Forums: Can anyone tell me whether there is a... - MPN Voice

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Heather270240 profile image
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Can anyone tell me whether there is a forum in Kent please. I live in Maidstone.

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Heather270240 profile image
Heather270240
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4 Replies

Hi Heather, I live in Hempstead, Gillingham, so not a million miles away, happy to meet up for a chat and a cuppa in the new year - not quite a "forum" but every group had to start somewhere!

I'm post PV MF, PV 1999-2015, then MF and taking Ruxolitinib since early 2016.

Have a lovely Christmas and hopefully we'll be able to meet up in 2019!

Best wishes, Christine

Heather270240 profile image
Heather270240 in reply to

Hi Christine. It would be lovely to meet up in the New Year. Let me know when you are free. Happy Christmas. Heather

Mazcd profile image
MazcdPartnerMPNVoice

Hi Heather, if you mean one of our regional patients' forums, then I am sorry but no plans to hold one in Kent this year, if you mean a group that you can go to, I don't know of any, perhaps you could ask at your hospital, some haematology nurses do hold meetings/groups, though not always just for people with MPNs, so it's worth asking. Maz

Heather270240 profile image
Heather270240 in reply to Mazcd

Hi Mazcd. Many thanks for your msg. I have had a msg from Christine who lives quite close to me who has suggested me meet up. Heather.

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