Thank you

[intothewoods]

Hi all,

It’s been a year since my partner was diagnosed with ET triple negative at 32, after a minor heart attack and platelets over 2m. He’s still getting his medicine dosage sorted but I’m sure we’ll get there in the end.

I wanted to say a big thank you to the community here who have been kind enough to share their knowledge when I’ve posted questions, especially during those scary first few weeks when doctors are ruling other issues out. I read posts on the forum regularly and it’s helped me be a better advocate for my partner, know what to ask and what not to worry about.

So thank you so much everyone!

x

[Applesnpears]

Great post. You sound like a stong team.

[Minu68]

O ditto this 'thank you ', and how lovely of you to post this for this community.

I was diagnosed over a month ago, and this forum has so helped me in so many ways already!

[Mazcd Partner MPNVoice]

that is very nice and kind of you, thank you, and glad to hear that the forum has helped you, best wishes to you both, Maz x

[jillydabrat]

I am sure everyone on here appreciates your post. When I got diagnosed with PV in 2015 I felt lost until I found this community. I never go anywhere else for advice now because my MPN family have all the info I need. Glad we were able to help you and your husband xx

[hunter5582]

We are indeed stronger together. Glad to hear you can help advocate for the care your partner needs. Having people support us is a real blessing. All the best to you and your partner.