Today is International MPN Awareness Day - MPN Voice

MPN Voice

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Today is International MPN Awareness Day

9 Replies

I have seen a few things today on social media - great idea to inform and educate others about MPNs and to raise its profile. For myself l like to say thank you to everyone on this forum for all the knowledge and support. Your all amazing

9 Replies
Mazcd profile image
MazcdPartnerMPNVoice

Hi Dovme, it is indeed MPN Awareness day and we at MPN Voice want you all to take time and think about yourself, take time to think about your overall mind and body well being and do something that makes you feel good, you will all see the pinned post about MPN Awareness Day (on the right hand side of the page) which has some great ideas and links to our new relaxation podcasts, specially produced for MPN awareness.

And don't forget the virtual forum coming from Austria later today

healthunlocked.com/mpnvoice...

AND MORE IMPORTANTLY, An evening of traditional music from Ireland, tonight at 8 pm, a host of amazing well known musicians have recorded a concert just for MPN Voice to raise awareness of MPNs and also funds to support us, so at 8 pm tonight, sit back and enjoy

mpnvoice.org.uk/get-involve...

and don't worry if you can't watch it tonight, a video will be available in the next few days.

best wishes everyone, Maz

mark382 profile image
mark382 in reply toMazcd

Hi Maz, I've looked in a lot of places for a banner or something I could share on my Facebook page, to let everyone know it is MPN Day, so that more people are aware of our conditions. Do you know if one exists. Thanks Mark.

Mazcd profile image
MazcdPartnerMPNVoice in reply tomark382

hi Mark, sorry we don't have one. Maz

mark382 profile image
mark382 in reply toMazcd

Thanks Maz. No problem.

in reply tomark382

I think many organizations have banners and are promoting the event. Also a variety of info events stories etc on Facebook Instagram and YouTube

voicesofmpn.com/mpn-awarene...

leukaemia.org.au/events/mpn...

EmeraldA profile image
EmeraldA

It would be great exposure if we could get a Google doodle day.

Mazcd profile image
MazcdPartnerMPNVoice in reply toEmeraldA

hi EmeraldA, yes indeed it would, do you know how we can? Maz

EmeraldA profile image
EmeraldA in reply toMazcd

Hi Maz, Ideas can be sent to google the email address is proposals@google.com.

Brona

Wyebird profile image
Wyebird

Oh dear only just read this- I’m off to yoga soon so I’ll dig out my MON T-SHIRT and wear it. Thank you

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