Does anyone know the reason why the Jakarta drug... - MPN Voice

MPN Voice

10,832 members15,125 posts

Does anyone know the reason why the Jakarta drug trial has been suspended

nspann1 profile image
2 Replies
Written by
nspann1 profile image
nspann1
To view profiles and participate in discussions please or .
2 Replies
JediReject profile image
JediReject

Hi nspann1 I take it from the lack of response 'Nobody knows'. Please can u give a little more detail such as is it the Jakafi drug trial for ET/PV , , were u on it and where was it at. Because I would be interested to know if anyone has the answer. I did wonder at the value of such trials knowing how costly they are when NICE had rejected the drug for MF earlier this year. But then again if it has a wider application it might bring the cost down. I think I heard it linked to Pancreatic cancer. I loathe all these politics when it comes to improving peops quality of life or extending life but unfortunately I cant see it improving over time. Cheers

beetle profile image
beetle

I only know of the Sanofi trial being suspended. Fedratinib (SAR-302503) has been withdrawn because of a possible link with Wernikes Encephalopathy - one case of which has proved fatal. Not aware of any Jakarta trial being suspended

Not what you're looking for?

You may also like...

Has anyone discontinued Hydroxyurea? Why?

So ive been taking Hydroxy for over 2 years now and my quality of life improved during that time....
BloodZero profile image

Has anyone been diagnosed with jak2

I have recently found out I have jak2 mutation and want to speak to anyone that has the same...

Has anyone else been diagnosed jak2 negative?

I was diagnosed with ET in 2001 with high platelets over 600 and put on clopidogrel. Last year the...
Harrietjane profile image

Does anyone remember this info that has been shared a few times before.

Hi, I read a post I think from Maz some time ago , it was either info or an article which covered...

Why is there so little interest in the trial drug ruxolitinib by you out there. Iv been on it for weeks and my whole world has changed

Get in touch if you are interested ,I'm no longer needing venesection And my energy levels are...
Twinkly profile image