Would you argue to switch to Jakafi even if HU is working OK ?

[Iwillwin123]

Is there anyone here who would argue for moving to Jakafi even though HU has worked well for the patient ? If yes then why ?

[Chicagopv]

I switched because my itching wasn’t controlled by hu. Luckily my US insurance covers it and I pay $20/month. And itching is much much less.

[Iwillwin123 in reply to Chicagopv]

Thankyou. Since there is so much cutting edge research on HU, Jakafi and interferon going on , I felt I will benefit from real time opinions and experiences such as yours.

[Osteomyelio]

No

[Iwillwin123 in reply to Osteomyelio]

Thankyou

[Hidden]

HU did not stop the itching.

Jakafi did and fast.

[Iwillwin123 in reply to Hidden]

Thankyou for the reply. Yes there were others who also experienced the same. Good enough treason to switch to jakafi I guess ..... since the itching can get quite intense sometimes .

[Hidden]

I wanted to add that I have tried both and could not take hydroxyurea.

I had a few side effects when starting Jakafi but they lessened in time.

Good luck.

[Iwillwin123 in reply to Hidden]

Thankyou for your input. Please let me know (if possible of course ) what were the reasons you felt HU was not agreeing with you.

[Hidden]

After a few days on the hydrea, a developed sores around my ankles and still had the itching.

I had researched hydroxyurea beforehand and was not thrilled with the side effects reported, although there are some who have no side effects.

[Iwillwin123 in reply to Hidden]

Thankyou . It really helps to get real opinions such as yours rather than rely on what little is available as the standard info ........

[Hidden]

You are welcome.