrs old male. For last 4 years i observed hb little high 17 something ...

Spa1981

•4 years ago

6 Replies

Blood counts and fatigue

Was chatting to someone who said they only experienced fatigue when HCT at 0.38 or lower. I know that HB is roughly 3 x HCT but wondering if people have...

Was chatting to someone who said they only experienced fatigue when HCT at 0.38...

Paul123456

•4 years ago

15 Replies

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DIFFERENT LABS DIFFERENT RESULTS!

is this possible? From having stable platlets around the 700,000 mark for about 5 years. In just under 3months jump to 924,000!! I was shocked to say the...

is this possible? From having stable platlets around the 700,000 mark for about ...

Hidden

•4 years ago

29 Replies

Joint pain/Bone pain with MF

Recently diagnosed with post ET MF, I have started to get aching in my knees and wrists/hands. I will be able to ask my consultant about it next week but I...

Recently diagnosed with post ET MF, I have started to get aching in my knees and...

Otterfield

•4 years ago

6 Replies

Vitamin B12 Deficiency

Hi everyone for responding to my earlier post and for your helpful comments. My readings were part of the FBC which was higher than normal at 514. Other...

Hi everyone for responding to my earlier post and for your helpful comments. My...

Heather270240

•4 years ago

10 Replies

What’s my blood test called

Hello everyone, hope you are all well. In a weeks time I have my usual blood test for the hospital for checking blood levels for PV .....the hospital doesn’t...

Hello everyone, hope you are all well. In a weeks time I have my usual blood t...

Yvette49

•4 years ago

6 Replies

The Tardis

I know I have always loved to do crafts, any crafts. You will never see me sitting without a pair of knitting needles or crochet hook in my hands but I must...

I know I have always loved to do crafts, any crafts. You will never see me sitt...

jillydabrat

•4 years ago

18 Replies

An evening of Traditional Music from Ireland, in aid of MPN Voice – video of the concert

The concert was recorded specially for MPN Voice with well known musicians from Ireland playing tunes and singing songs, in their own homes, and in The...

The concert was recorded specially for MPN Voice with well known musicians from ...

Mazcd

Partner•4 years ago

3 Replies

Pins needles et

What causes pins and needles in legs at night is it et related

Irishgal12

•4 years ago

4 Replies

JAK2 46/1 haplotype

I have the JAK2 46/1 haplotype and some abnormalities primarily a very high serum cobalamin count, should I be tested for JAK2 and what exactly is tested in...

I have the JAK2 46/1 haplotype and some abnormalities primarily a very high seru...

TGRM

•4 years ago

2 Replies

why do I get the needles and pins sensation in the shower with et

I have et jak 2 please tell me if there is something to help with the needles and pins feeling I sometimes get

I have et jak 2 please tell me if there is something to help with the needles an...

milw532

•4 years ago

4 Replies

Can I take Imodium when I have to take nitrofurantoin

Can I take Imodium when I have to take nitrofurantoin for a urine infection please let me know as soon as possible because I have diarrhoea

Can I take Imodium when I have to take nitrofurantoin for a urine infection plea...

Robertjgillies91

•4 years ago

3 Replies

Vitamin B12 deficiency

Hi. I have ET JAK2 diagnosed in 2017. I have now been told by my GP surgery that I have a Vitamin B12 deficiency despite the fact that I take a daily dose of D...

Hi. I have ET JAK2 diagnosed in 2017. I have now been told by my GP surgery that...

Heather270240

•4 years ago

12 Replies

MPN-u unclassified

Hi I’ve only just been diagnosed with MPN-u unclassified so still trying to get my head around things .Am I right I’m thinking it’s a slow growth blood cancer...

Hi I’ve only just been diagnosed with MPN-u unclassified so still trying to get ...

Lizzy19

•4 years ago

5 Replies

Nitrofurantoin on male of 29

I was getting pain in the lower right of my stomach so I phoned NHS24 and they made me a appointment at the out of hours assessment centre in Kirkcaldy at the...

I was getting pain in the lower right of my stomach so I phoned NHS24 and they m...

Robertjgillies91

•4 years ago

8 Replies

Fight fatigue with fluids

Water is essential for carrying nutrients to our body's cells and taking away waste products. When we are low on fluids, our body may feel tired and weaker...

Water is essential for carrying nutrients to our body's cells and taking away w...

krotsida

•4 years ago

3 Replies

You've seen the platelets now here is the big mama clump

Usually you would not see a clump of this size on a blood smear. This happened because the smear was made via finger prick. But it gives you an idea of what it...

Usually you would not see a clump of this size on a blood smear. This happened b...

clubdino

•4 years ago

13 Replies

NO REAL REASON FOR MDS/MPN

Hi everyone, since my diagnosis in June 2019 I have assumed that I had a gene mutation that was causing this condition and kept forgetting to ask. Today I...

Hi everyone, since my diagnosis in June 2019 I have assumed that I had a gene m...

MaggieSylvie

•4 years ago

8 Replies

Giant platelet picture

A picture of a giant platelet...not usually seen in normal blood...but often seen in MPN patients blood.

A picture of a giant platelet...not usually seen in normal blood...but often see...

clubdino

•4 years ago

7 Replies

A picture of what ET looks like under the microscope.

The tiny bright purple dots are platelets. As you can see some of them are clumping together. The larger pale purple dots are red blood cells. When a manual...

The tiny bright purple dots are platelets. As you can see some of them are clump...

clubdino

•4 years ago

6 Replies

Further New.

After the visit to see consultant last Friday, telling him all our concerns, a appointment come today for husband to have BMB, it's for Monday, surprised its...

After the visit to see consultant last Friday, telling him all our concerns, a a...

Jean24

•4 years ago

12 Replies

Life expectancy with Interferon vs HU vs Phlebotomy

INF vs HU vs Phlebotomy

Manouche

•4 years ago

6 Replies

Are immature cells bad and why do I need another bone marrow biopsy?

Have been MF for 15 months and being treated with Ruxolitinib. Not showing any symptoms and feel well, other than an enlarged spleen. Blood counts are good,...

Have been MF for 15 months and being treated with Ruxolitinib. Not showing any s...

billybrock

•4 years ago

6 Replies

Access to Prof Harrison's presentation on ET

hello I have not registered for the MPN Awareness day in Austria. Would it be possible to gain access to Professor Harrison's presentation on ET after the...

hello I have not registered for the MPN Awareness day in Austria. Would it be p...

Nikou

•4 years ago

12 Replies

Please donate to this - these folk are doing this on OUR BEHALF! See mpnvoice.org.uk

Hi everyone, There is a concert being organised on our behalf. Please donate via just giving, there are 3,000 people signed up to mpnvoice.org apparently,...

Hi everyone, There is a concert being organised on our behalf. Please donate vi...

Loubprv

Volunteer•4 years ago

5 Replies

REMINDER An evening of Traditional Music in aid of MPN Voice THU 10 SEP AT 8 PM via Facebook Live and YouTube live

Taking place on the 8th annual MPN Awareness Day 2020 – today the 10th September, a day to raise awareness of MPNs and to support MPN patient organizations...

Taking place on the 8th annual MPN Awareness Day 2020 – today the 10th September...

Mazcd

Partner•4 years ago

Be the first to reply

Starting hydroxycarbamide and scared!

Hi everyone. It's been a while since I posted but I have been reading a lot on here and find it so reassuring and comforting. I an 60, have PRV Jak2+...

Hi everyone. It's been a while since I posted but I have been reading a lot on h...

Tmg59

•4 years ago

44 Replies

Today is International MPN Awareness Day

I have seen a few things today on social media - great idea to inform and educate others about MPNs and to raise its profile. For myself l like to say thank...

I have seen a few things today on social media - great idea to inform and educat...

Dovme

•4 years ago

9 Replies

High cbc count. What cud be the reason?

Hi For last three years my rbc count is mildly high 6.22 to 6.3 and hemoglobin 14 to recently 16.6 and hct 45.4 to latest 49.2 platelete 330000 to 498000 at...

Hi For last three years my rbc count is mildly high 6.22 to 6.3 and hemoglobin ...

Spa1981

•4 years ago

2 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for September 2020

NATURAL BP & MAYBE PLATELET REMEDY ???

Is it polycythemia vera?

Blood counts and fatigue

DIFFERENT LABS DIFFERENT RESULTS!

Joint pain/Bone pain with MF

Vitamin B12 Deficiency

What’s my blood test called

The Tardis

An evening of Traditional Music from Ireland, in aid of MPN Voice – video of the concert

Pins needles et

JAK2 46/1 haplotype

why do I get the needles and pins sensation in the shower with et

Can I take Imodium when I have to take nitrofurantoin

Vitamin B12 deficiency

MPN-u unclassified

Nitrofurantoin on male of 29

Fight fatigue with fluids

You've seen the platelets now here is the big mama clump

NO REAL REASON FOR MDS/MPN

Giant platelet picture

A picture of what ET looks like under the microscope.

Further New.

Life expectancy with Interferon vs HU vs Phlebotomy

Are immature cells bad and why do I need another bone marrow biopsy?

Access to Prof Harrison's presentation on ET

Please donate to this - these folk are doing this on OUR BEHALF! See mpnvoice.org.uk

REMINDER An evening of Traditional Music in aid of MPN Voice THU 10 SEP AT 8 PM via Facebook Live and YouTube live

Starting hydroxycarbamide and scared!

Today is International MPN Awareness Day

High cbc count. What cud be the reason?

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