Platelets too low on Pegasys: Apologies if half of... - MPN Voice

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Platelets too low on Pegasys

Otterfield profile image
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Apologies if half of this post has already appeared - it just disappeared as I was typing.

I have ET and on Pegasys 90mcg weekly since last July, with good results. Since Christmas I have had recurring cellulitis infections and my GP is investigating me for diabetes. My last (GP's) blood test was only two weeks after my haematologist appointment but my platelets had dropped from 129 to 101 in that time (other counts were more or less unchanged). When I found this out, I phoned the haematology nurse but frustratingly my consultant was on holiday. I was advised by the on call haematologist to leave off Pegasys last week, but I had already done the injection. I am having another blood test at the hospital tomorrow (I left off Pegasys this week) and have also had another GP one today, which bled MUCH more than usual. I am now feeling really anxious about how low my platelets might be. I am expecting to hear back from the hospital the day afterwards but I am really struggling with worry about what it all might mean. I know that we can't get/give medical advice here but has anyone had a similar experience? Or at least tips for dealing with anxiety?

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Otterfield
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Manouche profile image
Manouche

My platelets dropped quickly to 50 when I was injecting 90mcg of Pegasys. It got quickly back to normal with 45mcg weekly. I wouldn’t worry about your platelet level at 101. The right posology of Pegasys should sort you out pretty quickly .

Otterfield profile image
Otterfield in reply to Manouche

Thank you, Manouche, for such a quick reply and for reassuring me. Sometimes anxiety can spiral out of control so I really appreciate this.

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