Hello. I am 59 & have just been prescribed 500 mg HU to lower my platelets & am so scared. Not only am I horrified that I will be taking a chemo pill for the rest of my life, but when I read the info that came with my prescription, it said to handle pill & bottle using gloves and wash hands immediately afterwards. Also read men taking it should use condoms. Does this mean my saliva & body fluids are now poisonous & I should stop kissing my husband or allowing anyone to drink from my glass? I should have asked my dr, but honestly, once he said “mild chemo”, every word he spoke sounded like the “wah wah” adult voices in a Charlie Brown cartoon. I can’t even remember what disease he said I have. He mentioned a mutated gene & something about a gas pedal being stuck but I can’t recall the exact term. I am still not over the shock of having 2 stents inserted 2 months ago for blocked heart arteries and being put on heart meds & a statin. A few months ago, I took no meds & thought I was 100% healthy and now I have 2 stents, some kind of blood disease, am taking 7 pills a day, one being chemo.
I was wondering what precautions everyone else takes handing HU because it will be almost a week before going back to my dr. I know I could call his office, but just thought I’d ask here. Also will I lose my hair? I did ask my dr that and he said I shouldn’t, but the way he said it didn’t instill much confidence. Sorry about this long rambling post, but I am just so overwhelmed. I am keeping up a positive front for my husband & haven’t even told my sons, family & friends about this new diagnosis, but I am terrified.